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What Causes Breathing Difficulty When Suffering From Pulmonary Hypertension?
Question: Hello Doctor, my partner suffering with PAH is feeling breathless very often and also heart beat is very very fast while walking or even sitting idle. Can you please suggest what could be the reason for this sudden change in health conditions? Current medication is Bosentas 62.5 mg and Pulmo Pres. What needs to be done to get the condition to stability? Also what do these symptoms mean doctor?
Brief Answer:
PAH is the reason for this.
Detailed Answer:
Hello dear,thanks for your question on HCM.
In my opinion you should consult pulmonologist and get done clinical examination.
Young female with PAH needs following things to rule out.
1. Connective Tissue Diseases
2. HIV
3. Storage diseases
4. Family History of PAH
5. Valvular Heart Diseases etc
And if found anything than treatment should be started accordingly.
Also get done CT Pulmonary Angiography to rule out Pulmonary Embolism as a complication. Worsening of symptoms may be due to this only. So get done CT Pulmonary Angio.
Very few drugs are available for this disease. And you can add sildenafil,along with bosentan and pulmopress.
Diuretics and oral inotropes can also be tried.
So better to consult pulmonologist and discuss all these.
Honestly speaking PAH is very bad disease when it comes to prognosis. Very few treatment options are available. So In my opinion these symptoms are not good sign.
Hope I have solved your query.
I will be happy to help you further.
Wishing good health to your friend.
Thanks.
PAH is the reason for this.
Detailed Answer:
Hello dear,thanks for your question on HCM.
In my opinion you should consult pulmonologist and get done clinical examination.
Young female with PAH needs following things to rule out.
1. Connective Tissue Diseases
2. HIV
3. Storage diseases
4. Family History of PAH
5. Valvular Heart Diseases etc
And if found anything than treatment should be started accordingly.
Also get done CT Pulmonary Angiography to rule out Pulmonary Embolism as a complication. Worsening of symptoms may be due to this only. So get done CT Pulmonary Angio.
Very few drugs are available for this disease. And you can add sildenafil,along with bosentan and pulmopress.
Diuretics and oral inotropes can also be tried.
So better to consult pulmonologist and discuss all these.
Honestly speaking PAH is very bad disease when it comes to prognosis. Very few treatment options are available. So In my opinion these symptoms are not good sign.
Hope I have solved your query.
I will be happy to help you further.
Wishing good health to your friend.
Thanks.
Above answer was peer-reviewed by :
Dr. Prasad
Thank you for the reply doctor.
Does this mean that there will be no cure doctor?
Also what does this mean for the patient doctor? What is life expectancy doctor?
Thank you in advance doctor.
Does this mean that there will be no cure doctor?
Also what does this mean for the patient doctor? What is life expectancy doctor?
Thank you in advance doctor.
Brief Answer:
Lifelong treatment needed
Detailed Answer:
Hello dear, thanks for your follow up question.
PAH is chronic disease. You need to take these drugs lifelong.
It is not curable; it should be managed through life time medicines. So treatment lasts long.
And patient needs psychological support too. With lifestyle modifications (chest physiotherapy, low salt diet) and proper treatment life expectancy with PAH is good.
It basically hampers quality of life. Five year survival with best treatment is 70-80%. But patient becomes physically limited.
And psychological support is must.
Life expectancy differs patient to patient.
So my advice in your case is, first stabilize her and then start regular maintenance therapy.
Hope I have solved your query.
If you are not having further queries, please close the conversation and rate the answer.
Thanks.
Lifelong treatment needed
Detailed Answer:
Hello dear, thanks for your follow up question.
PAH is chronic disease. You need to take these drugs lifelong.
It is not curable; it should be managed through life time medicines. So treatment lasts long.
And patient needs psychological support too. With lifestyle modifications (chest physiotherapy, low salt diet) and proper treatment life expectancy with PAH is good.
It basically hampers quality of life. Five year survival with best treatment is 70-80%. But patient becomes physically limited.
And psychological support is must.
Life expectancy differs patient to patient.
So my advice in your case is, first stabilize her and then start regular maintenance therapy.
Hope I have solved your query.
If you are not having further queries, please close the conversation and rate the answer.
Thanks.
Above answer was peer-reviewed by :
Dr. Bhagyalaxmi Nalaparaju
Hello Doctor,
Thank you for the reply, sorry for the persistence. Just wanted to understand in further this particular statement doctor
"It basically hampers quality of life. Five year survival with best treatment is 70-80%. But patient becomes physically limited."
Thank you for the reply, sorry for the persistence. Just wanted to understand in further this particular statement doctor
"It basically hampers quality of life. Five year survival with best treatment is 70-80%. But patient becomes physically limited."
Brief Answer:
quality of life means physical XXXXXXX
Detailed Answer:
Hello dear, Thanks for your question on HCM.
If any patient is under going treatment for any disease, the main expectation of that patient is to be free from the disease if possible or to live his /her life independently with full activities.
This can be true for any chronic disease like diabetes, hypertension etc but not with the PAH.
Patient becomes so dependent on oxygen that he or she has to carry oxygen mask almost 17-18 hours a day. He can not walk or jog as efficient as in the past. Breathlessness restrict all his activities.
In end stages patient feel breathless even on eating and drinking.
So the word Quality is used for all these routine activities. PAH patient can not do his/her routine day to day activities with out oxygen support.
Death is not sudden in PAH patients. They become bed ridden in early stage of disease and remains bed ridden there after. So quality of life is miserable but 5 year survival is good with treatment. But in the bed only.
Hope I have solved your query.
If you are not having further queries, please close the conversation and rate the answer.
Wish her good health.
Thanks.
quality of life means physical XXXXXXX
Detailed Answer:
Hello dear, Thanks for your question on HCM.
If any patient is under going treatment for any disease, the main expectation of that patient is to be free from the disease if possible or to live his /her life independently with full activities.
This can be true for any chronic disease like diabetes, hypertension etc but not with the PAH.
Patient becomes so dependent on oxygen that he or she has to carry oxygen mask almost 17-18 hours a day. He can not walk or jog as efficient as in the past. Breathlessness restrict all his activities.
In end stages patient feel breathless even on eating and drinking.
So the word Quality is used for all these routine activities. PAH patient can not do his/her routine day to day activities with out oxygen support.
Death is not sudden in PAH patients. They become bed ridden in early stage of disease and remains bed ridden there after. So quality of life is miserable but 5 year survival is good with treatment. But in the bed only.
Hope I have solved your query.
If you are not having further queries, please close the conversation and rate the answer.
Wish her good health.
Thanks.
Above answer was peer-reviewed by :
Dr. Vaishalee Punj
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