My husband is 5-1/2 yrs post op prostacystectomy with as neobladder. He had severe infections post op and 3 occurrences of intestinal blockage but other than a few things, his ct scans have been ok. End of April he had hematuria with clots, this occurred 4-5 times - he also has increased BP for past 3 mos-high fatigue level, stab pains a few times in hips, ongoing back pain, and a fever over 100 on and off for 3 week. He couldn t be seen until Oct to which I said no - so Dr. Walker saw him after we waited 3 weeks, He was not the same person. Walker did a cystoscopy and UA -said all is fine. Never explains anything -like the 2 nodes in lung although no change: and Hilar nodes in prior ct scans. Matt had a CT scan 6 weeks ago - again we ve had to wait until tomorrow -another 5 weeks, The doctor can t even call? No report has been sent, His PCP isn t kept up to speed. I was an OR Tech and understand a lot and understand my husband may not want to know yet but I need to know all I can in order to stay strong to help him. This is all unfair in my mind. It seems there is more to be done to make sure its not recurrence which is SO highly common with invasive TCC - BCG was not an option and Matt has not had chemo. Something doesn t feel right, DO you agree with the doctor or should I ask for MRI or PETscan or IVP ?? Extensive labs? Matt has been prediabetic for 4 yrs. Has some placque buildup and has severe sleep apnea although in past month, his snoring nearly stopped. I don t know what to ask this cold surgeon - they have a way of making us feel like we are bothering them. Thank you so much. Carolyn Knott