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Been Feeling A Hot Sensation All Over Body And Inside

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Posted on Fri, 17 May 2019
Question: Been feeling a hot sensation all over body and inside of nose been having a lot of back pain and both legs hurt had a brain mri dr thinks it’s MS came back negative I’m having issues with my thyroid antibodies are very high other dr says it can be the cause of the burning feeling or anxiety need help trying to figure this out can it be MS also had a X-ray done says lose of disc height L5-S1
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Follow up: Dr. Dariush Saghafi (0 minute later)
Been feeling a hot sensation all over body and inside of nose been having a lot of back pain and both legs hurt had a brain mri dr thinks it’s MS came back negative I’m having issues with my thyroid antibodies are very high other dr says it can be the cause of the burning feeling or anxiety need help trying to figure this out can it be MS also had a X-ray done says lose of disc height L5-S1
doctor
Answered by Dr. Dariush Saghafi (3 hours later)
Brief Answer:
Lets not worry about the loss of disc height for any of this, OK?

Detailed Answer:
Good evening.

Typically, with your set of symptoms the underlying cause falls into 3 major categories:

1. Metabolic problems (e.g. diabetes, allergic reactions to food, medications, etc.)
2. Endocrinological problems (e.g. thyroid, adrenal, pituitary, etc.)
3. Autonomic Dysfunction/failure of some type (may be reversible...some times not)
4. Stress/anxiety/Depressive mood/Hyperactivity

MS doesn't hit my radar with your symptoms though let me be the FIRST to say that I am NEVER surprised or shocked anymore when something really bizarre pops up and turns out to be some type demyelinating disease (whether MS, sarcoid, or something else). However, in your case we have one other bit of information that I'm going to pull in order to prevent your asking, "Well, could MY symptoms be another RARE occurrence?" And that is that your MRI is negative according to some radiologist. So, that's encouraging. Again, as a neurologist I am not thinking MS in your case AHEAD of the other diagnoses I gave you above.

Now, you did say that your THYROID ANTIBODIES are very high? Now, you've got my captive and undivided attention. You didn't say, however, what your numbers are or exactly which thyroid antibodies we're talking about or which ones have already been looked at and felt to be normal? So, from where I sit, I would say those really need to be investigated properly since if it's the only thing that's abnormal about you then, in my opinion, it's significant, and until something better can be found as a reason for your symptoms I would say, it's in the #1 running spot for the UNDERLYING CAUSE....

So, here are the thyroid tests that I would order for you if your were my patient:

1. TSH
2. FT4, TT4, FT3, TT3
3. Microsomal Enzymes

There are clearly other types of endocrine problems that you could have just in terms of your female hormones. You didn't say how old you were, if you're on oral contraceptives, or if you've had any female surgeries to take out your ovaries, uterus, etc. but obviously any woman who tells she feels heat all over her body is a candidate for either PMS or she could be PRE-MENOPAUSAL, right? So those are other considerations.

How about diet? Have you changed your diet recently to include strange "health foods" that contain ingredients that are supposed to give you lots of vim, vigor, make your memory better, etc. etc. A lot of that stuff makes chemical systems in normal bodies go HAYWIRE.....any of that action going on?

So as you can see young lady (and I don't know BTW, just how young you are) but I do NOT think you've got a high probability of having MS. I do think you've got a high probability of having some type of thyroid issue and that should be investigated thoroughly but if it leads to a dead end then, there a still a ton of other avenues to travel....you just need an intrepid and willing guide to think a bit out of the box and try and come up with more common things that can cause DIFFUSE symptoms of hyperthermia, and burning nostrils.

If I've provided useful or helpful information to your questions could you do me the utmost of favors in CLOSING THE QUERY along with a few positive words of feedback and maybe even a 5-star rating if you feel it is deserving? I am definitely interested in getting updated information if you'd care to drop me a line at www.bit.ly/drdariushsaghafi as to how you're feeling down the road and how things turned out.

You can always reach me at the above address for this and other questions. I wish you the best with everything and hope our discussion has aided in your understanding of a few concepts related to your concerns and given you a better direction as to which way a conversation would best be had with your doctor if you feel a discussion needs to take place based on what I've written.

Cheers Miss XXXXXXX ...wishin' you the best in my birth state of NJ.

This query required 70 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Lets not worry about the loss of disc height for any of this, OK?

Detailed Answer:
Good evening.

Typically, with your set of symptoms the underlying cause falls into 3 major categories:

1. Metabolic problems (e.g. diabetes, allergic reactions to food, medications, etc.)
2. Endocrinological problems (e.g. thyroid, adrenal, pituitary, etc.)
3. Autonomic Dysfunction/failure of some type (may be reversible...some times not)
4. Stress/anxiety/Depressive mood/Hyperactivity

MS doesn't hit my radar with your symptoms though let me be the FIRST to say that I am NEVER surprised or shocked anymore when something really bizarre pops up and turns out to be some type demyelinating disease (whether MS, sarcoid, or something else). However, in your case we have one other bit of information that I'm going to pull in order to prevent your asking, "Well, could MY symptoms be another RARE occurrence?" And that is that your MRI is negative according to some radiologist. So, that's encouraging. Again, as a neurologist I am not thinking MS in your case AHEAD of the other diagnoses I gave you above.

Now, you did say that your THYROID ANTIBODIES are very high? Now, you've got my captive and undivided attention. You didn't say, however, what your numbers are or exactly which thyroid antibodies we're talking about or which ones have already been looked at and felt to be normal? So, from where I sit, I would say those really need to be investigated properly since if it's the only thing that's abnormal about you then, in my opinion, it's significant, and until something better can be found as a reason for your symptoms I would say, it's in the #1 running spot for the UNDERLYING CAUSE....

So, here are the thyroid tests that I would order for you if your were my patient:

1. TSH
2. FT4, TT4, FT3, TT3
3. Microsomal Enzymes

There are clearly other types of endocrine problems that you could have just in terms of your female hormones. You didn't say how old you were, if you're on oral contraceptives, or if you've had any female surgeries to take out your ovaries, uterus, etc. but obviously any woman who tells she feels heat all over her body is a candidate for either PMS or she could be PRE-MENOPAUSAL, right? So those are other considerations.

How about diet? Have you changed your diet recently to include strange "health foods" that contain ingredients that are supposed to give you lots of vim, vigor, make your memory better, etc. etc. A lot of that stuff makes chemical systems in normal bodies go HAYWIRE.....any of that action going on?

So as you can see young lady (and I don't know BTW, just how young you are) but I do NOT think you've got a high probability of having MS. I do think you've got a high probability of having some type of thyroid issue and that should be investigated thoroughly but if it leads to a dead end then, there a still a ton of other avenues to travel....you just need an intrepid and willing guide to think a bit out of the box and try and come up with more common things that can cause DIFFUSE symptoms of hyperthermia, and burning nostrils.

If I've provided useful or helpful information to your questions could you do me the utmost of favors in CLOSING THE QUERY along with a few positive words of feedback and maybe even a 5-star rating if you feel it is deserving? I am definitely interested in getting updated information if you'd care to drop me a line at www.bit.ly/drdariushsaghafi as to how you're feeling down the road and how things turned out.

You can always reach me at the above address for this and other questions. I wish you the best with everything and hope our discussion has aided in your understanding of a few concepts related to your concerns and given you a better direction as to which way a conversation would best be had with your doctor if you feel a discussion needs to take place based on what I've written.

Cheers Miss XXXXXXX ...wishin' you the best in my birth state of NJ.

This query required 70 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
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Follow up: Dr. Dariush Saghafi (7 hours later)
I have uploaded recent blood works so ms is not it haven’t had mri of c or t spine dr says there can be lesions there also the constant back aches and pain and burning in legs what is that from
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Follow up: Dr. Dariush Saghafi (0 minute later)
I have uploaded recent blood works so ms is not it haven’t had mri of c or t spine dr says there can be lesions there also the constant back aches and pain and burning in legs what is that from
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Follow up: Dr. Dariush Saghafi (3 minutes later)
I’m 43 years old
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Follow up: Dr. Dariush Saghafi (0 minute later)
I’m 43 years old
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Follow up: Dr. Dariush Saghafi (13 minutes later)
Sorry so many question just very nervous single mom of a 8 year need to figure it out sometimes I have fatigue also going to schedule an appt with neurologist just to make sure any other suggestions
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Follow up: Dr. Dariush Saghafi (0 minute later)
Sorry so many question just very nervous single mom of a 8 year need to figure it out sometimes I have fatigue also going to schedule an appt with neurologist just to make sure any other suggestions
doctor
Answered by Dr. Dariush Saghafi (18 hours later)
Brief Answer:
Clear and present LOW VITAMIN D levels should be corrected

Detailed Answer:
Good morning and thank you for the lab results you provided and other information.

I have also taken the XXXXXXX of reading some other consults you've done with other doctors on this network and do understand that you are quite concerned with many things regarding your health as well as your family. However, I believe things are much better looking than you may realize though some numbers are clearly not where you or your doctors would prefer them to be....nevertheless, let's take a quick look at some of the information you've provided.

First, what I see from your labs that you submitted to me that I would INSTANTLY like to see not only treated but would like to see raised to substantially higher levels than are currently recorded are your VITAMIN D LEVELS. The ones in the labs are around 16 and my particular recommendation for my neurology patients is that they shoot for and maintain serum levels of 60-80ng/ml. For some odd reason, it is not that easy for many patients to achieve these goals. In part, because primary doctors (and specialists alike) have an innate sense of trepidation to push daily Vitamin D supplementation up beyond certain limits. In my experience, "ceiling to treatment" if you will is somehow based on what everybody else in their community seems to be doing along with a fear that if a patient's level exceed laboratory standards that really really REALLY bad things are bound to happen, etc. etc. etc. The real answer? I don't really know why doctors are so afraid of pushing vitamin D in a way that would facilitate allowing so many more patients access to those HIGHER yet likely THERAPEUTIC levels. We just seem to be content with Vitamin D levels that barely hover over what would be considered minimally satisfactory.

