Get your health question answered instantly from our pool of 18000+ doctors from over 80 specialties
147 Doctors Online

By proceeding, I accept the Terms and Conditions

Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

HCM Blog Instant Access to Doctors
HCM BlogQuestions Answered
HCM Blog Satisfaction

Suggest remedy for Intestinal Lymphangiectasia

Nine years ago I got very sick & ended up in the hospital for a week. I saw several specialists & had several tests done & was eventually diagnosed with Intestinal Lymphangiectasia. I was put on a low-fat high protein diet & several different medications and after 6-8 months I was completely back to normal. I got off of medications a year later & have not had any problems since. However, a month ago I started coming down with the same symptoms: low protein count, extreme diarrhea, low vitamin counts, and edema in my legs. I was referred to a gastroenterologist; however, he doesnt seem convinced that this diagnosis was correct & has been running a battery of basic tests (Celiac s disease & other food intolerances). I am getting frustrated because I feel that I was diagnosed correctly, especially because I was sick for about 2 years before the diagnosis & then got well in 6-8 months after diagnosis, and because I had all of these tests before & it took a team of several specialized doctors to actually find a diagnosis. Can my family physician prescribe the medications that I took before? Is there a different type of doctor that specializes in RARE intestinal disorders? Is there a doctor in the US that has experience with this disease? What tests should I request my doctor to perform? I should also note that I was recenly diagnosed with Grave s Disease & I am a 25 year old female.
Tue, 19 Mar 2019
Report Abuse
Question is related to
Diseases and Conditions ,  
Medical Topics
General Surgeon 's  Response
Hello,

* The best way to manage the issue of abdomen presentation with a possible autoimmune disorder is to be handled by an endocrinologist in particular with immune specialization.

* There is the best specialist available in the US for the same and online approach through this website forum is the best way to find such a doctor.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Regards,
Dr Bhagyesh V. Patel, General Surgeon
I find this answer helpful
Disclaimer: These answers are for your information only and not intended to replace your relationship with your treating physician.
This is a short, free answer. For a more detailed, immediate answer, try our premium service [Sample answer]
Share on
 

Related questions you may be interested in

doctor1 MD

my daughter was diagnosed with intestinal lymphangeictasia at age 7 at cardinalnglennon hospital..she was hospitalized numerous times until age 18...

Recent questions on  Lymphangiectasia

doctor1 MD

Nine years ago I got very sick & ended up in the hospital for a week. I saw several specialists & had several tests done & was eventually diagnosed...

doctor1 MD

I want to ask Dr. skin about top my penis there are some Protrusions small spherical brown I want to know the type of the disease and how to treat

doctor1 MD

I had an endoscopy and there was a white spot at the end of the stomach going to the small intestine . They did not biopsy it. But I would like to...

doctor1 MD

My Name is XXXXX, and I am the patient with mesenterointestinal lymhangiectasia. I am wondring how much mct oil to consume daily, and how much fat...

doctor1 MD

My daughter 4.5 Years, suffering from Protein Losing Enteropathy due to Intestinal Lymphangiectasia. Due to Hypoalbumania Plural Effusion and...