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Suggest Treatment For Auto-immune Disease

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Posted on Tue, 23 Dec 2014
Question: I have had symptoms of an Auto-Immune Disorder since 1987. I believe it was triggered by a car accident, emotional trauma due to high school issue & I came down with CMV & Epstein-Barr in XXXXXXX 1987. I had to drop out of college for a semester & get well. It was later that summer, August 1987, when one day I woke up & was FATIGUED all day. It was the first day (now looking back) that my horrendous Auto-immune problems started. My college years were plagued with bad headaches which turned into migraines til now - I'm 47 yrs old. I coped & managed CHRONIC INFECTIONS FREQUENTLY: i.e., sinus, bronchitis, female vaginitis (I haven't been in a body of water in 20 years), bladder infections (had surgery in Feb. 1990. I coped & managed for 25 years of a CAREER - NOT A JOB! I had to leave my extraordinary career that I LOVED because my body has completely broken down. I have always had a Neurologist since learning of the migraines & the one who really tried to figure out WHAT THE ROOT OF ALL MY PROBLEMS WERE WAS IN XXXXXXX Hills, CA - he admitted me to Century City Doctors Hosp for an entire week & did as much as he could - 2 spinal taps, blood work, they thought I had menengitis, so they had me in Quarantine. My Maternal side of the family has shown 3 generations of Auto-Immune diseases: i.e., sjogrens, myasthenia gravis, rheumatoid arthristis, Lupus, Guillon XXXXXXX etc... There are many cousins & it's like one person in the family has an AUTO Disorder - however, the Dr's over the years have never been able to DX me!!! I was labeled CFS/Fibromyalgia in the 90's with chronic migraines til now, but when I hit my early 40's my body started going downhill fast. I've taken GALLONS of ANTI-BIOTIOTS my whole life b/c I am CHRONICALLY sick with any one of the earlier mentioned infections. I now live back in VA, with my elderly parents b/c I have no where else to live. When my career collapsed & I had to move home I was bedridden for 3 years. Without insurance - VA wouldn't transfer my BC/BS from California. Now I'm in full-blown menopause (hysterectomy 2012 - I was able to get XXXXXXX @ VCU/MCV & I told them to take EVERYTHING OUT!!!) That did help my chronic abdominal pain & PMDD menstrual cycles, but now b/c I'm so CHRONICALLY PAINFULLY FATIGUED from whatever is THE ROOT OF MY MEDICAL PROBLEM - which has to t/b auto-immune related, a DR. I found who is helping me with relief of symptoms, RX'ing: antibiotics, pain meds, muscle relaxers, IBS med & sumatriptin (which the generic for IMITREx's BARELY Work @ all - it's awful.) Now my Dr. has started RX'ing PREDNISONE for me b/c when I get sick or have a "bout" or "episode" where my body feels like I have the flu X 100!!! I mean every part of my body is in EXCRUTIATING PAIN FOR DAYS. So now, PREDNISONE is what is helping me get thru these episodes, but I know how horrible that steroid can be & I can just see the writing on the wall that that will be my only option for the rest of my life. I actually found this site b/c I was looking up NUMB TIP OF THE TONGUE & it sent me here to this site. I'm in hell. I have no way to get in-depth work-ups b/c my financial situation is in ruins after 24 years of trying EVERY IMMUNE BOOSTing or preventative herb, supplement that came on the market. Is there any hope for someone like me? I have more problems & symptoms, but I think what I've written gives you an idea of how my life has been - CHRONICALLY ILL & COPED UNTIL MY BODY COLLAPSED IN 2008. I don't know what to do & it looks like steroids are the only thing I can afford that help to get me better for a few weeks until I have another 'episode' or 'bout.' If any of you Doctors actually read all of this, I want to tell you THANK U VERY MUCH IN ADVANCE. My email address: YYYY@YYYY
doctor
Answered by Dr. T Chandrakant (8 hours later)
Brief Answer:
Try acupressure / acupuncture- Deflazacort

Detailed Answer:
Hi.

I can really understand the plight you must be going through.
You have consulted so many specialists, undergone all the investigations and now put on Prednisone.

This is called an idiopathic medical problem, meaning no exact cause can be found.
You already have a medical problem and the stress and anxiety must have added to the problem so much. Having no insurance must have added on as you have mentioned as 'steroids are the only thing ...........until you have another episode or bout'.

I would advise only a few things and please try to understand and try to follow if you can as they may make wonderful recovery in cases like you have.

-Try alternative therapy ( I know you have tried) like acupressure or acupuncture. This helps to equalize 'yin' and 'yang' of your body to have internal correction of the problems.

-Please discuss with your present Doctor about Deflazacort in place of Prednisone as it has least side effects and works wonders. In a case like yours, steroids are the mainstay of treatment and has to be accepted. Do not forget to take calcium with Vitamin D3 with steroids.
Numb tip of the tongue may be related to your present problem.

-I hope you are already taking multivitamins

-Do not feel hopeless, there are so many examples where people / patients have fought over far more bigger hurdles and proved their mantles, with your background you can understand me better. Please do not get offended to read few things on internet ( I mean to boost you up). http://voices.halabol.com/2012/04/20/top-10-celebrities-who-fought-cancer-made-comeback

Please come out of the condition of your mind to be more positive- as Auto-immune disorders have a direct bearing upon the mental state you are; the more positive you are , the more will be great outcome.

I will be very happy to assist you more, provided the coordination is bilateral and congenial. Who known on the earth- what is going to change your world to be positive and better than before.

Take care.
Wishing you a fruitful life and early recovery.

Dr T Chandrakant.


Note: For further information on diet changes to reduce allergy symptoms or to boost your immunity, Ask here.

Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Answered by
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Dr. T Chandrakant

General Surgeon

Practicing since :1984

Answered : 19779 Questions

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Suggest Treatment For Auto-immune Disease

Brief Answer: Try acupressure / acupuncture- Deflazacort Detailed Answer: Hi. I can really understand the plight you must be going through. You have consulted so many specialists, undergone all the investigations and now put on Prednisone. This is called an idiopathic medical problem, meaning no exact cause can be found. You already have a medical problem and the stress and anxiety must have added to the problem so much. Having no insurance must have added on as you have mentioned as 'steroids are the only thing ...........until you have another episode or bout'. I would advise only a few things and please try to understand and try to follow if you can as they may make wonderful recovery in cases like you have. -Try alternative therapy ( I know you have tried) like acupressure or acupuncture. This helps to equalize 'yin' and 'yang' of your body to have internal correction of the problems. -Please discuss with your present Doctor about Deflazacort in place of Prednisone as it has least side effects and works wonders. In a case like yours, steroids are the mainstay of treatment and has to be accepted. Do not forget to take calcium with Vitamin D3 with steroids. Numb tip of the tongue may be related to your present problem. -I hope you are already taking multivitamins -Do not feel hopeless, there are so many examples where people / patients have fought over far more bigger hurdles and proved their mantles, with your background you can understand me better. Please do not get offended to read few things on internet ( I mean to boost you up). http://voices.halabol.com/2012/04/20/top-10-celebrities-who-fought-cancer-made-comeback Please come out of the condition of your mind to be more positive- as Auto-immune disorders have a direct bearing upon the mental state you are; the more positive you are , the more will be great outcome. I will be very happy to assist you more, provided the coordination is bilateral and congenial. Who known on the earth- what is going to change your world to be positive and better than before. Take care. Wishing you a fruitful life and early recovery. Dr T Chandrakant.