Brief Answer:
PREMENSTRUAL
PERIODIC PARALYSIS MAYBE THE REASON.
Detailed Answer:
Hello XXXXXXX
Thanks for writing to us with your health concern.
You are very right, what you describe is quite rare, and I dont blame the doctors for being flummoxed.
Even I have come across only one or two such cases in literature and textbooks.
I would attach the link here - you should provide them to your treating team, so that they can investigate you along those lines, and maybe tentatively try out the treatment, which is fairly simple.
Here is the link -
WWW.WWWW.WW
What you are suffering from is a form of periodic paralysis ( premenstrual or menstrual periodic paralysis ).
As the neurological workup is normal, that further supports this diagnosis.
In addition to the neurological workup , the following blood tests are in order ( to rule out other common causes of episodic periodic paralysis ) -
1. Blood urea, glucose, CO2. , calcium, magnesium, phosphorous, sodium, potassium, creatinine, protein.
2.
Glucose tolerance test.
3. Thyroid function test
4. Muscle enzymes level - CPK, lactic acid, LDH, SGOT after exercise
5. Urine for
myoglobinuria , porphyrinuria, VMA.
6. FSH, LH, adrenal hormones
The treatment could be tried with
Acetazolamide ( Diamox ) tablets started a week before onset of menstrual cycle, as has been reported in this case.
Am not saying this is EXACTLY what is the problem, but it very closely fits with your description of your symptoms, and I am pretty sure it is not ' in your head '.
There would be no harm in printing it out and discussing with your healthcare providers, particularly as they are already checkmated.
Regarding the painful bowel movements and the clotting / bleeding after the period - I suspect a condition called
endometriosis.
Could you tell me why you underwent laparoscopy when you were 28, by the way ?
Endometriosis is presence of ectopic endometrial tissue ( normal tissue that lines the inside of the
uterine cavity proliferates elsewhere - on the ovaries, tubes, bowel surfaces, bladder surfaces etc. ) leading to symptoms.
Symptoms typically include extreme pain and cramping during
menstruation, painful intercourse, mid cycle bleeding or spotting, painful bowel movements particularly during periods, as the tissue gets engorged .
This can be diagnosed by clinical examination, ultrasound or laparoscopy.
Please upload the report of the pelvic MRI, not the images , as that might pick up the condition.
Endometriosis can be treated medically ( cyclical hormones every month ) or surgically, if medication fails.
The simplest start would be to take birth control pills each cycle for 3 months, that could show a drastic improvement in symptoms.
Please do discuss this suggestion with your gynecologist.
Regarding the paralysis in the lower limbs, am pretty sure that you need to work on the link sent, and try out the treatment, when all else has failed.
Wishing you all the very best.
Hope this answer helped you, or atleast provided a ray of hope.
Please feel free to contact me anytime directly, using the link below -
WWW.WWWW.WW
Take care.