HealthCareMagic is now Ask A Doctor - 24x7 | https://www.askadoctor24x7.com

question-icon

I Was On A Pain Pump For Almost 5 Years

default
Posted on Sat, 7 Nov 2020
Question: I was on a pain pump for almost 5 years (Dilaudid). I had severe central apnea and the dr. started tapering it down. We got it down to 0.624 mg/day continuous. They took the pump out in August and gave me a limited supply of Hydrocodone 10/325 to get by. I went into withdrawal within 2 days. Started oral Dilaudid in the hospital 24 mg/day total. I’ve tapered it down to about 3 mg p/day total but need advice on how to finish. I’ve used Klonopin to help with anxiety- 2mg bid. Sleeping has become a BIG problem!
default
Follow up: Dr. Dr. Matt Wachsman (0 minute later)
I was on a pain pump for almost 5 years (Dilaudid). I had severe central apnea and the dr. started tapering it down. We got it down to 0.624 mg/day continuous. They took the pump out in August and gave me a limited supply of Hydrocodone 10/325 to get by. I went into withdrawal within 2 days. Started oral Dilaudid in the hospital 24 mg/day total. I’ve tapered it down to about 3 mg p/day total but need advice on how to finish. I’ve used Klonopin to help with anxiety- 2mg bid. Sleeping has become a BIG problem!
doctor
Answered by Dr. Dr. Matt Wachsman (37 minutes later)
Brief Answer:
wow....

Detailed Answer:
So, first, we can give general advise but not prescribe, diagnose, or treat without being there in person.
That being said, there are other limitations. The extent of the lumbar, other conditions such as sleep apnea or diabetes.
Then, 3 mg a day dilaudid brings up a LOT of issues. First, will the pain be manageable without opiates. Generally, doubtful. And.. very limited nerve ablation treatment has been helpful in many.
Second, is there still a problem with the 3 mg? 24 mg is a bit high and likely to produce tolerance and withdrawal. A dose that is about 10 fold lower is significantly less of a problem.
If there are other opiate addiction issues, then addressing addiction is rather a good idea. If there are sleep apnea issues, then seeing if it still is there and addressing it directly (since mostly it is still going to be there on ZERO opiates) is rather important.
It is not going to be there for 3 days. So.. once every three days brings up other issues of why it is being dosed that way.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Dr. Matt Wachsman (0 minute later)
Brief Answer:
wow....

Detailed Answer:
So, first, we can give general advise but not prescribe, diagnose, or treat without being there in person.
That being said, there are other limitations. The extent of the lumbar, other conditions such as sleep apnea or diabetes.
Then, 3 mg a day dilaudid brings up a LOT of issues. First, will the pain be manageable without opiates. Generally, doubtful. And.. very limited nerve ablation treatment has been helpful in many.
Second, is there still a problem with the 3 mg? 24 mg is a bit high and likely to produce tolerance and withdrawal. A dose that is about 10 fold lower is significantly less of a problem.
If there are other opiate addiction issues, then addressing addiction is rather a good idea. If there are sleep apnea issues, then seeing if it still is there and addressing it directly (since mostly it is still going to be there on ZERO opiates) is rather important.
It is not going to be there for 3 days. So.. once every three days brings up other issues of why it is being dosed that way.
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
default
Follow up: Dr. Dr. Matt Wachsman (5 hours later)
Dr. Matt: As I had said, I was able to get the pump down to 0.624mg/day total. Pain is now and never has been relieved with Opiate meds. I do better on Ibuprofen. I can manage the pain but I want off opiates. Right now I’m splitting a 2mg tab and taking 1/2 tab every 8 hours. I don’t want to go into withdrawal again and I WILL NOT go to the ER. That set me back. So my question is, how should I taper from here on? Start cutting the half’s into quarters? These are very small tabs. Extend the time between doses? BTW, I asked pain doctor for Clonodine but she said no because potential bad reaction with my Atenolol (25mg).

While I was in the hospital for withdrawal, my pain doctor talked with the nurse and said they weren’t going to give me a choice about removing the pump. I think it was a liability thing due to CSA. Unfortunately, the pain doctor didn’t follow guidelines for further reducing the pump medication. I understand it could have been diluted with saline followed by complete saline some time later.

I also have a Medtronic pain stimulator but it really doesn’t help much. Pain originates upper lumbar and comes around RF to abdominal area. Muscles tighten and it becomes unbearable unless I lay down and remain completely still for several hours. I had spinal fusion L-3/4, L4/5, and L-5/S1 back in 2009. It only made the pain worse.

Thank you!

