My nephew was born with one kidney and everything on the left side of his body was compromised. Small and large intestines were reversed he has skin tags, droopy eyes that are wide, large head he also had heart surgery at 1 month. He was also born with one kidney. He is small and has been developing slowly, he had a feeding tube until he was 4 months old. My brother will not share with the family what syndrome he has and I am very frustrated by this. We have Down s syndrome in the family and my daughter has just been recently diagnosed with Sjögren s syndrome so my 3 adult children would like to share with their doctors family history before they decide to have children. Do you have any idea what my nephew may have?