Question: I have a number of neuro-muscular, connective tissue issues, and have inflammation a lot...prednisone works well, but have to take often........trying to figure out how to help myself, and doctors not getting answer, ...

I also have gastroparesis, and a neurogenic bladder with spasms, uncoordinated in 2 spots, have had sling, interstim device, meds, and now I have to self XXXXXXX I have spasms and tightness, and some joints have pain with wrists and elbows sometimes bending the wrong way hurting me, and lower back and hip pain, left knee pain. nerves released are both tarsal, right tibular, left ulnar, right carpal, right ulnar with transpositioning....gallbladder is out. I have vertigo. Ataxic gait, have had a lot of migraines, different types....told I had complicated, and chronic with intractable migrain. sometimes the wrong words come out that don't fit. sometimes trouble swallowing, GERD, Obstructive sleep apnea, insomnia, disorders of muscle, ligament, and fascia, muscle weakness, and muscle is atrophying. poor endurance. occipital neuralgia-bilateral. peripheral neurapathy. autonomic damage. polyneuropathy. tremor. fibromyalgia. ataxic gait. hair loss. I am overweight. I have tri-focal script and use reading glasses with prism. I have trouble sometimes with focusing my eyes, at times they move around . THey are extremely dry with dry spots and scarring. chronic blepharitis. lower lids need stitches so eyes close. melbomian gland dysfunction. Pain in and behind and around left eye. reflexes don't work. left finger does not go right to nose on neuro exam. hearing issue recently. vitamin D deficiency, and iron. airborn allergies of some sort, do not know if other, never tested. get bladder, UTI and yeast infections easily. get sores in mouth, some around mouth, often on my tongue. a soreness and sloughing of skin on roof of my mouth. (mouth dryness and cavities). get hoarse voice a lot.
I am concerned about bloodwork, spinal fluid results, and have not yet had MRI due to interstim device, and am concerned that a doctor may be biasing information sent, that is too long a story to explain. I have searched long and need diagnosis or diagnoses or direction on how living in poverty level not knowing if research program or somewhere can run everything and find answer for me.

What is collagen vascular disease? And also, I had nuclear testing to diagnose gastroparesis.....I had urodynamic studies, one done some time between 2000 and 2004, and the other being this year, same urologist along with ultrasound and various treatments where it was found neurogenic bladder with high pressure spasms and 2 parts not coordinated with mixed incontinence /retension. .......I am told I have some autonomic system problem.......all eye issues have been diagnosed via optometrist and others added by opthalmologist............surgeon saw with his eyes the nerve lesions, and/or scarring and inflammation. How can there be inflammation without it showing in the bloodwork? I have an interstim device implanted, so I can only have a head MRI, and with specific way as prescribed by Medtronic........If they are finding all these evidences of disease and disorders (was told degenerative disc disease, and some others.......how can it still be labeled psychosomatic? Is there an option for someone of poverty level to go out of area or research clinic or hospital to find out what is happening?

Thank-you for extremely prompt reply! I wish only that I knew how to send you some pics on my phone with face rashes, and facial swelling, atrophied muscles in ankles and lower calves, and swelling in upper calves, etc. Could fibromyalgia cause these things? Diabetes type 2? I have diabetes type 2 for sure. I am on a 70/30 mix insulin. Unless I figure a way to send them, I thank-you very much for your help. Peace and good health