William
default
Follow up: Dr. Dr. Matt Wachsman (0 minute later)
Dr. Matt: As I had said, I was able to get the pump down to 0.624mg/day total. Pain is now and never has been relieved with Opiate meds. I do better on Ibuprofen. I can manage the pain but I want off opiates. Right now I’m splitting a 2mg tab and taking 1/2 tab every 8 hours. I don’t want to go into withdrawal again and I WILL NOT go to the ER. That set me back. So my question is, how should I taper from here on? Start cutting the half’s into quarters? These are very small tabs. Extend the time between doses? BTW, I asked pain doctor for Clonodine but she said no because potential bad reaction with my Atenolol (25mg).

While I was in the hospital for withdrawal, my pain doctor talked with the nurse and said they weren’t going to give me a choice about removing the pump. I think it was a liability thing due to CSA. Unfortunately, the pain doctor didn’t follow guidelines for further reducing the pump medication. I understand it could have been diluted with saline followed by complete saline some time later.

I also have a Medtronic pain stimulator but it really doesn’t help much. Pain originates upper lumbar and comes around RF to abdominal area. Muscles tighten and it becomes unbearable unless I lay down and remain completely still for several hours. I had spinal fusion L-3/4, L4/5, and L-5/S1 back in 2009. It only made the pain worse.

Thank you!

William
doctor
Answered by Dr. Dr. Matt Wachsman (5 hours later)
Brief Answer:
Several points.

Detailed Answer:
The response to any drug is hierarchical.
You have the blood level. It is small with 1 mg dilaudid q 8 hr. This is roughly the equivalent of the lowest dose percocet (5 mg)--the guidelines on alerting patients start at double this dose... 30 mg a day equivalent to a total of 5 mg of dilaudid a day.
You have the change in the blood level. Up feels better than down. Then, with a lag of up to 3 days there is withdrawal. There are a number of symptoms associated with withdrawal and they are variously actually tied to the blood level at all. Muscle spasm is not tied to opiate exposure well at all. People with exposure to opiates have a lot more restless leg for years after use. Muscle spasm of the back occurs in literally about 100% of us sometime;there are a lot of muscle relaxants. The core symptoms of opiate withdrawal of generalized ache, nausea/vomiting, nasal running, sweats, occur at 12 to 48 hrs after last use. They peak generally about 1-3 days after than.
Generally, treating the symptoms of withdrawal would be where people on 1 mg tid or less of dialudid would wind up. There are many choices. But it depends on what withdrawal symptoms they have. Elevation of pulse and BP are the most concerning and would be a reason to at least temporarily increase the atenolo dose.

Then you have the experience of the change in the blood level--the context one puts withdrawal into. So, if the bp and pulse go up dangerously, things would have to be handled in a hospital. Otherwise becoming aware of ones response to symptoms would be quite important. Frankly, in suboxone treatment I have patients get some withdrawal at least 1x a week so they become used to it; at least enough enured to it to allow any withdrawal at all.

So.. if someone is stuck at a very low dose, finding why they are stuck and dealing with that is the main consideration.
Above answer was peer-reviewed by : Dr. Raju A.T
doctor
doctor
Answered by Dr. Dr. Matt Wachsman (0 minute later)
Brief Answer:
Several points.

Detailed Answer:
The response to any drug is hierarchical.
You have the blood level. It is small with 1 mg dilaudid q 8 hr. This is roughly the equivalent of the lowest dose percocet (5 mg)--the guidelines on alerting patients start at double this dose... 30 mg a day equivalent to a total of 5 mg of dilaudid a day.
You have the change in the blood level. Up feels better than down. Then, with a lag of up to 3 days there is withdrawal. There are a number of symptoms associated with withdrawal and they are variously actually tied to the blood level at all. Muscle spasm is not tied to opiate exposure well at all. People with exposure to opiates have a lot more restless leg for years after use. Muscle spasm of the back occurs in literally about 100% of us sometime;there are a lot of muscle relaxants. The core symptoms of opiate withdrawal of generalized ache, nausea/vomiting, nasal running, sweats, occur at 12 to 48 hrs after last use. They peak generally about 1-3 days after than.
Generally, treating the symptoms of withdrawal would be where people on 1 mg tid or less of dialudid would wind up. There are many choices. But it depends on what withdrawal symptoms they have. Elevation of pulse and BP are the most concerning and would be a reason to at least temporarily increase the atenolo dose.

