Hi, thank for your query. I am really sorry to hear about your suffering. If you are 16 years-old, I suggest that you look for an urologist with more experience on this disease. You don t have to wait until you are 18 to go to an adult urologist, as far as I know. There are guidelines to the treatment of this disease, and many options to relieve the pain and suffering. There is hope for you, don t give up! The American Urology Association has a guideline to the diagnosis and treatment of this disease, you can find it online. It is designed for doctors, but you can take a look and see that there are options. Have a good day and good luck.