I started having seizures about 15 yrs. ago. Then my hands started gnarling up like rheumatoid arthritis. I have pain hands and feet, they burn, which started out as discomfort, then graduated to literally feeling like I am on fire. I m on 1800 mg of neurotin. I also have very low blood pressure when i m not hurting. One time my back started hurting so badly I went to the er. I was told 1 was a lymphoma and were at a loss on the rest. My hands and feet rip up the sides of my fingers and also across the knuckles when my hands knot up. I ve seen specialists and have had every test in the world. All the doctors say they ve never seen anything like it. I ve had days of vomiting and have lost over 20 lbs. in a few weeks. One test did find reflux and i m on that now and it seems to help. I ve had hair loss, severe itching, yawning for hours at a time. I have a autistic son and everyone says it s stress. I told my doctor I know my body and this is not stress. The pain wakes me up and when my son is doing well I can be at my worst. I am on lortab that makes me sick, but if I can keep it down for 30 min. I know I can get a little relief. I have never taken pain meds before and my dr says the sick feeling would get better. I tried Lyrica and it seemed to give me my life back. Then I sarted jerking just like I did on anti-depressants and I couldn t sleep and was covered head to toe in hives. I started having kidney stones and the urologist told me my left kidney is enlarged and damaged and my right kidney shut down and they couldn t find out why. It s in the last 3 years the pain became unbearable. The pain meds take a little edge off, at first they really helped. I have the flu all the time and have fever most of the time. I ve been tested for lupus, leukemia and everything under the sun. the tests show i m healthy. my inflammatory markers are high and i m sometimes anemic. I also have lesions which my doctor said are docoid lessions. my son is very ill and the doctors keep telling me i m killing myself with stress. I don t believe I can twist my bones, have seizures, etc. w/stress. I also had a stroke last summer. i m scheduled to see a hematologist next month. in a way I wish it was stress but I used to be a healthy person. I have days when I,m incontinent, bowels and bladder. I can be just fine and my stomach will swell up and get hard and my stomach hurts in all 4 quadrents. now I ve been put on valium and my family thinks i m crazy. I started having blackouts and regressing to a small child. I fell down a flight of concrete stairs and hit a concrete floor and got up and skipped away. I was covered in knots and lacerations and didn t understand why, once again, I was in an ambulance on my way to the er. when I regress to a child I don t remember anything but my mouth hurts because I smile so much. have you ever heard of anything like this? the worst part is when I have a really bad time with all my symptons my family gets mad and tells me to pull myself together. I gave them access to all my medical info and they believe i m doing this to myself. when I take to the bed because I can t walk on my feet I feel really guilty my son is totally dependent on me. I know what it feels like when I get stressed out, my son is 32. like I said the last 3 years have been the worst and my son has to fend for himself. I would never do this to him. i m very intelligent and have a strong faith in God. But this is my body and it s not stress. I hope you can help me. Thank you, Lisa Waldrup