We do the same thing with Vitamin C. But don't get me started on that topic either....so far, we're just talking Vitamin D. Therefore, in your particular case, I would do a couple of things.....I would place you on a good replacement therapy program and then,monitor your D levels every 8-10 weeks for improvements and if you're not yet high enough I would push the supplemental levels up......OR I'D ORDER you to take a vacation for 1 month in Aruba, Hawaii, or the Mojave Desert (so long as you take plenty water and a wide brimmed hat!! LOL).....just to get the most Vitamin D naturally that you possibly can. Getting Vitamin D naturally through dietary means is tough even though we have fortified foods. The problem is that studies have looked at the actual content of Vitamin D in foods labeled as FORTIFIED and guess what they've found??? XXXXXXX XXXXXXX ...not all labeled foods have the claimed amount of the substance....and some tested products may have NOTHING at all...such as milk, yogurt, and ice cream.....There are reasons for that and perhaps understandable ones. But the point is...the only way to truly know you are GETTING the amount of Vitamin D you need is to either take a supplement that you can trust has the right amount of it present....OR, by going in a really nice XXXXXXX place and just let your body mass produce it.....we actually produce anywhere from 10,000-25,000 IU's daily in the proper environmental circumstances. Unfortunately, neither the State of NJ nor the State of OH provide such great environments for daily good effective sunlight....if they did, nobody would be D deficient, right?

Anyways, you may be pleasantly surprised at how many of your overall symptoms and perhaps even other lab abnormalities you are experiencing with respect to your inflammatory markers and thyroid antibodies could change or even normalize if only your Vitamin D were at adequate levels and could be maintained.

And so, to clarify.....I believe you should go on an aggressive REPLACEMENT THERAPY program of Vitamin D with the help of your physician (or one who understands what a good REPLACEMENT THERAPY program means) and also how to properly monitor a person so that they do not OVERDO a good thing. There is definitely nothing absolutely risk free about taking D supplementation. It's really got its down sides when in excess and can cause just as many problems when the needle is too far the other way.

So, please do not do as many people think they can do and just start popping D capsules thinking that they're just going to get their blood tested for D levels and they're on their way to Paradise.....there are more than just serum D levels that need to be monitored once you start hitting the HIGH DOSAGE scales of D that some people need and take to get things back in order.

And so, with you, I would first and foremost turn my attention to the Vitamin D levels, get those elevated into the target range I mentioned, monitor you closely every 8-10 weeks to make adjustments and then, after 4-6 months of having your D where it should be I would turn my attention to other processes going on.

The 2nd thing I notice (and I know you noticed it as well) are your antibody levels and inflammatory marker levels for your thyroid gland. Now, here is where some controversy exists both in the literature and in practice. While it is absolutely true that NORMAL levels of TSH, FT4, and TT4 usually indicate a normal functioning thyroid gland....and even in some cases symptoms of anything wrong could be minimal to none....there are a number of cases where people have SYMPTOMS of some type of either HYPOTHYROIDISM or HYPERTHYROIDISM but these are mistaken for other problems which are unrelated such as depression, anxiety, manic mood states, etc.

In your case, I do detect some potential symptoms of anxiety/concern/trepidation.....and perhaps all for good reason given your thyroid antibody titers as well as other things that I probably don't even know about at this time in terms of your family history, your own medical history, or the medical histories of people who are or were close to you where somehow things didn't go well, despite being told that nothing was wrong, etc. I understand all of those things...and it is very hard for me to put all of that into close perspective because, I DON'T KNOW YOU on that kind of level....perhaps, others do.

So here's the thing....you've apparently seen an endocrinologist (who is more an expert than I when it comes to thyroid numbers) and they have told you that watching numbers is what needs to happen now. I can definitely agree with taking a WATCH AND WAIT attitude there because if we really crunch your numbers using your TSH and TPO antibodies the absolute WORST OUTCOME I can see with your thyroid gland right now after calculating what's called a THYROID EVENTS AMSTERDAM SCORE is that you are at a 1.6% risk to develop hypothyroidism in the next 5 years..... and that is worst case scenario with the numbers you have today. The percentage risk may even be lower than 1.6% depending on a few things that I don't know about you that I can't factor in to the calculation....but anyways....I'd agree that 1.6% risk over 5 years is pretty nice and low....ESPECIALLY SINCE YOUR VITAMIN D is currently not good and as I said earlier, fixing that number and letting you live where you SHOULD BE LIVING with your Vitamin D might in and of itself kick that thyroid axis into place without having to do anything....then, you could even stop looking at those numbers....how nice would that be? Make Sense?

So, I agree that there is nothing to DO (physically) with that thyroid gland of yours at this time. I might be slightly more pushy when it came to getting repeat labs...or maybe your endocrinologist actually has a better plan by waiting 4-6 months....but again, since I'm a neurologist...I claim ignorance in that dept. I would have my patients getting retested in say 3-4 months.

Does that sound reasonable to you?

Finally, on the issue of the cervical spine study. As I previously stated to you...my suspicion for your symptoms to be caused by something like MS are so low...especially now that I can see what the other metabolic issues are that I'm honestly not sure why your doctor went in that direction in the 1st place. I would not have ordered that MRI on you.... Not pointing fingers or anything but you can imagine I've seen lots and lots of similar cases of people as yourself being worried about things (and perhaps with good cause)...but the problem is they get so out of sorts that they start burning their doctors' ears about tests, and studies, and needles, and etc.....Most PMD I know have to be DRAGGED to start ordering things like MRI's on brains if they are not truly convinced they are going to find something......however, when their patients get into the act of reading the internet, watching TV shows, or listening to their friends at the morning Yoga class talk to them, etc....well, sometimes, it's just easier to get the test done and then, tell the patient it was negative.

Again, this may not be your case at all so take it with a grain of salt if it wasn't your idea AT ALL to get that scan...or to even think about the cervical spine scan.....but I just had to mention it anyways....all in the process of getting to know you my dear...all in that spirit! LOL!

Your symptoms are much more consistent in my opinion with something that could be corrected by vitamin D therapy way more easily than by going on a wild goose chase getting an MRI of the c-spine looking for MS....but if I've not made a convincing enough argument then, by all means go for it....and send me the results of that study when you get it....or just tell me, "You told me so Doc!" HAHA! Either way, it's all good!

But the vitamin D is definitely in need of someone showin' it a little love...thyroids, I'd just be patient on for the moment.....everything else you showed me looks good....

Stay after that little one...get some power naps, drink some pomegranate juice (I mean the REAL STUFF...not the sugar injected crap...LOL....)...gotta love those antioxidants....try and get exercise into play if you're not already doing it....make sure your diet is really clean....that can be a huge part of a healthy THYROID gland as well...so if there were something there that could be done to avert trouble down the road with that gland and Vitamin D doesn't straighten it out....DIET JUST MIGHT!

Alright lady...I'm gonna move on to tickling someone else's ears about burning questions they have....THERE ARE SO MANY...and I'm hoping you're not up staring at the computer screen when you should be sleeping and resting! HAHA!

Hopefully, you'll have found this information useful and you may be inclined to give me a bit of your feedback along with what I would really appreciate immensely which would be a 5 STAR score along with CLOSING THE QUERY.....and if you ever swing by this direction to the State of Ohio....we're probably right in a straight line with you....BTW, I looked it up and you're only about a 30 minute drive down I-95 from where I was born...NEW BRUNSWICK....in what used to be called MIDDLESEX HOSPITAL which is now the XXXXXXX WOOD XXXXXXX UNIVERSITY HOSPITAL! So we're practically neighbors you see? You should come and visit us in Cleveland! LOL!

Be well and BREATHE

This query required 130 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Clear and present LOW VITAMIN D levels should be corrected

Detailed Answer:
Good morning and thank you for the lab results you provided and other information.

I have also taken the XXXXXXX of reading some other consults you've done with other doctors on this network and do understand that you are quite concerned with many things regarding your health as well as your family. However, I believe things are much better looking than you may realize though some numbers are clearly not where you or your doctors would prefer them to be....nevertheless, let's take a quick look at some of the information you've provided.

First, what I see from your labs that you submitted to me that I would INSTANTLY like to see not only treated but would like to see raised to substantially higher levels than are currently recorded are your VITAMIN D LEVELS. The ones in the labs are around 16 and my particular recommendation for my neurology patients is that they shoot for and maintain serum levels of 60-80ng/ml. For some odd reason, it is not that easy for many patients to achieve these goals. In part, because primary doctors (and specialists alike) have an innate sense of trepidation to push daily Vitamin D supplementation up beyond certain limits. In my experience, "ceiling to treatment" if you will is somehow based on what everybody else in their community seems to be doing along with a fear that if a patient's level exceed laboratory standards that really really REALLY bad things are bound to happen, etc. etc. etc. The real answer? I don't really know why doctors are so afraid of pushing vitamin D in a way that would facilitate allowing so many more patients access to those HIGHER yet likely THERAPEUTIC levels. We just seem to be content with Vitamin D levels that barely hover over what would be considered minimally satisfactory.

We do the same thing with Vitamin C. But don't get me started on that topic either....so far, we're just talking Vitamin D. Therefore, in your particular case, I would do a couple of things.....I would place you on a good replacement therapy program and then,monitor your D levels every 8-10 weeks for improvements and if you're not yet high enough I would push the supplemental levels up......OR I'D ORDER you to take a vacation for 1 month in Aruba, Hawaii, or the Mojave Desert (so long as you take plenty water and a wide brimmed hat!! LOL).....just to get the most Vitamin D naturally that you possibly can. Getting Vitamin D naturally through dietary means is tough even though we have fortified foods. The problem is that studies have looked at the actual content of Vitamin D in foods labeled as FORTIFIED and guess what they've found??? XXXXXXX XXXXXXX ...not all labeled foods have the claimed amount of the substance....and some tested products may have NOTHING at all...such as milk, yogurt, and ice cream.....There are reasons for that and perhaps understandable ones. But the point is...the only way to truly know you are GETTING the amount of Vitamin D you need is to either take a supplement that you can trust has the right amount of it present....OR, by going in a really nice XXXXXXX place and just let your body mass produce it.....we actually produce anywhere from 10,000-25,000 IU's daily in the proper environmental circumstances. Unfortunately, neither the State of NJ nor the State of OH provide such great environments for daily good effective sunlight....if they did, nobody would be D deficient, right?

