I understand your difficult situation. It is tough when the treatment does not show significant improvement and when its pretty expensive too. I will try answering a few of your questions.
The treatment for CIDP
are intravenous immune globulin
(IVIG), glucocorticoids, and plasma exchange(dialysis
).All these treatments are equally effective.
Benefits of IVIG treatment might not be obvious after first course of treatment and usually a repeat course is necessary after 3 weeks.Many patients require repeat IVIG maintanence dosing
every 2 to 6 weeks.
Much data is not available on Glucocorticoids but it is thought to be equally effective to IVIG and Plasma exchange.It is also thought to produce better clinical remission compared to IVIG or plasma exchange. Usually glucocorticoids are added if repeated high doses of IVIG is required or repeated Plasma exchange needed over many months.
If one modality of treatment is not working an alternative may be tried.For eg.If IVIG is not effective Plasma exchange can be tried.
Two thirds of the patients generally show response to treatment.Only in about 15% there is severe disability
even after appropriate treatment.I hope you remain patient and positive as the treatment can be longstanding and not throw in the towel when the treatment can be most effective. Hope this helps!