I thought I had lupus...butterflies scars, blistering around mouth and ears, incredible pain and brain fog, can not function on day to day and I have a 3 year old to raise. Sleep is random even with medications, bipolar, instant rages.... Today my rheumatologist said I don t have lupus per blood results...but can hardly walk the pain is so bad....the doctor said he had no advice for me beyond pain management and a dermatologist....I am so upset, who should I see, what should I do? Ive never been quit on by a doctor befo