Anyways, you may be pleasantly surprised at how many of your overall symptoms and perhaps even other lab abnormalities you are experiencing with respect to your inflammatory markers and thyroid antibodies could change or even normalize if only your Vitamin D were at adequate levels and could be maintained.

And so, to clarify.....I believe you should go on an aggressive REPLACEMENT THERAPY program of Vitamin D with the help of your physician (or one who understands what a good REPLACEMENT THERAPY program means) and also how to properly monitor a person so that they do not OVERDO a good thing. There is definitely nothing absolutely risk free about taking D supplementation. It's really got its down sides when in excess and can cause just as many problems when the needle is too far the other way.

So, please do not do as many people think they can do and just start popping D capsules thinking that they're just going to get their blood tested for D levels and they're on their way to Paradise.....there are more than just serum D levels that need to be monitored once you start hitting the HIGH DOSAGE scales of D that some people need and take to get things back in order.

And so, with you, I would first and foremost turn my attention to the Vitamin D levels, get those elevated into the target range I mentioned, monitor you closely every 8-10 weeks to make adjustments and then, after 4-6 months of having your D where it should be I would turn my attention to other processes going on.

The 2nd thing I notice (and I know you noticed it as well) are your antibody levels and inflammatory marker levels for your thyroid gland. Now, here is where some controversy exists both in the literature and in practice. While it is absolutely true that NORMAL levels of TSH, FT4, and TT4 usually indicate a normal functioning thyroid gland....and even in some cases symptoms of anything wrong could be minimal to none....there are a number of cases where people have SYMPTOMS of some type of either HYPOTHYROIDISM or HYPERTHYROIDISM but these are mistaken for other problems which are unrelated such as depression, anxiety, manic mood states, etc.

In your case, I do detect some potential symptoms of anxiety/concern/trepidation.....and perhaps all for good reason given your thyroid antibody titers as well as other things that I probably don't even know about at this time in terms of your family history, your own medical history, or the medical histories of people who are or were close to you where somehow things didn't go well, despite being told that nothing was wrong, etc. I understand all of those things...and it is very hard for me to put all of that into close perspective because, I DON'T KNOW YOU on that kind of level....perhaps, others do.

So here's the thing....you've apparently seen an endocrinologist (who is more an expert than I when it comes to thyroid numbers) and they have told you that watching numbers is what needs to happen now. I can definitely agree with taking a WATCH AND WAIT attitude there because if we really crunch your numbers using your TSH and TPO antibodies the absolute WORST OUTCOME I can see with your thyroid gland right now after calculating what's called a THYROID EVENTS AMSTERDAM SCORE is that you are at a 1.6% risk to develop hypothyroidism in the next 5 years..... and that is worst case scenario with the numbers you have today. The percentage risk may even be lower than 1.6% depending on a few things that I don't know about you that I can't factor in to the calculation....but anyways....I'd agree that 1.6% risk over 5 years is pretty nice and low....ESPECIALLY SINCE YOUR VITAMIN D is currently not good and as I said earlier, fixing that number and letting you live where you SHOULD BE LIVING with your Vitamin D might in and of itself kick that thyroid axis into place without having to do anything....then, you could even stop looking at those numbers....how nice would that be? Make Sense?

So, I agree that there is nothing to DO (physically) with that thyroid gland of yours at this time. I might be slightly more pushy when it came to getting repeat labs...or maybe your endocrinologist actually has a better plan by waiting 4-6 months....but again, since I'm a neurologist...I claim ignorance in that dept. I would have my patients getting retested in say 3-4 months.

Does that sound reasonable to you?

Finally, on the issue of the cervical spine study. As I previously stated to you...my suspicion for your symptoms to be caused by something like MS are so low...especially now that I can see what the other metabolic issues are that I'm honestly not sure why your doctor went in that direction in the 1st place. I would not have ordered that MRI on you.... Not pointing fingers or anything but you can imagine I've seen lots and lots of similar cases of people as yourself being worried about things (and perhaps with good cause)...but the problem is they get so out of sorts that they start burning their doctors' ears about tests, and studies, and needles, and etc.....Most PMD I know have to be DRAGGED to start ordering things like MRI's on brains if they are not truly convinced they are going to find something......however, when their patients get into the act of reading the internet, watching TV shows, or listening to their friends at the morning Yoga class talk to them, etc....well, sometimes, it's just easier to get the test done and then, tell the patient it was negative.

Again, this may not be your case at all so take it with a grain of salt if it wasn't your idea AT ALL to get that scan...or to even think about the cervical spine scan.....but I just had to mention it anyways....all in the process of getting to know you my dear...all in that spirit! LOL!

Your symptoms are much more consistent in my opinion with something that could be corrected by vitamin D therapy way more easily than by going on a wild goose chase getting an MRI of the c-spine looking for MS....but if I've not made a convincing enough argument then, by all means go for it....and send me the results of that study when you get it....or just tell me, "You told me so Doc!" HAHA! Either way, it's all good!

But the vitamin D is definitely in need of someone showin' it a little love...thyroids, I'd just be patient on for the moment.....everything else you showed me looks good....

Stay after that little one...get some power naps, drink some pomegranate juice (I mean the REAL STUFF...not the sugar injected crap...LOL....)...gotta love those antioxidants....try and get exercise into play if you're not already doing it....make sure your diet is really clean....that can be a huge part of a healthy THYROID gland as well...so if there were something there that could be done to avert trouble down the road with that gland and Vitamin D doesn't straighten it out....DIET JUST MIGHT!

Alright lady...I'm gonna move on to tickling someone else's ears about burning questions they have....THERE ARE SO MANY...and I'm hoping you're not up staring at the computer screen when you should be sleeping and resting! HAHA!

Hopefully, you'll have found this information useful and you may be inclined to give me a bit of your feedback along with what I would really appreciate immensely which would be a 5 STAR score along with CLOSING THE QUERY.....and if you ever swing by this direction to the State of Ohio....we're probably right in a straight line with you....BTW, I looked it up and you're only about a 30 minute drive down I-95 from where I was born...NEW BRUNSWICK....in what used to be called MIDDLESEX HOSPITAL which is now the XXXXXXX WOOD XXXXXXX UNIVERSITY HOSPITAL! So we're practically neighbors you see? You should come and visit us in Cleveland! LOL!

Be well and BREATHE

This query required 130 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (8 hours later)
Thank you for the feedback also what can be causing the back pain into both legs and burning sensation
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Follow up: Dr. Dariush Saghafi (0 minute later)
Thank you for the feedback also what can be causing the back pain into both legs and burning sensation
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Follow up: Dr. Dariush Saghafi (1 minute later)
It’s s constant pain especially when I get up that’s one of the reasons my primary assumes it’s MS
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Follow up: Dr. Dariush Saghafi (0 minute later)
It’s s constant pain especially when I get up that’s one of the reasons my primary assumes it’s MS
doctor
Answered by Dr. Dariush Saghafi (23 minutes later)
Brief Answer:
Low vitamin D can be an important of NEUROPATHY

Detailed Answer:
The significantly low Vitamin D level that you have is a potential major contributor to the symptoms you're referring with respect to the burning sensations in the body and well as nostril.

The negative MRI of the head is a strong indicator that you do probably do not have demyelinating disease since the more diffuse and global nature of your symptoms would suggest a location in the brain rather than spinal cord (i.e. I'd expect other signs or symptoms of neurological disorder aside from pure sensory problems at your age).

If your doctor (or neurologist) is recommending that the cervical spine be imaged then, you should follow their recommendation since they've examined you and I haven't, however, again, the constellation of symptoms puts you at LOW PROBABILITY in my opinion to worry about demyelinating disease due to something such as MS UNTIL SUCH TIME AS YOUR VITAMIN D HAS BEEN ADEQUATELY CORRECTED and sustained for a period of at least 2-3 months to see how your symptoms pan out.

MS would not cause pain in the extremities "especially when I get up" as you've stated...this is more suggestive of something which is posturally dependent and changes intensity based upon sitting, standing, or lying....make sense?

I can recount a number of patients to you for whom once we recovered their D levels to normal and sustained them for a period of time- their symptoms of pain or discomfort resolved. I would not try and diagnose too many things at once in your case. And I would definitely put more attention and effort in resolving those things that are definitely abnormal rather than looking for things that are probably NOT abnormal based upon your history and/or examination results. Make sense?

Once again, I hope you've found this information valuable and would appreciate your feedback as well as a generous 5 STAR rating. Also, CLOSING THE QUERY is graciously appreciated if you've obtained sufficient information to have a conversation with your doctor on next steps and again, the invite is open to you for a visit to Parma Neurology if you are in the neighborhood of the Midwest.

Hoping that you start feeling better with improvements in your Vitamin D and other parameters as the situation may dictate.

This query required 145 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Low vitamin D can be an important of NEUROPATHY

Detailed Answer:
The significantly low Vitamin D level that you have is a potential major contributor to the symptoms you're referring with respect to the burning sensations in the body and well as nostril.

The negative MRI of the head is a strong indicator that you do probably do not have demyelinating disease since the more diffuse and global nature of your symptoms would suggest a location in the brain rather than spinal cord (i.e. I'd expect other signs or symptoms of neurological disorder aside from pure sensory problems at your age).

If your doctor (or neurologist) is recommending that the cervical spine be imaged then, you should follow their recommendation since they've examined you and I haven't, however, again, the constellation of symptoms puts you at LOW PROBABILITY in my opinion to worry about demyelinating disease due to something such as MS UNTIL SUCH TIME AS YOUR VITAMIN D HAS BEEN ADEQUATELY CORRECTED and sustained for a period of at least 2-3 months to see how your symptoms pan out.

