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What Do Severe Headaches When Diagnosed With Acoustic Neuroma Suggest?

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Posted on Tue, 6 Oct 2015
Question: Hi Doctor, I had a Acoustic Neuroma in 2003. It was large and I had lost most of my hearing before surgery and balance was tuff. I was an Ironworker you know building high rises in NYC and bridges so there went that job. The tumor was 6cm by 10cm and starting to distort the brain stem. I had a operation which was 11 hrs at St Lukes Hospital in NYC by one of the best.He saved my facial nerve to some extent but lost my hearing and 6 months rehab. I had a cut from the front of my hair line to behind my ear. He removed most of the tumor but had to leave what he called a small piece due to the fact it was very sticky and I would have had lost my facial nerve. I was told it would not be a problem and would not grow but I have to check it every 2 yrs MRI with contrast. I have been doing so but it is growing it was 51/2 mm x 4x over the yrs the size was getting bigger and I was told it is the doctor who reads the ruler might be off a bit. I asked then why is it larger every time I come which was not every 2 yrs but 3-4. I just went to a new MRI place and it is now 6mmx7mmx9mm and is now called a acoustic schwannoma? I spoke with the radiologist and explained what i read and was told by my GP. He stated a ruler is a ruler and I know how to measure properly. I have been experience headache and my nose runs when i eat my eye is sagging down. I am 56 yrs young and have gone to 3 different MRI places to see if I am right in stating it is getting larger. Thus proving I am right. What would you recommend I do. I have cages in my spine at l4-l5 which is called failed back surgery and my thoracic spine has many endplate issue and herniations. I read about NF2 should I be worried? and should I be seeking more info or leave it alone? Thank you XXXX
doctor
Answered by Dr. Sumit Bhatti (2 hours later)
Brief Answer:
There are many options.

Detailed Answer:
Hi,

Thank you for your query.

1. There is no doubt that this is a growing acoustic neuroma recurrence. Vestibular schwannoma refers to the same.

2. The options are observation, repeat surgery, gamma knife, cyber knife or proton therapy.

3. Each approach has its advantages and disadvantages. These are slow growing tumours and hence left alone in the elderly, but it seems that there is a significant increase in size in your case.

4. The gamma knife, cyber knife, proton therapy or chemotherapy options should help reduce the growth of the acoustic neuroma.

5. Chemotherapy will be a better option than radiotherapy if NF 2 is the underlying cause.

I hope that I have answered your query. If you have any more questions I will be available to answer them.

Regards.
Note: Consult an experienced Otolaryngologist / ENT Specialist online for further follow up on ear, nose, and throat issues - Book a Call now.

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Answered by
Dr.
Dr. Sumit Bhatti

Otolaryngologist / ENT Specialist

Practicing since :1991

Answered : 2685 Questions

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What Do Severe Headaches When Diagnosed With Acoustic Neuroma Suggest?

Brief Answer: There are many options. Detailed Answer: Hi, Thank you for your query. 1. There is no doubt that this is a growing acoustic neuroma recurrence. Vestibular schwannoma refers to the same. 2. The options are observation, repeat surgery, gamma knife, cyber knife or proton therapy. 3. Each approach has its advantages and disadvantages. These are slow growing tumours and hence left alone in the elderly, but it seems that there is a significant increase in size in your case. 4. The gamma knife, cyber knife, proton therapy or chemotherapy options should help reduce the growth of the acoustic neuroma. 5. Chemotherapy will be a better option than radiotherapy if NF 2 is the underlying cause. I hope that I have answered your query. If you have any more questions I will be available to answer them. Regards.