Then you have the experience of the change in the blood level--the context one puts withdrawal into. So, if the bp and pulse go up dangerously, things would have to be handled in a hospital. Otherwise becoming aware of ones response to symptoms would be quite important. Frankly, in suboxone treatment I have patients get some withdrawal at least 1x a week so they become used to it; at least enough enured to it to allow any withdrawal at all.

So.. if someone is stuck at a very low dose, finding why they are stuck and dealing with that is the main consideration.
Above answer was peer-reviewed by : Dr. Raju A.T
doctor
default
Follow up: Dr. Dr. Matt Wachsman (3 hours later)
Dr. Matt: I don’t believe I am stuck at my current dose of 1mg tid. I purposely slowed down after getting to 3mg total. I understand that last 25% or so is the most difficult. I will say that lumbar pain has picked up significantly 8/10. I’m hoping the increased pain is only temporary as my body adjust to the lower dose. My plan is to continue the taper but I need advice as to the dose/schedule. I also need advice as to other, non-opioid, meds that could help control pain and alleviate withdrawal issues if encountered. Do you suggest that I increase Atenolol to 50Mg?

Thanks again for your help.
default
Follow up: Dr. Dr. Matt Wachsman (0 minute later)
Dr. Matt: I don’t believe I am stuck at my current dose of 1mg tid. I purposely slowed down after getting to 3mg total. I understand that last 25% or so is the most difficult. I will say that lumbar pain has picked up significantly 8/10. I’m hoping the increased pain is only temporary as my body adjust to the lower dose. My plan is to continue the taper but I need advice as to the dose/schedule. I also need advice as to other, non-opioid, meds that could help control pain and alleviate withdrawal issues if encountered. Do you suggest that I increase Atenolol to 50Mg?

Thanks again for your help.
doctor
Answered by Dr. Dr. Matt Wachsman (9 hours later)
Brief Answer:
nuh uh

Detailed Answer:
The theme is Nuh uh.

Ok, tapering, and prescribing drugs to counter withdrawal is totally individualized. Not only can't a doctor on a site do it. Reasonably, it is micro-predicting the future. Not whether it rains today, but how many raindrops will hit the window.
This is a site for general information, so I can give the general information!
First Nuh uh--you are not describing addiction. Withdrawal has several features positive and negative. You are the ONLY good definition of "pseudo-addiction". Nothing, Not A Single Word you have said implies addiction. AND, when you don't have medication for pain, you have more pain. And when you don't have a medicine to lower pulse and sympathetic tone (atenolol) those go up too. Return of pain at the same or increased intensity when not getting opiates is not necessarily addiction. It often makes going from non-addictive doses of an opiate to zero really rough. There are not other non-opiate, non-addictive pain medications or treatments that are the same as a low dose opiate. Physical therapy probably has the best success. Chiropracty and accupuncture are not zero. NSAIDS have some serious risks and aren't going to work for disk disease. Tramadol is another drug with opiate effects that sometimes is even better than very low dose dilaudid. Also, pain from withdrawal is everywhere. Pain from a disk is not. Pain from withdrawal ends. Pain from disk... not so much.

The dose and schedule is by trial and error and cannot be predicted. Nuh uh. I can say dilaudid doesn't last 12 hrs. I can say 0.5 is lower than 1. I cannot say the best recommendation for someone ahead of time.

The side effects that someone will find most in need of treatment in actual drug withdrawal are not entirely predictable. Mostly. But not entirely. AND someone at doses that are generally not associated with withdrawal makes the question trickier since withdrawal wouldn't be expected. Nuh uh.
I can say spasm is often helped by magnesium supplements, parkinson's meds and conventional spasm meds such as buspirone or flexeril, but I do not know. Nausea is nearly always helped a lot by zofran and one might consider reglan.
Aches.. already answered. Diarrhea, imodium is perfect.
But I can't say whether any of that is valid.
Nuh uh.
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
doctor
Answered by Dr. Dr. Matt Wachsman (0 minute later)
Brief Answer:
nuh uh

Detailed Answer:
The theme is Nuh uh.

Ok, tapering, and prescribing drugs to counter withdrawal is totally individualized. Not only can't a doctor on a site do it. Reasonably, it is micro-predicting the future. Not whether it rains today, but how many raindrops will hit the window.
This is a site for general information, so I can give the general information!
First Nuh uh--you are not describing addiction. Withdrawal has several features positive and negative. You are the ONLY good definition of "pseudo-addiction". Nothing, Not A Single Word you have said implies addiction. AND, when you don't have medication for pain, you have more pain. And when you don't have a medicine to lower pulse and sympathetic tone (atenolol) those go up too. Return of pain at the same or increased intensity when not getting opiates is not necessarily addiction. It often makes going from non-addictive doses of an opiate to zero really rough. There are not other non-opiate, non-addictive pain medications or treatments that are the same as a low dose opiate. Physical therapy probably has the best success. Chiropracty and accupuncture are not zero. NSAIDS have some serious risks and aren't going to work for disk disease. Tramadol is another drug with opiate effects that sometimes is even better than very low dose dilaudid. Also, pain from withdrawal is everywhere. Pain from a disk is not. Pain from withdrawal ends. Pain from disk... not so much.