MS would not cause pain in the extremities "especially when I get up" as you've stated...this is more suggestive of something which is posturally dependent and changes intensity based upon sitting, standing, or lying....make sense?

I can recount a number of patients to you for whom once we recovered their D levels to normal and sustained them for a period of time- their symptoms of pain or discomfort resolved. I would not try and diagnose too many things at once in your case. And I would definitely put more attention and effort in resolving those things that are definitely abnormal rather than looking for things that are probably NOT abnormal based upon your history and/or examination results. Make sense?

Once again, I hope you've found this information valuable and would appreciate your feedback as well as a generous 5 STAR rating. Also, CLOSING THE QUERY is graciously appreciated if you've obtained sufficient information to have a conversation with your doctor on next steps and again, the invite is open to you for a visit to Parma Neurology if you are in the neighborhood of the Midwest.

Hoping that you start feeling better with improvements in your Vitamin D and other parameters as the situation may dictate.

This query required 145 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (21 hours later)
Happy Easter

What can cause the bengay like sensation in body can that be neurological or from the thyroid
default
Follow up: Dr. Dariush Saghafi (0 minute later)
Happy Easter

What can cause the bengay like sensation in body can that be neurological or from the thyroid
doctor
Answered by Dr. Dariush Saghafi (10 hours later)
Brief Answer:
Well....let's see....You been puttin' BENGAY all over your body??? LOL!

Detailed Answer:
Happy Easter to you as well my dear.....

So, lemme ask you.....you puttin'BenGay or IcyHot all over your body or something? You trying out for the NBA's Women's League or something?? HAHA!

I'm going to say that I'm pretty sure it's NOT your thyroid gland (but remember, I'm not an ENDOCRINOLOGIST). The thing is that so long as your important functional tests are within normal limits (typically taken to be TSH and FT4) then, the gland is essentially producing the normal amount and type of hormone necessary for the body to carry on as if nothing were going on.....no matter HOW MUCH ANTIBODY LOAD you happen to be carrying....make sense? So, I wouldn't expect that your thyroid is going to be the source of ANYTHING negative now or in the future UNLESS, those numbers start to change into abnormal ranges which would suggest that the TSH would ESCALATE above normal values....OR thew FT4 would DECREASE below normal values......At that point the gland can be identified as HYPOFUNCTIONING and at that point symptoms you could be having such as fatigue, tingling/burning sensations, double vision, constipation, yada yada yada, etc. could be blamed on a low functioning thyroid gland...and that's when all those antibodes come into play.

But until that really happens....it's going to be just like your endocrinologist said, wait and see. Doesn't mean you can't follow the numbers on an intermittent basis or even think about mapping out a strategy with your primary doctor in terms of what to do when the trigger value of "X" is reached such that your symptoms may be ratcheting up and becoming more uncomfortable. Kind of like having a tornado shelter plan...before the storm strikes! Do you have one??? We kind of do....but it's not as robust as it should be.... got that point tucked away.....So, not likely to be the thyroid causing the problem.

On the other hand and as I said in my other answers so far, your Vitamin D is showing a SIGNIFICANTLY LOW and DEFICIENT reading and therefore, I would really advise you not go looking or trying to fish for other causes that are more rare, more elegant, or just sexier than something as mundane as Vitamin D deficiency....because I'm seen a fair number of people recover function, improve, and even symptoms vanish as soon as their levels get up to the THERAPEUTIC levels that I like to recommend (60-80). Gotta to get your levels to that point (in my opinion) and you have to be able to maintain at least 60 days at those levels for at least several months with successful resolution or improvement of symptoms before saying that Vitamin doesn't make a difference and then, go looking for the next needle in the haystack.....Make Sense?

I would not guess at all that the BenGay sensation placed in the CERVICAL SPINAL CORD could cause anything but a funky or funny/burning sensation anywhere aside from your ARM(S), SHOULDER(S), OR HAND(s). It would be virtually impossible in my opinion to get a single demyelinating or any other type of lesion into the cervical cord in order to cause a GENERALIZED BURNING DYSESTHESIA. Any point (or even multiple point lesions) would only result in sensory changes or painful burning in spotty locations of the body and most expected would be the upper extremities...not even the face, head, or nostrils! That's why I'm not particularly thrilled about the concept someone is proposing (or is that you?? HA!) about there being some unrecognized active spot that is causing all of your symptoms in the cervical cord. That simply happen pathophysiologically based on anatomical considerations.

We've already got the MRI of the brain that has been cleared (at least that's the information you've given me....I can't verify it since I'm long distance from you).

That's why I want you to focus your time and energy on correcting that Vitamin D FIRST, getting someone to help you RELAX and take things easy with respect to the worries you've been having over what's going on....and just let things fall into place as they're accomplished without trying to overguess things. Make sense?

Recap:

1. Thyroid is highly unlikely to be the source of the paresthesias/dysesthesias you are reporting since the numbers show it is working NORMALLY....(antibody levels are not an issue right now....especially since they are not THAT THAT THAT high compared to other situations where they can literally be in the thousands of units or even tens of thousands of units above normal....)....Remember, yours are so mildly elevated that according to the THEA score we worked out yesterday your risk of becoming hypothyroid in the next 5 years is <2% and who knows....it may actually be lower than that if you have LESS than 2 relatives in your bloodline of family members who themselves have acquired idiopathic hypothyroidism at some point during their lives.

2. Vitamin D is really the only thing that is overtly abnormal right now that has a chance at being either the cause of or at least a contributor to your symptoms and therefore, that's where we should be focusing time and energy.

3. I do not believe a cervical MRI is a necessary test AT THIS TIME with an MRI of the brain that has ruled out demyelinating disease. In a patient such as yourself, I would first correct the Vitamin D, let those levels get to the optimal target of 60-80mg/ml and settle for no less than 60 days....reassess symptoms and functioning of the patient after that time and then, make the decision of whether or not we need to go to the cervical spine imaging study, think of other blood tests, get additional history that either the patient or the doctor had overlooked that may make a difference.

So, I hope that clears some more things up and that I've kind of summarized in a nutshell what I believe the plan going forward should be given the information you've presented and what we know about this type of situation.

If you agree that I've provided helpful information to your questions could you CLOSE THE QUERY along with some positive feedback and even a 5-star rating if I've earned your favor? I am interested in updated information if you'd care to drop me a line at www.bit.ly/drdariushsaghafi on how you're feeling and if you were able to accomplish a good Vitamin D replenishment protocol.

You can always reach me at the above address for this and other questions. I wish you the best with everything and hope our discussion has aided in your understanding related to your concerns.

Be well young lady--- here's another trivial piece of information you may find interesting. My daughter and wife just took off from the XXXXXXX International Airport for XXXXXXX Italy....10 minutes ago! LOL..... XXXXXXX is another place I lived as a mere toddler before we went to Trenton! I've been around that there Garden State! HA!

This query required 215 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Well....let's see....You been puttin' BENGAY all over your body??? LOL!

Detailed Answer:
Happy Easter to you as well my dear.....

So, lemme ask you.....you puttin'BenGay or IcyHot all over your body or something? You trying out for the NBA's Women's League or something?? HAHA!

I'm going to say that I'm pretty sure it's NOT your thyroid gland (but remember, I'm not an ENDOCRINOLOGIST). The thing is that so long as your important functional tests are within normal limits (typically taken to be TSH and FT4) then, the gland is essentially producing the normal amount and type of hormone necessary for the body to carry on as if nothing were going on.....no matter HOW MUCH ANTIBODY LOAD you happen to be carrying....make sense? So, I wouldn't expect that your thyroid is going to be the source of ANYTHING negative now or in the future UNLESS, those numbers start to change into abnormal ranges which would suggest that the TSH would ESCALATE above normal values....OR thew FT4 would DECREASE below normal values......At that point the gland can be identified as HYPOFUNCTIONING and at that point symptoms you could be having such as fatigue, tingling/burning sensations, double vision, constipation, yada yada yada, etc. could be blamed on a low functioning thyroid gland...and that's when all those antibodes come into play.

But until that really happens....it's going to be just like your endocrinologist said, wait and see. Doesn't mean you can't follow the numbers on an intermittent basis or even think about mapping out a strategy with your primary doctor in terms of what to do when the trigger value of "X" is reached such that your symptoms may be ratcheting up and becoming more uncomfortable. Kind of like having a tornado shelter plan...before the storm strikes! Do you have one??? We kind of do....but it's not as robust as it should be.... got that point tucked away.....So, not likely to be the thyroid causing the problem.

On the other hand and as I said in my other answers so far, your Vitamin D is showing a SIGNIFICANTLY LOW and DEFICIENT reading and therefore, I would really advise you not go looking or trying to fish for other causes that are more rare, more elegant, or just sexier than something as mundane as Vitamin D deficiency....because I'm seen a fair number of people recover function, improve, and even symptoms vanish as soon as their levels get up to the THERAPEUTIC levels that I like to recommend (60-80). Gotta to get your levels to that point (in my opinion) and you have to be able to maintain at least 60 days at those levels for at least several months with successful resolution or improvement of symptoms before saying that Vitamin doesn't make a difference and then, go looking for the next needle in the haystack.....Make Sense?

I would not guess at all that the BenGay sensation placed in the CERVICAL SPINAL CORD could cause anything but a funky or funny/burning sensation anywhere aside from your ARM(S), SHOULDER(S), OR HAND(s). It would be virtually impossible in my opinion to get a single demyelinating or any other type of lesion into the cervical cord in order to cause a GENERALIZED BURNING DYSESTHESIA. Any point (or even multiple point lesions) would only result in sensory changes or painful burning in spotty locations of the body and most expected would be the upper extremities...not even the face, head, or nostrils! That's why I'm not particularly thrilled about the concept someone is proposing (or is that you?? HA!) about there being some unrecognized active spot that is causing all of your symptoms in the cervical cord. That simply happen pathophysiologically based on anatomical considerations.

We've already got the MRI of the brain that has been cleared (at least that's the information you've given me....I can't verify it since I'm long distance from you).

