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Continuous swelling on both feet, subsides with exercise, diagnosed with idiopathic capillary leak syndrome and recommended compression stocking. Is the diagnosis correct?

A few of months ago i got swelling on my both feet, which lasted a few days. however only one continued to swell, it is now going on four months. I went to the doctor, who tested for liver , nothing showed wrong, he said it was varicose veins , but this was denied by two others, I have no veins showing at all. I then went on a detox programme (almost 4 months), it helped with exercise but the swelling is still there everday though not as bad. i realise if i do not exercise it swells. i did a deep vein trombosis test but proper flow of blood etc shows very normal. I went to a vascular surgeon last week who did no test but just looked at the DVT report and my foot. he said i have IDIOPATHIC CAPILLARY LEAK SYNDROME. He recommended compression stocking, that s it. I did some research and realise this is a very rare lethal condition. I have some questions I hope you can help me with: 1. How can I be sure that the diagnosis is correct, what tests are done to determine that? 2. Where can I go to get this done, I live in Trinidad and Tobago and there is nothing of the sort? 3. What cure is there? 4. What treatment is there? 5. Where can I get same? I have looked up that Bilberry fruit or extract helps to repair capillaries, I bought and started it yesterday. I am also taking aeorobic oxygen and probiotic from the detox programme to kill bacteria so that my body can get a chance to heal itself. What can you advise? CherryAnn
Asked On : Sat, 26 May 2012
Answers:  1 Views:  73
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Orthopaedic Surgeon 's  Response
Idiopathic capillary leak syndrome is a systemic disorder not confined to feet alone.
In your case it may be gravitational selling usually due to keeping the feet hanging for long.
The remedy is elastic compression bandage after raising the feet above body level for atleast 15 minutes and then wrapping the bandage from toe upwards to the ankle.
you should frequently raise or rest your feet in a body level table or chair 10 minutes every hour.
Laboratory Diagnosis with help of blood and urine samples for diagnosis
• Hemoconcentration
• Increase in IgM concentration • Decrease in serum albumin without albuminuria
• Decrease in serum IgG,C3, and C4.
Answered: Wed, 16 Apr 2014
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