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Dr. Andrew Rynne

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Suggest treatment for neurofibromatosis

Answered by
Dr.
Dr. Ajay Panwar

Neurologist

Practicing since :2007

Answered : 1794 Questions

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Posted on Sat, 11 Apr 2015 in Lump
Question: CURE OR REMEDY FOR NEUROFIBROMATOSIS
doctor
Answered by Dr. Ajay Panwar 3 hours later
Brief Answer:
No cure as such.Symptomatic treatment.

Detailed Answer:
Hi XXXX,
Thanks for being on healthcaremagic.com.
I am Dr.Ajay Panwar,a neurologist,here to answer your query.

If you would have presented to me as an outpatient,I would have told that there is no cure for neurofibromatosis and the management is mainly symptomatic.The outlines of management are:
1)Tumors can be removed surgically or small ones with laser-for neurological or cosmetic indications.All tumors are not to be removed,like the ones which are attached to such crucial structures which pose a risk to be damaged if the tumor is removed,then such tumors are not removed by the surgeons.
2)Chemotherapy can be given in case of malignant peripheral nerve sheath tumors(This has been a debatable issue).
3)Laser therapy-I already told ,can be used to remove small tumors.It is also used for cutaneous hyperpigmented lesions like port-wine stain.It is not successful for cafe-au-lait spots,however.
4)Blood pressure should be monitored and managed as there is high propensity of hypertension due to pheochromocytoma.Pheochromocytoma if present,can be surgically resected.
5)Bony abnormalities like scoliosis,pseudoarthrosis may need surgery.Physical rehabilitation measures like braces are also used.
6)Periodic eye checkups for associated complications.

Hope I have answered your query.If you have some follow-up questions,I shall be glad to answer else,please close the thread-rate it and write a review.

Above answer was peer-reviewed by : Dr. Vinay Bhardwaj
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