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Dr. Andrew Rynne
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest remedy for Intestinal Lymphangiectasia

Nine years ago I got very sick & ended up in the hospital for a week. I saw several specialists & had several tests done & was eventually diagnosed with Intestinal Lymphangiectasia. I was put on a low-fat high protein diet & several different medications and after 6-8 months I was completely back to normal. I got off of medications a year later & have not had any problems since. However, a month ago I started coming down with the same symptoms: low protein count, extreme diarrhea, low vitamin counts, and edema in my legs. I was referred to a gastroenterologist; however, he doesnt seem convinced that this diagnosis was correct & has been running a battery of basic tests (Celiac s disease & other food intolerances). I am getting frustrated because I feel that I was diagnosed correctly, especially because I was sick for about 2 years before the diagnosis & then got well in 6-8 months after diagnosis, and because I had all of these tests before & it took a team of several specialized doctors to actually find a diagnosis. Can my family physician prescribe the medications that I took before? Is there a different type of doctor that specializes in RARE intestinal disorders? Is there a doctor in the US that has experience with this disease? What tests should I request my doctor to perform? I should also note that I was recenly diagnosed with Grave s Disease & I am a 25 year old female.
Tue, 19 Mar 2019
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General Surgeon 's  Response

* The best way to manage the issue of abdomen presentation with a possible autoimmune disorder is to be handled by an endocrinologist in particular with immune specialization.

* There is the best specialist available in the US for the same and online approach through this website forum is the best way to find such a doctor.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Dr Bhagyesh V. Patel, General Surgeon
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