That's why I want you to focus your time and energy on correcting that Vitamin D FIRST, getting someone to help you RELAX and take things easy with respect to the worries you've been having over what's going on....and just let things fall into place as they're accomplished without trying to overguess things. Make sense?

Recap:

1. Thyroid is highly unlikely to be the source of the paresthesias/dysesthesias you are reporting since the numbers show it is working NORMALLY....(antibody levels are not an issue right now....especially since they are not THAT THAT THAT high compared to other situations where they can literally be in the thousands of units or even tens of thousands of units above normal....)....Remember, yours are so mildly elevated that according to the THEA score we worked out yesterday your risk of becoming hypothyroid in the next 5 years is <2% and who knows....it may actually be lower than that if you have LESS than 2 relatives in your bloodline of family members who themselves have acquired idiopathic hypothyroidism at some point during their lives.

2. Vitamin D is really the only thing that is overtly abnormal right now that has a chance at being either the cause of or at least a contributor to your symptoms and therefore, that's where we should be focusing time and energy.

3. I do not believe a cervical MRI is a necessary test AT THIS TIME with an MRI of the brain that has ruled out demyelinating disease. In a patient such as yourself, I would first correct the Vitamin D, let those levels get to the optimal target of 60-80mg/ml and settle for no less than 60 days....reassess symptoms and functioning of the patient after that time and then, make the decision of whether or not we need to go to the cervical spine imaging study, think of other blood tests, get additional history that either the patient or the doctor had overlooked that may make a difference.

So, I hope that clears some more things up and that I've kind of summarized in a nutshell what I believe the plan going forward should be given the information you've presented and what we know about this type of situation.

If you agree that I've provided helpful information to your questions could you CLOSE THE QUERY along with some positive feedback and even a 5-star rating if I've earned your favor? I am interested in updated information if you'd care to drop me a line at www.bit.ly/drdariushsaghafi on how you're feeling and if you were able to accomplish a good Vitamin D replenishment protocol.

You can always reach me at the above address for this and other questions. I wish you the best with everything and hope our discussion has aided in your understanding related to your concerns.

Be well young lady--- here's another trivial piece of information you may find interesting. My daughter and wife just took off from the XXXXXXX International Airport for XXXXXXX Italy....10 minutes ago! LOL..... XXXXXXX is another place I lived as a mere toddler before we went to Trenton! I've been around that there Garden State! HA!

This query required 215 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (3 hours later)
I understand but my primary has put the MS notion in my head that’s why I’m a little confused the bengay sensation just started I feel it in different locations on my body my main problems was low back pain radiating down both legs with burning sensation and fatigue then I go to her And the Ms is brought up that’s why I’m so concerned as I have read it takes years for it to appear and I’m so afraid that of not being able to walk and care for myself or child I know I sound crazy and I apologize but I have no real support and thank you once again
default
Follow up: Dr. Dariush Saghafi (0 minute later)
I understand but my primary has put the MS notion in my head that’s why I’m a little confused the bengay sensation just started I feel it in different locations on my body my main problems was low back pain radiating down both legs with burning sensation and fatigue then I go to her And the Ms is brought up that’s why I’m so concerned as I have read it takes years for it to appear and I’m so afraid that of not being able to walk and care for myself or child I know I sound crazy and I apologize but I have no real support and thank you once again
doctor
Answered by Dr. Dariush Saghafi (56 minutes later)
Brief Answer:
I understand your difficulty and how you feel

Detailed Answer:
Totally feel 'ya on this one because you are GOOD COMPANY my dear when it comes to people who get overly nervous/anxious over health issues once they're brought up....it doesn't make sense sometimes and people even understand all the "LOGIC" about this or that....but still, their brains don't let them turn off the noise....you know what I mean I mean? I think it's kind of like....someone tells you, "DON'T SCRATCH YOUR SKIN...NO MATTER WHAT....DON'T DO IT CUZ YOU WILL GET WORSE." Well, most of us would do our very best to obey the order and we KNOW what could happen if we don't listen to the recommendation by the expert....BUT....sometimes that dang itch gets so blasted strong...that we just say, "Ferget it....I'll worry about the consequences later....I just HAVE to scratch my sking...." HAHAHA!

I don't know if that's a good example or not....but I've had those kinds of itches before for sure....and I know I haven't been perfect at resisting the temptation to scratch....and then, saying to myself later that I shouldn't've done that...and then the next time? Just scratch the dang thing again! LOL! Is that kind of like this? Your BRAIN tells you what the right thing is to do but then, your MIND has a totally emotional idea of what's going on and it don't matter what the brain says!

BTW, I like your choice of the BENGAY sensation....I'm going to use that on my patients from now on.....Is it different if it were ICY HOT??? HAHA! Or maybe ASPERCREAM???

It's unfortunate that your PMD didn't explain to you how unlikely MS would be from the way the symptoms are presenting. For example, it is not common at all for MS to present as burning sensations in multiple different locations compared to a single limb or a single side of the body being involved as opposed to things that come and go so fleetingly. With MS symptoms generally come on and then, STAY FOR AWHILE....could be days, weeks, months......then, it may dissipate and then, come on in a different part of the body, stay for awhile then, disappear.....it's not like a rapid fire type of process where there are like...I dunno....Xmas lights twinkling on your body representing all the burning spots coming and going....make sense?

I don't have any magic way to turn around what your PMD told you except to once again let you know that the way you are describing the onset and progression of your symptoms taken in conjunction with the fact that your MRI of the brain is already NEGATIVE for MS puts you in the lowest possible risk category for having anything demyelinating in the cervical cord because there is simply no way to produce what's going on by lesioning that structure without getting all sorts of other more important and obvious symptoms which would've likely presented a long time ago...and they didn't. Yes?

But that's OK...and BTW, you don't sound CRAZY at all....like I said, I do lots of consults for lots of very UNCRAZY people who are very on top of things....but this problem we refer to as HEALTHY ANXIETY is just one of those things that the brain really really seems to resist normal LOGIC on....and it's a process that only the patient seems to be able to go through.....so, just let me know how I can best help you understand things.....but let's agree on one rule that you give me the right to enforce, yes?

Let's agree that once I've answered and fully explained a particular concept or question about anything having to do with something like the MS which I really don't believe we have any real evidence for....that we will not revisit the same concept or topic. Yes? That way, I think we can effectively try to keep stepping forward and through to what could be the path that leads "out of the forest..." Make sense? Otherwise, if we allow discussions to keep spinning back to things we've talked about then, you agree that we'll never get off any topic which is totally counterproductive.....How about it Miss XXXXXXX Dear? Deal?? ;)

So, what I would like you to work very hard to do...either with your PMD or through some other doctor you feel you can trust is to get your Vitamin D levels up....tell me how you plan to do that....have you talked to your doctor yet or do you need ideas....I don't recall if I provided that information to you yet or not....I have a specific protocol that I follow with my patients to rather quickly take Vitamin D levels up to the right range of values and then, work to sustain them......I can give you that information which then, you can pass on to your PMD so she can write the prescription...because these gelcaps are prescription only.

Even though I'm going out on a limb on this a bit....I feel that you're going to do very well with this problem if we can get your mind a bit diverted and looking away from things that have no place in the discussion such as the MS and other things like that.....

You can work out with your PMD or whomever details on getting the C-spine MRI which actually could help out rule other problems so we know that EVERYTHING is clear....sound good? When you get the results please send me a PDF attached copy.

And as always, if you're going to turn the lights out here in the room (HA!)...please don't forget to RATE YOUR FRIENDLY NEUROLOGIST! And know that he would be SOOOO appreciative of a high 5 Star Hotel Rating that you can't imagine....

By the same token.....I don't want you to just close the query and NEVER come back! I'd like you to send me a message in the near future once you've got things rolling or working such as the Vitamin D replacement, etc. You know how to get a hold of me, yes?

www.bit.ly/drdariushsaghafi

Ok then, let's see...what else....HAPPY REST OF YOUR EASTER SUNDAY and take some

S-L-O-W D-E-E-P B-R-E-A-T-H-S

Try it with me....and "NO"....I am not kidding on this one---slow, deep, breathing exercises....don't hyperventilate but can you do 5 to start with and insist on doing that type of exercise for 5 min at each episode and opportunity you have to breathe properly.

Cheers Milady!

This query required 258 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
I understand your difficulty and how you feel

Detailed Answer:
Totally feel 'ya on this one because you are GOOD COMPANY my dear when it comes to people who get overly nervous/anxious over health issues once they're brought up....it doesn't make sense sometimes and people even understand all the "LOGIC" about this or that....but still, their brains don't let them turn off the noise....you know what I mean I mean? I think it's kind of like....someone tells you, "DON'T SCRATCH YOUR SKIN...NO MATTER WHAT....DON'T DO IT CUZ YOU WILL GET WORSE." Well, most of us would do our very best to obey the order and we KNOW what could happen if we don't listen to the recommendation by the expert....BUT....sometimes that dang itch gets so blasted strong...that we just say, "Ferget it....I'll worry about the consequences later....I just HAVE to scratch my sking...." HAHAHA!

I don't know if that's a good example or not....but I've had those kinds of itches before for sure....and I know I haven't been perfect at resisting the temptation to scratch....and then, saying to myself later that I shouldn't've done that...and then the next time? Just scratch the dang thing again! LOL! Is that kind of like this? Your BRAIN tells you what the right thing is to do but then, your MIND has a totally emotional idea of what's going on and it don't matter what the brain says!

BTW, I like your choice of the BENGAY sensation....I'm going to use that on my patients from now on.....Is it different if it were ICY HOT??? HAHA! Or maybe ASPERCREAM???

It's unfortunate that your PMD didn't explain to you how unlikely MS would be from the way the symptoms are presenting. For example, it is not common at all for MS to present as burning sensations in multiple different locations compared to a single limb or a single side of the body being involved as opposed to things that come and go so fleetingly. With MS symptoms generally come on and then, STAY FOR AWHILE....could be days, weeks, months......then, it may dissipate and then, come on in a different part of the body, stay for awhile then, disappear.....it's not like a rapid fire type of process where there are like...I dunno....Xmas lights twinkling on your body representing all the burning spots coming and going....make sense?

