Hi. I recently discovered that my 12 year old adopted son has what I presume to be neurofibromatosis. We have a regular check up appt next week and I am wondering if I should put his diagnosis and follow thru in their hands or call a clinic myself to arrange diagnosis. Thank you.
hi. neurofibromatosis is a genetic disease in which there are multiple lumps in body and many other symptoms. being genetic it can not be treated. we can not remove all the lumps and if u do so many other new lumps will develop. best treatment is to remove the large symptomatic lumps. no medicines help.