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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Have GBS-CIDP. Taken Medrol. Harmful when taken long-term? Have throat and toes infection

Hi I am Sanv was patient of GBS-CIDP & need to discuss that-
1)at initial statge IVUG was given to me but that treatment was failed i n my case so ther after i have beeen given steriod and i am still taking Medrol teblate as advised by doc.--is it harmful for me to take for long time..?
2) due to less immunity cos of steriod i am suffering some kind of infaction like in throat & toes infaction-what is your views..?
3)I am 95% revovered from GBS but i am very afraied of as this deciease might come again so what precaution should we take after full recovery from GBS i.e what should we avoid in food or in travelling out door.
4)when i was admitted into hospital coupls of months back,my blood got tested thru HIV as well but it was negative.is there any link between HIV & GBS..? should i get checked my Blood again for satisfaction or it is fine..?
5) I was habitual of smoking but During GBS period i dint skmoke but now i again started to smoke,kindly advise me how it is harmfull for this kind of patients.

i am very scared of this kind of deciease and i want to save by life for better living.

pls help me...i am waiting for your respoce...kindly repy point wise.
Tue, 2 Jul 2013
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Anesthesiologist 's  Response
hi sanv..gbs is an auto immune disorder,in which body produces antibodies against our own neural tissue cells,triggerd by some infections(like campylobacter ,cytomegalo virus.mycoplasma,)causing progressive muscle weakness,starting legs migrating up involving hands resp.muscles,sometimes neck muscles cranial nerves.
.the condition may last from 4 wks to 6 months usually....the main treatment modality is supportive,immunoglobulins and plasmapharesis if reqd.......
.gbs recurrences can occur but rare.......more than 90% of pts recover significantly or totally by 6months with out long term problems....but pts have to continue rehabilitaion physiotherapy,muscle and breathing exercises...
usually steroids donot help much in gbs,but in cidp whih is a variant of gbs steroids have a signicant role,,recurrences can occur .with varying severities and are unpredictable..your doctor might have put based on your clinical condition..long term steroids should not be used as can cause some problems like infections,reduce immunity bone and joint problems..as stated hiv -ve do not worry..,,consult your doctor(as he is the best person knowing your health status,response to treatment and side effects) regarding slowly tapering steroids and adding mild immunosuppressants which are helpul in your condition ,avoid infections,stay healthy eat healthy,continue physiotherapy and breathing exercises..,,,as gbs can affect breathing system better you totally stop smoking take care of infections use antibiotics as required..
best wishes ,take care
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Have GBS-CIDP. Taken Medrol. Harmful when taken long-term? Have throat and toes infection

hi sanv..gbs is an auto immune disorder,in which body produces antibodies against our own neural tissue cells,triggerd by some infections(like campylobacter ,cytomegalo virus.mycoplasma,)causing progressive muscle weakness,starting legs migrating up involving hands resp.muscles,sometimes neck muscles cranial nerves. .the condition may last from 4 wks to 6 months usually....the main treatment modality is supportive,immunoglobulins and plasmapharesis if reqd....... .gbs recurrences can occur but rare.......more than 90% of pts recover significantly or totally by 6months with out long term problems....but pts have to continue rehabilitaion physiotherapy,muscle and breathing exercises... usually steroids donot help much in gbs,but in cidp whih is a variant of gbs steroids have a signicant role,,recurrences can occur .with varying severities and are unpredictable..your doctor might have put based on your clinical condition..long term steroids should not be used as can cause some problems like infections,reduce immunity bone and joint problems..as stated hiv -ve do not worry..,,consult your doctor(as he is the best person knowing your health status,response to treatment and side effects) regarding slowly tapering steroids and adding mild immunosuppressants which are helpul in your condition ,avoid infections,stay healthy eat healthy,continue physiotherapy and breathing exercises..,,,as gbs can affect breathing system better you totally stop smoking take care of infections use antibiotics as required.. best wishes ,take care