Hi. My nephew is 3.5 years old and has been in the 0% weight category since he was 1.5 years. He has grown maybe an inch and a half and maybe 3 pounds in the last three years. My sister has taken him to their paediatrician, and an endocrinologist . But in the last two years, they have only given him approximately one appointment every six months, ruled out celiac and CF, and one test showed close to no growth hormones. All the endocrinologist said, is that they will check up on him next year, to see if his levels are changed. Other than that, they have offered no diagnosis other than a possible Growth Hormone deficiency , have not ordered any more tests, and offered no other information. I want to know what type of questions should be asked at the next visit. Two doctors he has seen don t seem to take him that seriously, maybe because he is a bright, intelligent kid who is only slowly becoming visibly smaller than his peers. He was born 8 pounds, but after about 9 months, pretty much stopped growing. But he never wanted to eat, from breastfeeding to solid food. Even now, my sister has to force him to eat, and two bites of a sandwich at lunch is a big deal. He looks proportionate, just tiny. He was about 20 pounds when my own daughter was born. That was almost two years ago. Now he is 22-23 pounds, and my own daughter is 30 pounds and two inches taller than him. He has also has chronic colds, coughs for about two years straight. What else can my sister do or follow up on? She lives in Vancouver, BC, Canada.