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I Had A Lap For Endometriosis In Early January. Procedure

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Posted on Tue, 7 Apr 2020
Question: I had a lap for endometriosis in early January. Procedure went fine and the day before I got sick I felt really good. On day 4 post op was the beginning of a mystery nightmare that no one has been able to figure out. Since then I have had 3 'episodes/flares' of violent nausea/vomiting/diarrhea/cold chills/extreme fatigue with palpitations/high heat rate at onset, the first lasted 8 days (with an additional 2 days that weren't great before discharge, then an entire 2+ weeks that I could barely function or drive at home from fatigue), the 2nd lasted 5/6 days at the worst and an additional 2 days that weren't great. and i'm on day 4 of the 3rd. With the surgery, and these episodes I have been in/out of the hospital over 20 days out of the last 3 months and no one really has any ideas that have panned out. GI, neurology, the surgeon who performed the procedure, multiple hospitalists, my rhuematologist, PCP. 2 seperate Abdomen Pelvic CT were normal, blood work mostly normal on day 1 of the issues I will have elevated WBC/neutrophils but resolves on its own. Brain CT & MRI normal. Endoscopy was negative for anything explanatory. MRCP normal. Thyroid normal. Medication does not control the nausea/vomiting including 8mg of zofran/reglan/ativan/benadry/compazinel. Even in IV form. I have never felt this bad in my entire life. Because I have a rare neuromuscular disease and other 'rarer' diagnosis I feel like this is something very rare too that everyone is just missing because no one is understanding how severe it really is. They just keep wanting me to go to the ER.

Symptoms (1st episode):
Severe nausea (disabling)
Vomiting green bile & dry heaving
Legs twitching/hot/cold chills
Diarrhea (mostly yellow/foam)10-20x a day
I felt disoriented/weak
Ears were ringing so loud
Palpitations
Vision was off
Brain fog
Elevated WBC and neutrophils day 1 (Started to go down day 2)
And the worst symptom of all was that When the violent nausea would hit I would get so tired/out of it that I could not physically keep my eyes open.
Urine was getting darker during 2nd admission I remember the hospitalist looked at it and he thought it was so weird with me having been on fluids for so many days continuously.

Symptoms (2nd episode)
Diarrhea 2-3 days prior to onset, did have a really bad headache 1 day prior to onset
Severe nausea (disabling)
Vomiting green bile & dry heaving
Palpitations high heart rate at onset 130-150s
Legs twitching/hot/cold chills
Diarrhea during episode 5-7 times per day
Elevated WBC and neutrophils day 1
Mild ear ringing
Weak and mildly disoriented-less so than last time.
Some low center pain, moderate that would wake me up, partially relieved by bowel movement

Symptoms (3rd Episode)
Headaches worse than my normal 2-3 days before onset.
Diarrhea during episode about 5-6x/day on average
Palpitations but did not notice it was extremely high at onset like before
Severe nausea
Vomiting green bile/dry heaving
Legs less twitchy but just feel really weird/annoying.
Cold chills (cannot stay warm no matter what, shivering wakes me up)
Ears still ringing/sensitive
Weak but less disoriented feeling than before
Just feel really really bad
Normal WBC on Day 2 (no labs done day 1)
More stomach pain on/off than I had with the initial 2 episodes Mostly RUQ and low abdomen.
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Follow up: Dr. Baranidharan Kuselan (0 minute later)
I had a lap for endometriosis in early January. Procedure went fine and the day before I got sick I felt really good. On day 4 post op was the beginning of a mystery nightmare that no one has been able to figure out. Since then I have had 3 'episodes/flares' of violent nausea/vomiting/diarrhea/cold chills/extreme fatigue with palpitations/high heat rate at onset, the first lasted 8 days (with an additional 2 days that weren't great before discharge, then an entire 2+ weeks that I could barely function or drive at home from fatigue), the 2nd lasted 5/6 days at the worst and an additional 2 days that weren't great. and i'm on day 4 of the 3rd. With the surgery, and these episodes I have been in/out of the hospital over 20 days out of the last 3 months and no one really has any ideas that have panned out. GI, neurology, the surgeon who performed the procedure, multiple hospitalists, my rhuematologist, PCP. 2 seperate Abdomen Pelvic CT were normal, blood work mostly normal on day 1 of the issues I will have elevated WBC/neutrophils but resolves on its own. Brain CT & MRI normal. Endoscopy was negative for anything explanatory. MRCP normal. Thyroid normal. Medication does not control the nausea/vomiting including 8mg of zofran/reglan/ativan/benadry/compazinel. Even in IV form. I have never felt this bad in my entire life. Because I have a rare neuromuscular disease and other 'rarer' diagnosis I feel like this is something very rare too that everyone is just missing because no one is understanding how severe it really is. They just keep wanting me to go to the ER.