I don't have any magic way to turn around what your PMD told you except to once again let you know that the way you are describing the onset and progression of your symptoms taken in conjunction with the fact that your MRI of the brain is already NEGATIVE for MS puts you in the lowest possible risk category for having anything demyelinating in the cervical cord because there is simply no way to produce what's going on by lesioning that structure without getting all sorts of other more important and obvious symptoms which would've likely presented a long time ago...and they didn't. Yes?

But that's OK...and BTW, you don't sound CRAZY at all....like I said, I do lots of consults for lots of very UNCRAZY people who are very on top of things....but this problem we refer to as HEALTHY ANXIETY is just one of those things that the brain really really seems to resist normal LOGIC on....and it's a process that only the patient seems to be able to go through.....so, just let me know how I can best help you understand things.....but let's agree on one rule that you give me the right to enforce, yes?

Let's agree that once I've answered and fully explained a particular concept or question about anything having to do with something like the MS which I really don't believe we have any real evidence for....that we will not revisit the same concept or topic. Yes? That way, I think we can effectively try to keep stepping forward and through to what could be the path that leads "out of the forest..." Make sense? Otherwise, if we allow discussions to keep spinning back to things we've talked about then, you agree that we'll never get off any topic which is totally counterproductive.....How about it Miss XXXXXXX Dear? Deal?? ;)

So, what I would like you to work very hard to do...either with your PMD or through some other doctor you feel you can trust is to get your Vitamin D levels up....tell me how you plan to do that....have you talked to your doctor yet or do you need ideas....I don't recall if I provided that information to you yet or not....I have a specific protocol that I follow with my patients to rather quickly take Vitamin D levels up to the right range of values and then, work to sustain them......I can give you that information which then, you can pass on to your PMD so she can write the prescription...because these gelcaps are prescription only.

Even though I'm going out on a limb on this a bit....I feel that you're going to do very well with this problem if we can get your mind a bit diverted and looking away from things that have no place in the discussion such as the MS and other things like that.....

You can work out with your PMD or whomever details on getting the C-spine MRI which actually could help out rule other problems so we know that EVERYTHING is clear....sound good? When you get the results please send me a PDF attached copy.

And as always, if you're going to turn the lights out here in the room (HA!)...please don't forget to RATE YOUR FRIENDLY NEUROLOGIST! And know that he would be SOOOO appreciative of a high 5 Star Hotel Rating that you can't imagine....

By the same token.....I don't want you to just close the query and NEVER come back! I'd like you to send me a message in the near future once you've got things rolling or working such as the Vitamin D replacement, etc. You know how to get a hold of me, yes?

www.bit.ly/drdariushsaghafi

Ok then, let's see...what else....HAPPY REST OF YOUR EASTER SUNDAY and take some

S-L-O-W D-E-E-P B-R-E-A-T-H-S

Try it with me....and "NO"....I am not kidding on this one---slow, deep, breathing exercises....don't hyperventilate but can you do 5 to start with and insist on doing that type of exercise for 5 min at each episode and opportunity you have to breathe properly.

Cheers Milady!

This query required 258 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (32 hours later)
Good morning

Have an appt today with a neurologist just for my piece of mind will keep you posted trying to stay positive and not think the worst
default
Follow up: Dr. Dariush Saghafi (0 minute later)
Good morning

Have an appt today with a neurologist just for my piece of mind will keep you posted trying to stay positive and not think the worst
default
Follow up: Dr. Dariush Saghafi (46 minutes later)
I attached another thyroid scan done 5 years ago that dr never did anything about
default
Follow up: Dr. Dariush Saghafi (0 minute later)
I attached another thyroid scan done 5 years ago that dr never did anything about
doctor
Answered by Dr. Dariush Saghafi (18 minutes later)
Brief Answer:
I concur with being POSITIVE my dear

Detailed Answer:
Atta girl! You get to that neurologist's appointment....they see people quick out there in NJ, huh? HAHA! I hear so many other places make you wait 2 or 3 months. Heard once in S. XXXXXXX a patient telling me that they had to wait 7 months for a neurologist...Wow!

I think you're fine neurologically speaking....and if your thyroid really does turn out to be the more suspicious as the culprit than anything else (even though your primary hormones are within normal limits) maybe a 2nd opinion from another endocrinologist (given the scan results I read from 2014) would be a reasonable move? Maybe another thyroid U/S would be something to consider from the same place that did the 1st one?

I wish I were more local to you....but I'm sure I would agree with whatever your local doc says as well. Let me know what happens and I think you'll be fine....

You know the drill....

B-R-E-A-T-H-E

Have a good visit and lemme know what happens please...

Safe drive to the office Milady- I've driven in NJ and they are NUTSSSS! HAHA!

This query required 268 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
I concur with being POSITIVE my dear

Detailed Answer:
Atta girl! You get to that neurologist's appointment....they see people quick out there in NJ, huh? HAHA! I hear so many other places make you wait 2 or 3 months. Heard once in S. XXXXXXX a patient telling me that they had to wait 7 months for a neurologist...Wow!

I think you're fine neurologically speaking....and if your thyroid really does turn out to be the more suspicious as the culprit than anything else (even though your primary hormones are within normal limits) maybe a 2nd opinion from another endocrinologist (given the scan results I read from 2014) would be a reasonable move? Maybe another thyroid U/S would be something to consider from the same place that did the 1st one?

I wish I were more local to you....but I'm sure I would agree with whatever your local doc says as well. Let me know what happens and I think you'll be fine....

You know the drill....

B-R-E-A-T-H-E

Have a good visit and lemme know what happens please...

Safe drive to the office Milady- I've driven in NJ and they are NUTSSSS! HAHA!

This query required 268 minutes of professional time to research, assimilate, and file a response.


Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (7 hours later)
Good Afternoon

Saw neurologist doesn’t think it’s MS but I’m still trying to figure out the bengay sensation it’s comes and goes not sure what it can be says my backaches can be chronic as it comes and goes with the pain in legs showed my my brain picture he pulled them doesn’t see anything or even signs of MS on examination says maybe down the line another MRI of low back if back worsens
default
Follow up: Dr. Dariush Saghafi (0 minute later)
Good Afternoon

Saw neurologist doesn’t think it’s MS but I’m still trying to figure out the bengay sensation it’s comes and goes not sure what it can be says my backaches can be chronic as it comes and goes with the pain in legs showed my my brain picture he pulled them doesn’t see anything or even signs of MS on examination says maybe down the line another MRI of low back if back worsens
doctor
Answered by Dr. Dariush Saghafi (2 hours later)
Brief Answer:
Great News Kiddo!

Detailed Answer:
So, go ahead and say it,,,,, LOLOLOL.....I'm waiting.....

Say, "YOU told me so...." don't be shy....I can wait to hear it! HAHA!

So, the Bengay sensation? I'm not sure where that's coming from either....BUT....don't forget about the Vitamin D....I really think you NEED to correct that up to the levels I told you about....and see what happens. If nothing happens, then, so be it....but I think you should try it.....I've definitely had patients with levels like you have who have these kind of bizarre pain sensations that are otherwise inexplicable and we've normalized Vitamin D and things either improved or symptoms disappeared.

Did he have an opinion on the Vitamin D numbers and how they could affecting you?

I don't think it's coming from your thyroid antibodies because the TSH and FT4 are both normal. And this wouldn't be the most expected sign of thyroid disease even if those numbers weren't normal.

Make sense?

I don't believe another MRI of the back is necessary if you've already had one. You are young...got a negative scan....it'll stay negative. Get started on a back exercise regimen. That will strengthen your core, get you in aerobic shape....that could make a huge difference to your back pain...not to mention how you feel overall. It may not do anything for the Bengay sensation....anyways.

Those are my 2 cents....or 25 cents...whatever.....I'm very happy to hear that the OTHER neurologist thought you were basically good and didn't have anything bad.

If the back pain gets worse, before you get another MRI, you gotta agree to come to XXXXXXX for THIS Neurologist to examine you! How about that for a plan? HAHA!

Once again, kiddo' thanks for the update and I don't know if you had anything else you were going to ask but if not would you do me the favor of CLOSING THE QUERY and writing a few words of positive critique with maybe a 5-Star rating if you think it's deserving? I'm getting on the road for XXXXXXX now to catch a plane to XXXXXXX Italy in the morning so in case I can't respond right away, you'll know why. My daughter is competing in an INTERNATIONAL CROSSFIT INVITATIONAL COMPETITION.

--- If you need a protocol let me know....it's not just take whatever you find at the store and "good luck"....there's a little more sophistication than just that if we wanna do it right.... :0

This query required 288 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Great News Kiddo!

Detailed Answer:
So, go ahead and say it,,,,, LOLOLOL.....I'm waiting.....

Say, "YOU told me so...." don't be shy....I can wait to hear it! HAHA!

So, the Bengay sensation? I'm not sure where that's coming from either....BUT....don't forget about the Vitamin D....I really think you NEED to correct that up to the levels I told you about....and see what happens. If nothing happens, then, so be it....but I think you should try it.....I've definitely had patients with levels like you have who have these kind of bizarre pain sensations that are otherwise inexplicable and we've normalized Vitamin D and things either improved or symptoms disappeared.

Did he have an opinion on the Vitamin D numbers and how they could affecting you?

I don't think it's coming from your thyroid antibodies because the TSH and FT4 are both normal. And this wouldn't be the most expected sign of thyroid disease even if those numbers weren't normal.

Make sense?

I don't believe another MRI of the back is necessary if you've already had one. You are young...got a negative scan....it'll stay negative. Get started on a back exercise regimen. That will strengthen your core, get you in aerobic shape....that could make a huge difference to your back pain...not to mention how you feel overall. It may not do anything for the Bengay sensation....anyways.

Those are my 2 cents....or 25 cents...whatever.....I'm very happy to hear that the OTHER neurologist thought you were basically good and didn't have anything bad.

If the back pain gets worse, before you get another MRI, you gotta agree to come to XXXXXXX for THIS Neurologist to examine you! How about that for a plan? HAHA!