The dose and schedule is by trial and error and cannot be predicted. Nuh uh. I can say dilaudid doesn't last 12 hrs. I can say 0.5 is lower than 1. I cannot say the best recommendation for someone ahead of time.

The side effects that someone will find most in need of treatment in actual drug withdrawal are not entirely predictable. Mostly. But not entirely. AND someone at doses that are generally not associated with withdrawal makes the question trickier since withdrawal wouldn't be expected. Nuh uh.
I can say spasm is often helped by magnesium supplements, parkinson's meds and conventional spasm meds such as buspirone or flexeril, but I do not know. Nausea is nearly always helped a lot by zofran and one might consider reglan.
Aches.. already answered. Diarrhea, imodium is perfect.
But I can't say whether any of that is valid.
Nuh uh.
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
default
Follow up: Dr. Dr. Matt Wachsman (1 hour later)
Dr. Matt: I thank you for your honest and straightforward opinion. My goal, as I have indicated, is to get completely off Opioid meds. I never claimed I was addicted... just dependent. I selected the topic because it was the closest available and I wanted a doctor who had significant experience in the area. You fit the criteria and provided some valuable insight. In the end, I may have to return to some form of opiate therapy however, at least I’ll have given it an honest try.

Thank you!

William
default
Follow up: Dr. Dr. Matt Wachsman (0 minute later)
Dr. Matt: I thank you for your honest and straightforward opinion. My goal, as I have indicated, is to get completely off Opioid meds. I never claimed I was addicted... just dependent. I selected the topic because it was the closest available and I wanted a doctor who had significant experience in the area. You fit the criteria and provided some valuable insight. In the end, I may have to return to some form of opiate therapy however, at least I’ll have given it an honest try.

Thank you!

William
doctor
Answered by Dr. Dr. Matt Wachsman (4 minutes later)
Brief Answer:
Good.

Detailed Answer:
These are the realistic parameters. In person, particular parameters can be set for trial and error. And... one gets used to a certain level of discomfort; if there were withdrawal, and I am doubtful, after a few tries of the identical tapering, people can tolerate it better.

It isn't the drug dependency/addiction/withdrawal that I expect to be the issue--but the legitimate use and benefits for real lumbar pain. non-zero milligrams have non-zero benefits; even at levels well below risks of withdrawal.
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
doctor
Answered by Dr. Dr. Matt Wachsman (0 minute later)
Brief Answer:
Good.

Detailed Answer:
These are the realistic parameters. In person, particular parameters can be set for trial and error. And... one gets used to a certain level of discomfort; if there were withdrawal, and I am doubtful, after a few tries of the identical tapering, people can tolerate it better.

It isn't the drug dependency/addiction/withdrawal that I expect to be the issue--but the legitimate use and benefits for real lumbar pain. non-zero milligrams have non-zero benefits; even at levels well below risks of withdrawal.
Note: In case of any other concern or query related to prevention, evaluation, diagnosis, treatment, or the recovery of persons with the any type of addiction or substance use, follow up with our Addiction Medicine Specialist. Click here to book a consultation now.

Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
Answered by
Dr.
Dr. Dr. Matt Wachsman

Addiction Medicine Specialist

Practicing since :1985

Answered : 4214 Questions

premium_optimized

The User accepted the expert's answer

Share on

Get personalised answers from verified doctor in minutes across 80+ specialties

159 Doctors Online

By proceeding, I accept the Terms and Conditions

HCM Blog Instant Access to Doctors
HCM Blog Questions Answered
HCM Blog Satisfaction
I Was On A Pain Pump For Almost 5 Years

I was on a pain pump for almost 5 years (Dilaudid). I had severe central apnea and the dr. started tapering it down. We got it down to 0.624 mg/day continuous. They took the pump out in August and gave me a limited supply of Hydrocodone 10/325 to get by. I went into withdrawal within 2 days. Started oral Dilaudid in the hospital 24 mg/day total. I’ve tapered it down to about 3 mg p/day total but need advice on how to finish. I’ve used Klonopin to help with anxiety- 2mg bid. Sleeping has become a BIG problem!