Symptoms (1st episode):
Severe nausea (disabling)
Vomiting green bile & dry heaving
Legs twitching/hot/cold chills
Diarrhea (mostly yellow/foam)10-20x a day
I felt disoriented/weak
Ears were ringing so loud
Palpitations
Vision was off
Brain fog
Elevated WBC and neutrophils day 1 (Started to go down day 2)
And the worst symptom of all was that When the violent nausea would hit I would get so tired/out of it that I could not physically keep my eyes open.
Urine was getting darker during 2nd admission I remember the hospitalist looked at it and he thought it was so weird with me having been on fluids for so many days continuously.

Symptoms (2nd episode)
Diarrhea 2-3 days prior to onset, did have a really bad headache 1 day prior to onset
Severe nausea (disabling)
Vomiting green bile & dry heaving
Palpitations high heart rate at onset 130-150s
Legs twitching/hot/cold chills
Diarrhea during episode 5-7 times per day
Elevated WBC and neutrophils day 1
Mild ear ringing
Weak and mildly disoriented-less so than last time.
Some low center pain, moderate that would wake me up, partially relieved by bowel movement

Symptoms (3rd Episode)
Headaches worse than my normal 2-3 days before onset.
Diarrhea during episode about 5-6x/day on average
Palpitations but did not notice it was extremely high at onset like before
Severe nausea
Vomiting green bile/dry heaving
Legs less twitchy but just feel really weird/annoying.
Cold chills (cannot stay warm no matter what, shivering wakes me up)
Ears still ringing/sensitive
Weak but less disoriented feeling than before
Just feel really really bad
Normal WBC on Day 2 (no labs done day 1)
More stomach pain on/off than I had with the initial 2 episodes Mostly RUQ and low abdomen.
doctor
Answered by Dr. Baranidharan Kuselan (10 hours later)
Brief Answer:
Need more information

Detailed Answer:
Hi,
Thanks for posting in HCM.
I am Dr.Barani.
You were fine before the surgery.
All symptoms started after surgery.
Were you tested for Clostridium difficile infection?
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
doctor
Answered by Dr. Baranidharan Kuselan (0 minute later)
Brief Answer:
Need more information

Detailed Answer:
Hi,
Thanks for posting in HCM.
I am Dr.Barani.
You were fine before the surgery.
All symptoms started after surgery.
Were you tested for Clostridium difficile infection?
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
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Follow up: Dr. Baranidharan Kuselan (10 hours later)
Yes. Tested for cdiff multiple times. All negative. And never had any symptoms like this prior to surgery.
default
Follow up: Dr. Baranidharan Kuselan (0 minute later)
Yes. Tested for cdiff multiple times. All negative. And never had any symptoms like this prior to surgery.
doctor
Answered by Dr. Baranidharan Kuselan (23 hours later)
Brief Answer:
Need more information.

Detailed Answer:
Hi,
Did your doctors tell you whether it was small bowel diarrhea or large bowel diarrhea?
Everytime you had diarrhea, was it large quantity stool or small quantity stool?
Blood and mucus in it?
Weight loss?
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
doctor
Answered by Dr. Baranidharan Kuselan (0 minute later)
Brief Answer:
Need more information.

Detailed Answer:
Hi,
Did your doctors tell you whether it was small bowel diarrhea or large bowel diarrhea?
Everytime you had diarrhea, was it large quantity stool or small quantity stool?
Blood and mucus in it?
Weight loss?
Above answer was peer-reviewed by : Dr. Yogesh D
doctor
default
Follow up: Dr. Baranidharan Kuselan (28 minutes later)
Did your doctors tell you whether it was small bowel diarrhea or large bowel diarrhea?
No they didn't say
Everytime you had diarrhea, was it large quantity stool or small quantity stool?
Larger in the beginning of the episodes and smaller as the days progressed typically but not always. Worse in morning.
Blood and mucus in it? I thought it looked like it had some blood in it but testing said no. I did get very yellow and foamy.
Weight loss? Yes each time I lost 5-10lbs and once I got better was able to get most of it back.
default
Follow up: Dr. Baranidharan Kuselan (0 minute later)
Did your doctors tell you whether it was small bowel diarrhea or large bowel diarrhea?
No they didn't say
Everytime you had diarrhea, was it large quantity stool or small quantity stool?
Larger in the beginning of the episodes and smaller as the days progressed typically but not always. Worse in morning.
Blood and mucus in it? I thought it looked like it had some blood in it but testing said no. I did get very yellow and foamy.
Weight loss? Yes each time I lost 5-10lbs and once I got better was able to get most of it back.
doctor
Answered by Dr. Baranidharan Kuselan (17 hours later)
Brief Answer:
Answer given below

Detailed Answer:
Hi,
I consider two possibilities.
1. Neuroendocrine neoplasm
2. Inflammatory bowel disease.