Once again, kiddo' thanks for the update and I don't know if you had anything else you were going to ask but if not would you do me the favor of CLOSING THE QUERY and writing a few words of positive critique with maybe a 5-Star rating if you think it's deserving? I'm getting on the road for XXXXXXX now to catch a plane to XXXXXXX Italy in the morning so in case I can't respond right away, you'll know why. My daughter is competing in an INTERNATIONAL CROSSFIT INVITATIONAL COMPETITION.

--- If you need a protocol let me know....it's not just take whatever you find at the store and "good luck"....there's a little more sophistication than just that if we wanna do it right.... :0

This query required 288 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (3 days later)
Hello for 2 days I have been having a muscle twitching in the same spot which is by my right knee what can be causing it
default
Follow up: Dr. Dariush Saghafi (0 minute later)
Hello for 2 days I have been having a muscle twitching in the same spot which is by my right knee what can be causing it
doctor
Answered by Dr. Dariush Saghafi (1 hour later)
Brief Answer:
Vitamin D is an IMPORTANT HORMONE in the body

Detailed Answer:
Good morning young lady....

I've read that you're noticing a twitching spot by your right knee for the past 2 days. Since you've been cleared for the question of MS (as well as other important NEUROLOGICAL and ENDOCRINOLOGICAL disorders) then, we must go back to the information at hand and remember that your Vitamin D levels are VERY VERY LOW and need replenishment. Have you started this process?

Your levels as I recall from your lab work were at approximately 16 which is about HALF of what is considered the low end of the SUFFICIENT range so that the body functions and so that you do not develop problems with Vitamin D deficiency. However, if you look at your numbers from the perspective of what many neurologists consider "normal" when it comes to PEAK PERFORMANCE for neurological systems then, your numbers are even lower than that.....I think I did mention that you need to target levels between 60-80 ng/ml and that at those levels best performance is expected.

People do not generally appreciate (and when I say PEOPLE, I must include physician colleauges) the actual need and potency of robust Vitamin D levels. Vitamin D probably should've been called something else so that it would be more easily recognized as IMPORTANT....VERY IMPORTANT to happy body functioning. It is a HORMONE that affects over 4000 biochemical processes in the body. It is necessary in a number of metabolic pathways and in the nervous system has been tied to problems having to do with NEUROPATHY, DEMENITA, MUSCULOSKELETAL HEALTH, OSTEOPOROSIS, and many other things that there's not enough room nor time to tell you about it all.

I have seen patients very deficient in Vitamin D levels make tremendous turnaround when complaining of similar symptoms and complaints to what you've been mentioning, burning feelings, twitchings, muscle aches or cramps, memory problems, feeling foggy in the head, tingling in the hands and feet. Now, that doesn't mean that I personally can guarantee any results for YOU as an individual that your symptoms will improve or disappear just because you put your vitamin D levels in order......BUT my dear......if I or any one else were to make some other example up...let's say, someone were to come to you and telll you, "Ms Perez, your labs came back and your adrenocortical hormones are terribly low and we believe that we will need to start immediately replacement therapy in order to treat your symptoms...." what would you do? My guess is that you would be immediately interested...in getting that squared away, yes?

So, then, why not look at the Vitamin D levels the same way? Those are the most objective numbers of something that really needs to be corrected and yet I've not heard anyone talking getting you on a protocol for replacing this ESSENTIAL BIOCHEMICAL entity to then, see the results? Vitamin D takes time to climb in levels that are high enough to really start kickstarting your cellular machinery so the sooner you start on a regimen the sooner you'll be feeling better. But again, it can take at least several weeks of aggressive therapy to level things out.

The twitching in your knee may not be as a result of this deficiency....but on the other hand, it very well may be, along with the burning sensation in your nose. Why not give that a serious look instead of unnecessarily worrying yourself about things which are not present? Make sense?

Once again, if your doctors have not mentioned anything about a specific protocol for getting your levels up to where they need to be....let me know and I'd be happy to give one to you but since every doctor is a little different in how they like going about doing this replacement therapy I'd rather allow you the chance to check with your neurologist or your primary doctor to see what they recommend. I can tell you that a good replacement program always starts with HIGH DOSE oral tablets or gelcaps given at least weekly for a minimum of 4-8 weeks followed by a high dose maintenance therapy. Blood levels should be rechecked in about 8 weeks and then, dosages tweaked depending on the numbers. Sometimes a person can be so low that another 4-8 cycle of high dose therapy is indicated before the things really start to level out....and of course, now with the spring in full bloom and summer coming...this would be a GREAT TIME to get out in the sun and let your body ALSO PARTICIPATE in making that Vitamin D....it ain't called the SUNSHINE VITAMIN for nuthin' ya know.... LOL....

Hoping that you can feel relaxed and less bothered by the twitching knee which is not due to anything neurologically aberrant at this point as confirmed by tests and examination of the neurologist. I think you might be pleasantly surprised at how well you may feel overall by getting this Vitamin D taken care of as soon as possible.

And just so you really get the message as to how IMPORTANT I believe Vitamin D can be to YOU in particular and how it just may help you with many of the symptoms you're worried about I would like you to read the following 3 articles I've chosen for you that emphasize many of the points I've already made. Each article makes several slightly different points but they are all in agreement that YOUR Vitamin D levels are extremely low and need to be replaced for you to start feeling better. Give it a shot:

https://www.brainmdhealth.com/blog/9-vital-functions-vitamin-d/

https://www.medicalnewstoday.com/articles/161618.php

https://www.mdmag.com/journals/internal-medicine-world-report/2007/2007-08/2007-08_47

Once again, if you'd do me the favor of CLOSING THE QUERY and writing a few words of positive critique with a 5-Star rating I'd be most grateful and appreciative. It's 62 degrees in ITALY right now and I'm going to head out to actually catch some of that VITAMIN D myself that I'm talking about....you should too if you can.

This query required 337 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Vitamin D is an IMPORTANT HORMONE in the body

Detailed Answer:
Good morning young lady....

I've read that you're noticing a twitching spot by your right knee for the past 2 days. Since you've been cleared for the question of MS (as well as other important NEUROLOGICAL and ENDOCRINOLOGICAL disorders) then, we must go back to the information at hand and remember that your Vitamin D levels are VERY VERY LOW and need replenishment. Have you started this process?

Your levels as I recall from your lab work were at approximately 16 which is about HALF of what is considered the low end of the SUFFICIENT range so that the body functions and so that you do not develop problems with Vitamin D deficiency. However, if you look at your numbers from the perspective of what many neurologists consider "normal" when it comes to PEAK PERFORMANCE for neurological systems then, your numbers are even lower than that.....I think I did mention that you need to target levels between 60-80 ng/ml and that at those levels best performance is expected.

People do not generally appreciate (and when I say PEOPLE, I must include physician colleauges) the actual need and potency of robust Vitamin D levels. Vitamin D probably should've been called something else so that it would be more easily recognized as IMPORTANT....VERY IMPORTANT to happy body functioning. It is a HORMONE that affects over 4000 biochemical processes in the body. It is necessary in a number of metabolic pathways and in the nervous system has been tied to problems having to do with NEUROPATHY, DEMENITA, MUSCULOSKELETAL HEALTH, OSTEOPOROSIS, and many other things that there's not enough room nor time to tell you about it all.

I have seen patients very deficient in Vitamin D levels make tremendous turnaround when complaining of similar symptoms and complaints to what you've been mentioning, burning feelings, twitchings, muscle aches or cramps, memory problems, feeling foggy in the head, tingling in the hands and feet. Now, that doesn't mean that I personally can guarantee any results for YOU as an individual that your symptoms will improve or disappear just because you put your vitamin D levels in order......BUT my dear......if I or any one else were to make some other example up...let's say, someone were to come to you and telll you, "Ms Perez, your labs came back and your adrenocortical hormones are terribly low and we believe that we will need to start immediately replacement therapy in order to treat your symptoms...." what would you do? My guess is that you would be immediately interested...in getting that squared away, yes?

So, then, why not look at the Vitamin D levels the same way? Those are the most objective numbers of something that really needs to be corrected and yet I've not heard anyone talking getting you on a protocol for replacing this ESSENTIAL BIOCHEMICAL entity to then, see the results? Vitamin D takes time to climb in levels that are high enough to really start kickstarting your cellular machinery so the sooner you start on a regimen the sooner you'll be feeling better. But again, it can take at least several weeks of aggressive therapy to level things out.

The twitching in your knee may not be as a result of this deficiency....but on the other hand, it very well may be, along with the burning sensation in your nose. Why not give that a serious look instead of unnecessarily worrying yourself about things which are not present? Make sense?

Once again, if your doctors have not mentioned anything about a specific protocol for getting your levels up to where they need to be....let me know and I'd be happy to give one to you but since every doctor is a little different in how they like going about doing this replacement therapy I'd rather allow you the chance to check with your neurologist or your primary doctor to see what they recommend. I can tell you that a good replacement program always starts with HIGH DOSE oral tablets or gelcaps given at least weekly for a minimum of 4-8 weeks followed by a high dose maintenance therapy. Blood levels should be rechecked in about 8 weeks and then, dosages tweaked depending on the numbers. Sometimes a person can be so low that another 4-8 cycle of high dose therapy is indicated before the things really start to level out....and of course, now with the spring in full bloom and summer coming...this would be a GREAT TIME to get out in the sun and let your body ALSO PARTICIPATE in making that Vitamin D....it ain't called the SUNSHINE VITAMIN for nuthin' ya know.... LOL....

Hoping that you can feel relaxed and less bothered by the twitching knee which is not due to anything neurologically aberrant at this point as confirmed by tests and examination of the neurologist. I think you might be pleasantly surprised at how well you may feel overall by getting this Vitamin D taken care of as soon as possible.

