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Suggest treatment for myositis

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Posted on Mon, 21 Apr 2014
Question: Hey, my mums 57 n has been identified wit a form of myopathy...not sure which one...vr from pakistan n the her nuerologist has clearly told us that there is no medication for her condition in the country...n unfotunately, she has also not been prescribed any diet or exercise...her conditions been deteriorating...she is finding it more n more difficult to climb stairs...she cant climb a footpath or any other raised platform without support...doent have any endurance for heavy objects...feels that she will fall if she is made to bend too much...she has waddling gait in general now...she has v.active lifestyle but she gets tired v.easily...the more tired she is the more pronounced r thes symptoms...i need advice on medication, diet, exercise for improving her quality of life...additionally, wats the prognosis for her condition? Is it hereditary? Vr two sisters...how much is the chance of us having this disease? Any precautions v can take? Im attaching my mums reports. Her last cpkmwas around 1700...
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Answered by Dr. Alokkalyani (36 minutes later)
Brief Answer: myositis Detailed Answer: Hi, I am Dr Alok, please to answer your health related queries. As you describe, it seems that your mum have myositis, it is a well treatable condition. She must see a rheumatologist as soon as possible. This disease can be treated by steroid and steroid sparing drugs. There is very remote chance that you develop this disease. No precaution required. Hope this will help Regards Dr Alok
Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Follow up: Dr. Alokkalyani (17 hours later)
Thank u for ur response...it gives us hope...but im looking for a more specific answer in terms of medecines, diet n exercise...she will visit a rheumo in our country but given our experience with the nuero guy...im nt sure sure about wat the rhuemo will hav to say...n do not wori we will not be taking any meds without consulting a rhuemo in the country but it will give us a discussion point...additionally, can u describe her condition more specifically in terms of the reports shared...
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Answered by Dr. Alokkalyani (1 hour later)
Brief Answer: main drug is methotrexate and steroid Detailed Answer: Hi , There is no specific diet for myositis. Physiotherapy can be decided only after clinical examination and depending on the patient's exercise tolerance levels. Two most commonly used drugs are steroids and methotrexate. Other drugs are hydroxychloroquinine, etc. Regards
Above answer was peer-reviewed by : Dr. Shanthi.E
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Follow up: Dr. Alokkalyani (46 hours later)
Based on her reports...sinc they r all there including emg, biopsy etc...wat is the type of myositis that she is sufferin from? Some additional information: she has no pain...n her troubl started almost 10 to 15 years ago...but at that point in time it was basically not being able to carry other peoples babies translated to mean weights for long
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Answered by Dr. Alokkalyani (2 hours later)
Brief Answer: polymyositis Detailed Answer: Polymyositis , if there is no skin involvement Regards
Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Follow up: Dr. Alokkalyani (2 days later)
Ok
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Answered by Dr. Alokkalyani (40 minutes later)
Brief Answer: take care Detailed Answer: Thanks
Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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Dr. Alokkalyani

Rheumatologist

Practicing since :1999

Answered : 518 Questions

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Suggest treatment for myositis

Brief Answer: myositis Detailed Answer: Hi, I am Dr Alok, please to answer your health related queries. As you describe, it seems that your mum have myositis, it is a well treatable condition. She must see a rheumatologist as soon as possible. This disease can be treated by steroid and steroid sparing drugs. There is very remote chance that you develop this disease. No precaution required. Hope this will help Regards Dr Alok