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Dr. Andrew Rynne

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Exp 18 years

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I am pregnant and my baby was diagnosed with Hypoplastic left heart syndrome

I am pregnant and my baby was just diagnosed with Hypoplastic left heart syndrome, where is best place ? where is the best place for treatment? I have looked at several hospitals online, but who is the best. Money is no object, just the best care for my child. Even if outside of the United States.
Sun, 18 Jul 2010
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General & Family Physician 's  Response
Without life-prolonging interventions, Hypoplastic left heart syndrome is fatal, but with intervention, an infant may survive. A pediatric cardiothoracic surgeon may perform a series of operations or a full heart transplant.Because these operations are complex and need to be individualized for each patient, a cardiologist must assess all medical and surgical options on a case-by-case basis.While infants successfully treated for HLHS have a good chance of survival, they may experience chronic health problems for the rest of their lives.You may use the links i have given at the bottom to get medical help in United States...

http://www.seattlechildrens.org/clinics-programs/heart/your-care-team/

http://www.cincinnatichildrens.org/svc/alpha/h/heart-institute/about/team/cardiology/erik-michelfelder.htm


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  User's Response
childrens hospital in philedelphia is a great place and i believe there is a childrens heart hospital someplace in arkansas...cincinatti also has an excellent childrens hospital and there is always the cleveland clinic
  User's Response

The best surgeon and post operative care are at the University of Michigan. Dr Bove is world renown for his ability and the surgery survival rates are incredible. My son is now 14 and doing great.

Russ Gillespie

russelg@bellsouth.net

Pediatrician, Cardiology Dr. Shubhangi Upadhye's  Response
There are several units offering treatment for hypoplastic left heart. If you tell us where you stay, we'd be able to suggest a centre which is nearest. I'd also suggest you plan your delivery keeping in mind that the baby might require transport to the Cardiac Centre soon after birth.
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