And just so you really get the message as to how IMPORTANT I believe Vitamin D can be to YOU in particular and how it just may help you with many of the symptoms you're worried about I would like you to read the following 3 articles I've chosen for you that emphasize many of the points I've already made. Each article makes several slightly different points but they are all in agreement that YOUR Vitamin D levels are extremely low and need to be replaced for you to start feeling better. Give it a shot:

https://www.brainmdhealth.com/blog/9-vital-functions-vitamin-d/

https://www.medicalnewstoday.com/articles/161618.php

https://www.mdmag.com/journals/internal-medicine-world-report/2007/2007-08/2007-08_47

Once again, if you'd do me the favor of CLOSING THE QUERY and writing a few words of positive critique with a 5-Star rating I'd be most grateful and appreciative. It's 62 degrees in ITALY right now and I'm going to head out to actually catch some of that VITAMIN D myself that I'm talking about....you should too if you can.

This query required 337 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
default
Follow up: Dr. Dariush Saghafi (3 hours later)
Hello I have been addressing it as no Dr has given me any medication I’m taking Vitamin D on own I read that twitching can be caused by stress als and ms which I know they say I don’t have what if it’s the start of it sorry to asked these questions like I told you before I’m a single mom with a little boy and I need to be healthy
default
Follow up: Dr. Dariush Saghafi (0 minute later)
Hello I have been addressing it as no Dr has given me any medication I’m taking Vitamin D on own I read that twitching can be caused by stress als and ms which I know they say I don’t have what if it’s the start of it sorry to asked these questions like I told you before I’m a single mom with a little boy and I need to be healthy
doctor
Answered by Dr. Dariush Saghafi (25 minutes later)
Brief Answer:
And I believe you are very healthy in terms of any of what you mentioned

Detailed Answer:
Good afternoon again and I'm very sorry to hear that no one has put any importance on your vitamin D deficiency because it is something that NEEDS to be corrected. You are rather DEFICIENT in that hormone. As I said before, unfortunately, the medical community as a whole is not yet fully aware of the value of making Vitamin D an important factor in the overall treatment of illness.

Obviously, SOMEONE thought it was important enough to measure, however, why that same doctor isn't finding it important to treat is unknown to me. I know you're doing your best so I don't know want you to worry about the fact that you're a single mom....You'll feel much better overall once your Vitamin D levels get replenished.

However, doing it on your own is going to be rather difficult. Here in the State of Ohio (and I suspect NJ as well) using the high doses of D needed to treat deficiencies is by prescription only. The protocol I would recommend in your case would be 50,000 IU weekly for 8 weeks followed by 2000IU daily thereafter and a blood test. If you simply take the capsules that are over the counter which are mostly in the forms of 400's, 800's, 1000's, or 2000's WITHOUT doing the proper loading using the MEGADOSE gelcaps.....you will never which the optimal limits.

You must perform what's referred to as a LOADING DOSE. And so, we start with the 50,000IU regimen to start once weekly, get a blood level and then, follow that up with 2000 IU daily after that....if the blood work still shows <60 then, we would go through another loading dose regimen (perhaps 4 weeks only depending on the numbers) and then, recheck again in 4 weeks. I would then, likely raise your daily intake to something on the order of 2500-3000 IU's.

Did you read the articles I sent you on the subject since I want you to feel comfortable with the IMPORTANCE as well as the validity of this information. Again, unfortunately, the medkcal community in general is still very behind where they should be when it comes to the value and importance of managing D levels in patients OF ALL TYPES, not just neurological but diabetic, lung disease, kidney diseases, eye diseases, and there are plenty more things that high dose vitamin D will help.

And so, that is the story on how I urge you to find a doctor who is willing to treat your Vitamin D deficiency properly given the levels you currently have. I wish there were a way to treat you directly long distance but I do not have prescriptive authority in the State of NJ.....you are welcome to come a bit down the shores of Lake XXXXXXX if you'd like...weather's nice, sounds like you could use a break of sorts.... :0

Now, twitching aside from the Vitamin D deficiency as a potential cause. You are correct when you state that twitching is associated with the things you mentioned....and the ONLY item out of the 3 you wrote (STRESS, ALS, MS) that I agree has any bearing on this discussion is the one having to do with STRESS. You've already been cleared for the MS. And I know for sure you don't have ALS because a neurologist isn't going miss that diagnosis....especially in a young lady as yourself where if you did have that problem....just on the basis of twitching of the muscles next to the right knee.....you'd be one of those, PUBLISHABLE CASES FOR SCIENCE POSTERITY.

Now, since your only goal is to be a successful single mother at this time....I don't see how you'd have the inclination or time to be one of those Ripley's Believe it Or Not cases to turn out with ALS based on what you've presented. Therefore, STRESS is the one other diagnosis of the 3 that makes sense.

And of course....I wouldn't even agree to put that in as my #1 reason for the twitching UNTIL the Vitamin D levels have been fully replenished by which time it would not XXXXXXX me at all if that twitching just flat out disappears.

As always my dear XXXXXXX Perez, No Hay Razon para preocuparse mas de esta cosa....and if you're not a Spanish speaker then, I'll bet you can just guess what I am wishing for you regarding your fears of things that are not to fear, right?

Please consider CLOSING THIS QUERY with a few words of positive impact and a 5 STAR rating and I am more than ready to try and help you with your Vitamin D replenishment plan if you really can't find a HOLISTIC DOCTOR (MD/DO) who understands the nature of this problem. I'm sure you can look them up in your area. I used to know one in the NYC area but she moved to Florida...so as it turns out XXXXXXX is a lot closer for you! LOL....but seriously, just look Holistic Medicine practitioners and feel free to print out everything I'd written about the Vitamin D problem for you including the recommendations for doing the medication, loading, testing, and tweaking serum levels.

Be well my dear.

This query required 365 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
And I believe you are very healthy in terms of any of what you mentioned

Detailed Answer:
Good afternoon again and I'm very sorry to hear that no one has put any importance on your vitamin D deficiency because it is something that NEEDS to be corrected. You are rather DEFICIENT in that hormone. As I said before, unfortunately, the medical community as a whole is not yet fully aware of the value of making Vitamin D an important factor in the overall treatment of illness.

Obviously, SOMEONE thought it was important enough to measure, however, why that same doctor isn't finding it important to treat is unknown to me. I know you're doing your best so I don't know want you to worry about the fact that you're a single mom....You'll feel much better overall once your Vitamin D levels get replenished.

However, doing it on your own is going to be rather difficult. Here in the State of Ohio (and I suspect NJ as well) using the high doses of D needed to treat deficiencies is by prescription only. The protocol I would recommend in your case would be 50,000 IU weekly for 8 weeks followed by 2000IU daily thereafter and a blood test. If you simply take the capsules that are over the counter which are mostly in the forms of 400's, 800's, 1000's, or 2000's WITHOUT doing the proper loading using the MEGADOSE gelcaps.....you will never which the optimal limits.

You must perform what's referred to as a LOADING DOSE. And so, we start with the 50,000IU regimen to start once weekly, get a blood level and then, follow that up with 2000 IU daily after that....if the blood work still shows <60 then, we would go through another loading dose regimen (perhaps 4 weeks only depending on the numbers) and then, recheck again in 4 weeks. I would then, likely raise your daily intake to something on the order of 2500-3000 IU's.

Did you read the articles I sent you on the subject since I want you to feel comfortable with the IMPORTANCE as well as the validity of this information. Again, unfortunately, the medkcal community in general is still very behind where they should be when it comes to the value and importance of managing D levels in patients OF ALL TYPES, not just neurological but diabetic, lung disease, kidney diseases, eye diseases, and there are plenty more things that high dose vitamin D will help.

And so, that is the story on how I urge you to find a doctor who is willing to treat your Vitamin D deficiency properly given the levels you currently have. I wish there were a way to treat you directly long distance but I do not have prescriptive authority in the State of NJ.....you are welcome to come a bit down the shores of Lake XXXXXXX if you'd like...weather's nice, sounds like you could use a break of sorts.... :0

Now, twitching aside from the Vitamin D deficiency as a potential cause. You are correct when you state that twitching is associated with the things you mentioned....and the ONLY item out of the 3 you wrote (STRESS, ALS, MS) that I agree has any bearing on this discussion is the one having to do with STRESS. You've already been cleared for the MS. And I know for sure you don't have ALS because a neurologist isn't going miss that diagnosis....especially in a young lady as yourself where if you did have that problem....just on the basis of twitching of the muscles next to the right knee.....you'd be one of those, PUBLISHABLE CASES FOR SCIENCE POSTERITY.

Now, since your only goal is to be a successful single mother at this time....I don't see how you'd have the inclination or time to be one of those Ripley's Believe it Or Not cases to turn out with ALS based on what you've presented. Therefore, STRESS is the one other diagnosis of the 3 that makes sense.

And of course....I wouldn't even agree to put that in as my #1 reason for the twitching UNTIL the Vitamin D levels have been fully replenished by which time it would not XXXXXXX me at all if that twitching just flat out disappears.

As always my dear XXXXXXX Perez, No Hay Razon para preocuparse mas de esta cosa....and if you're not a Spanish speaker then, I'll bet you can just guess what I am wishing for you regarding your fears of things that are not to fear, right?

Please consider CLOSING THIS QUERY with a few words of positive impact and a 5 STAR rating and I am more than ready to try and help you with your Vitamin D replenishment plan if you really can't find a HOLISTIC DOCTOR (MD/DO) who understands the nature of this problem. I'm sure you can look them up in your area. I used to know one in the NYC area but she moved to Florida...so as it turns out XXXXXXX is a lot closer for you! LOL....but seriously, just look Holistic Medicine practitioners and feel free to print out everything I'd written about the Vitamin D problem for you including the recommendations for doing the medication, loading, testing, and tweaking serum levels.

Be well my dear.

This query required 365 minutes of professional time to research, assimilate, and file a response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Dr. Dariush Saghafi

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Been Feeling A Hot Sensation All Over Body And Inside

Been feeling a hot sensation all over body and inside of nose been having a lot of back pain and both legs hurt had a brain mri dr thinks it’s MS came back negative I’m having issues with my thyroid antibodies are very high other dr says it can be the cause of the burning feeling or anxiety need help trying to figure this out can it be MS also had a X-ray done says lose of disc height L5-S1