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Hi, I Have Finally Been Diagnosed With Unprovoked Vulvodynia Due

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Posted on Thu, 6 Jun 2019
Question: Hi, I have finally been diagnosed with unprovoked vulvodynia due to sensitive nerves, after 4 years of on off symptoms. This is mostly under control with topical lidocaine and 20mg amitryptilene. I have recently the last couple of months, been experiencing numbness of toes and tingling on toes and sometimes fingers. I would not say it was painful but mildly annoying and uncomfortable . it does pass but it also feels nerve related. I hurt my back in Feb and it took a while to recover, I was getting very painful muscle spasms in my lower backbut a couple of times to the osteopath cured this and now my back is fine. I hate to appear like a constant worrier but the Gps here just dismiss nerve pain. I also suffer with Raynaulds in my fingers and a little it my feet (Not much) My concern is that someone mentioned that nerve pain and pins & needles was the first symptoms they had of MS , more worrying was that they mentioned Motor Nurone and that I should get checked out. I was furious that they they mentioned this as an Aunt of mine died from ALS 3 years ago and I was furious that they had brought this up . However when I googled the symptoms it mentioned tingling like electric shocks and muscle spasms. Should I be concerned? Or this this scaremongering? Don't want to ask the GP if there is a possibility it is linked as he will think I am nuts!!!! I use you quite a bit as I find the advice very useful instead of searching the internet. Many thanks XXXXXXX
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Hi, I have finally been diagnosed with unprovoked vulvodynia due to sensitive nerves, after 4 years of on off symptoms. This is mostly under control with topical lidocaine and 20mg amitryptilene. I have recently the last couple of months, been experiencing numbness of toes and tingling on toes and sometimes fingers. I would not say it was painful but mildly annoying and uncomfortable . it does pass but it also feels nerve related. I hurt my back in Feb and it took a while to recover, I was getting very painful muscle spasms in my lower backbut a couple of times to the osteopath cured this and now my back is fine. I hate to appear like a constant worrier but the Gps here just dismiss nerve pain. I also suffer with Raynaulds in my fingers and a little it my feet (Not much) My concern is that someone mentioned that nerve pain and pins & needles was the first symptoms they had of MS , more worrying was that they mentioned Motor Nurone and that I should get checked out. I was furious that they they mentioned this as an Aunt of mine died from ALS 3 years ago and I was furious that they had brought this up . However when I googled the symptoms it mentioned tingling like electric shocks and muscle spasms. Should I be concerned? Or this this scaremongering? Don't want to ask the GP if there is a possibility it is linked as he will think I am nuts!!!! I use you quite a bit as I find the advice very useful instead of searching the internet. Many thanks XXXXXXX
doctor
Answered by Dr. Olgeta Xhufka (2 hours later)
Brief Answer:
Pins and needles don't diagnose MS

Detailed Answer:
Hello dear, welcome to Ask a doctor service. I read your query and here is my advice.

The pins and needles sensation you are having us caused by a nerve issue. Sometimes diabetes may be a cause. The elevated glucose levels cause diabetic neuropathy.
Also the issues you had with your back may have caused inflammation of the nerves giving the pins and needles sensation.
So as a conclusion the pins and needles sensation has many other causes including MS but can't not put MS diagnosis.
If you have other symptoms of pain, blurred vision, dizziness, forgetfulness etc you can do an MRI.


Hope I have answered the question.
Let me know if I can assist you further.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
Pins and needles don't diagnose MS

Detailed Answer:
Hello dear, welcome to Ask a doctor service. I read your query and here is my advice.

The pins and needles sensation you are having us caused by a nerve issue. Sometimes diabetes may be a cause. The elevated glucose levels cause diabetic neuropathy.
Also the issues you had with your back may have caused inflammation of the nerves giving the pins and needles sensation.
So as a conclusion the pins and needles sensation has many other causes including MS but can't not put MS diagnosis.
If you have other symptoms of pain, blurred vision, dizziness, forgetfulness etc you can do an MRI.


Hope I have answered the question.
Let me know if I can assist you further.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
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Follow up: Dr. Olgeta Xhufka (25 minutes later)
Thank you I thought it may be to do with my back but will maybe get checked out for diabetes. None of those are symptoms of motor nurone ar they? I have no dizziness or pain elsewhere apart from Vulva. no blurred vision or forgetfulness . I am an accountant so cannot afford to forget things. thanks
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Thank you I thought it may be to do with my back but will maybe get checked out for diabetes. None of those are symptoms of motor nurone ar they? I have no dizziness or pain elsewhere apart from Vulva. no blurred vision or forgetfulness . I am an accountant so cannot afford to forget things. thanks
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
Not much related to motor neuron

Detailed Answer:
Hello dear and thank you for asking again. I don't think your symptoms have to do with motor neuron.
If it was you should have weakness, fatigue, trouble holding things, slurred speech, difficulty breathing and swallowing.
Get checked for diabetes and the spinal cord issues.
Let me know if I can assist you further.
You are welcome.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
Not much related to motor neuron

Detailed Answer:
Hello dear and thank you for asking again. I don't think your symptoms have to do with motor neuron.
If it was you should have weakness, fatigue, trouble holding things, slurred speech, difficulty breathing and swallowing.
Get checked for diabetes and the spinal cord issues.
Let me know if I can assist you further.
You are welcome.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
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Follow up: Dr. Olgeta Xhufka (21 hours later)
Thankyou , would tests would they do to look at spinal cord issues ?
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Thankyou , would tests would they do to look at spinal cord issues ?
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Also , Have you had many patients with nerve related vulvodynia?
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Also , Have you had many patients with nerve related vulvodynia?
doctor
Answered by Dr. Olgeta Xhufka (5 minutes later)
Brief Answer:
Xray or MRI of spine is needed

Detailed Answer:
Hello dear and thank you for asking again.
I think you should do a x-ray of spine and possibly sacral spine to see for nerve compressions and injuries. An MRI may be done and may show nerve conditions better.