5HIAA, serum Gastrin and Fecal calprotectin tests may be done.
You can discuss with your doctor about these possibilities and tests.

Regards,
Dr.Barani
Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
doctor
Answered by Dr. Baranidharan Kuselan (0 minute later)
Brief Answer:
Answer given below

Detailed Answer:
Hi,
I consider two possibilities.
1. Neuroendocrine neoplasm
2. Inflammatory bowel disease.

5HIAA, serum Gastrin and Fecal calprotectin tests may be done.
You can discuss with your doctor about these possibilities and tests.

Regards,
Dr.Barani
Note: For more detailed guidance, please consult an Internal Medicine Specialist, with your latest reports. Click here..

Above answer was peer-reviewed by : Dr. Vaishalee Punj
doctor
Answered by
Dr.
Dr. Baranidharan Kuselan

Pain Medicine & Palliative Care Specialist

Practicing since :1996

Answered : 417 Questions

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I Had A Lap For Endometriosis In Early January. Procedure

I had a lap for endometriosis in early January. Procedure went fine and the day before I got sick I felt really good. On day 4 post op was the beginning of a mystery nightmare that no one has been able to figure out. Since then I have had 3 'episodes/flares' of violent nausea/vomiting/diarrhea/cold chills/extreme fatigue with palpitations/high heat rate at onset, the first lasted 8 days (with an additional 2 days that weren't great before discharge, then an entire 2+ weeks that I could barely function or drive at home from fatigue), the 2nd lasted 5/6 days at the worst and an additional 2 days that weren't great. and i'm on day 4 of the 3rd. With the surgery, and these episodes I have been in/out of the hospital over 20 days out of the last 3 months and no one really has any ideas that have panned out. GI, neurology, the surgeon who performed the procedure, multiple hospitalists, my rhuematologist, PCP. 2 seperate Abdomen Pelvic CT were normal, blood work mostly normal on day 1 of the issues I will have elevated WBC/neutrophils but resolves on its own. Brain CT & MRI normal. Endoscopy was negative for anything explanatory. MRCP normal. Thyroid normal. Medication does not control the nausea/vomiting including 8mg of zofran/reglan/ativan/benadry/compazinel. Even in IV form. I have never felt this bad in my entire life. Because I have a rare neuromuscular disease and other 'rarer' diagnosis I feel like this is something very rare too that everyone is just missing because no one is understanding how severe it really is. They just keep wanting me to go to the ER. Symptoms (1st episode): Severe nausea (disabling) Vomiting green bile & dry heaving Legs twitching/hot/cold chills Diarrhea (mostly yellow/foam)10-20x a day I felt disoriented/weak Ears were ringing so loud Palpitations Vision was off Brain fog Elevated WBC and neutrophils day 1 (Started to go down day 2) And the worst symptom of all was that When the violent nausea would hit I would get so tired/out of it that I could not physically keep my eyes open. Urine was getting darker during 2nd admission I remember the hospitalist looked at it and he thought it was so weird with me having been on fluids for so many days continuously. Symptoms (2nd episode) Diarrhea 2-3 days prior to onset, did have a really bad headache 1 day prior to onset Severe nausea (disabling) Vomiting green bile & dry heaving Palpitations high heart rate at onset 130-150s Legs twitching/hot/cold chills Diarrhea during episode 5-7 times per day Elevated WBC and neutrophils day 1 Mild ear ringing Weak and mildly disoriented-less so than last time. Some low center pain, moderate that would wake me up, partially relieved by bowel movement Symptoms (3rd Episode) Headaches worse than my normal 2-3 days before onset. Diarrhea during episode about 5-6x/day on average Palpitations but did not notice it was extremely high at onset like before Severe nausea Vomiting green bile/dry heaving Legs less twitchy but just feel really weird/annoying. Cold chills (cannot stay warm no matter what, shivering wakes me up) Ears still ringing/sensitive Weak but less disoriented feeling than before Just feel really really bad Normal WBC on Day 2 (no labs done day 1) More stomach pain on/off than I had with the initial 2 episodes Mostly RUQ and low abdomen.