I have several patients with vulvodynia which have referred sacral spine injuries, sacral nerve injuries, pelvic floor weakness or repeated infections.
Let me know if I can assist you further.
Above answer was peer-reviewed by : Dr. Nagamani Ng
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
Xray or MRI of spine is needed

Detailed Answer:
Hello dear and thank you for asking again.
I think you should do a x-ray of spine and possibly sacral spine to see for nerve compressions and injuries. An MRI may be done and may show nerve conditions better.

I have several patients with vulvodynia which have referred sacral spine injuries, sacral nerve injuries, pelvic floor weakness or repeated infections.
Let me know if I can assist you further.
Above answer was peer-reviewed by : Dr. Nagamani Ng
doctor
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Follow up: Dr. Olgeta Xhufka (1 hour later)
Do your vulvodynia patients manage their symptoms for nerve related vulvodynia. It seems to be nerve endings that are causing the problems?
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Do your vulvodynia patients manage their symptoms for nerve related vulvodynia. It seems to be nerve endings that are causing the problems?
doctor
Answered by Dr. Olgeta Xhufka (1 hour later)
Brief Answer:
See detailed answers below.

Detailed Answer:
Hello dear and thank you for asking again.
Some of my patients use antinflamatory drugs such advil or naproxen for pain management in osteoarthritis and also affect vulvodynia. Some of them take tricyclic antidepressants and most of them gabapentine ( SSRI).
Let me know if I can assist you further.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
See detailed answers below.

Detailed Answer:
Hello dear and thank you for asking again.
Some of my patients use antinflamatory drugs such advil or naproxen for pain management in osteoarthritis and also affect vulvodynia. Some of them take tricyclic antidepressants and most of them gabapentine ( SSRI).
Let me know if I can assist you further.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
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Follow up: Dr. Olgeta Xhufka (5 days later)
thanks for your support, I have an appointment with my GP this week and still not sure with what to ask him re the pins and needles and numb sensations. Font want to look stupid by mentioning MS of ALS as I think he may think I am a hypochondriac!! I only thought of these two things because someome else mentioned it and it alarmed me a little.
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Follow up: Dr. Olgeta Xhufka (0 minute later)
thanks for your support, I have an appointment with my GP this week and still not sure with what to ask him re the pins and needles and numb sensations. Font want to look stupid by mentioning MS of ALS as I think he may think I am a hypochondriac!! I only thought of these two things because someome else mentioned it and it alarmed me a little.
doctor
Answered by Dr. Olgeta Xhufka (7 minutes later)
Brief Answer:
Feel free to ask your GP

Detailed Answer:
Hello dear and thank you for asking again.
You can feel free to ask your GP for whatever question that bothers you.
I am almost sure that you don't have MS answered ALS.
It doesn't mean that you may be hypochondriac if you fear certain disease or if you ask for what bothers you.
I am pretty sure your GP will understand you.
Let me know if I can assist you further.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
Feel free to ask your GP

Detailed Answer:
Hello dear and thank you for asking again.
You can feel free to ask your GP for whatever question that bothers you.
I am almost sure that you don't have MS answered ALS.
It doesn't mean that you may be hypochondriac if you fear certain disease or if you ask for what bothers you.
I am pretty sure your GP will understand you.
Let me know if I can assist you further.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (22 minutes later)
Brief Answer:
You are welcome.

Detailed Answer:
You are welcome.
Wishing you good health.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Olgeta Xhufka (0 minute later)
Brief Answer:
You are welcome.

Detailed Answer:
You are welcome.
Wishing you good health.
Best regards.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
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Follow up: Dr. Olgeta Xhufka (3 minutes later)
Thanks I will ask , hope I do not sound too irrational
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Follow up: Dr. Olgeta Xhufka (0 minute later)
Thanks I will ask , hope I do not sound too irrational
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Dr. Olgeta Xhufka

General & Family Physician

Practicing since :2011

Answered : 10166 Questions

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Hi, I Have Finally Been Diagnosed With Unprovoked Vulvodynia Due

Hi, I have finally been diagnosed with unprovoked vulvodynia due to sensitive nerves, after 4 years of on off symptoms. This is mostly under control with topical lidocaine and 20mg amitryptilene. I have recently the last couple of months, been experiencing numbness of toes and tingling on toes and sometimes fingers. I would not say it was painful but mildly annoying and uncomfortable . it does pass but it also feels nerve related. I hurt my back in Feb and it took a while to recover, I was getting very painful muscle spasms in my lower backbut a couple of times to the osteopath cured this and now my back is fine. I hate to appear like a constant worrier but the Gps here just dismiss nerve pain. I also suffer with Raynaulds in my fingers and a little it my feet (Not much) My concern is that someone mentioned that nerve pain and pins & needles was the first symptoms they had of MS , more worrying was that they mentioned Motor Nurone and that I should get checked out. I was furious that they they mentioned this as an Aunt of mine died from ALS 3 years ago and I was furious that they had brought this up . However when I googled the symptoms it mentioned tingling like electric shocks and muscle spasms. Should I be concerned? Or this this scaremongering? Don't want to ask the GP if there is a possibility it is linked as he will think I am nuts!!!! I use you quite a bit as I find the advice very useful instead of searching the internet. Many thanks XXXXXXX