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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Blepharospasm

HI, I have short term mempry impairment X 2.5 years. I have a seizure D/O, treated w/phenobarbital 90 mg/d, movement D/O, Blepharospasm, treated w/ Botox q 3 mos, clonopin 1 mg/AM and was taking Artane 2 mg 1 AM until 3 mos ago. Artane can cause memory loss. I was working as an RN until 2 1/2 yrs ago, unable able to find a position fairly close to where I live. Im unable to drive in the community a tis point as a Community Health RN, which helps me avoid bright lights. I have light sensitivity due to Blepharospasm among other sie effects that I manage. I have had a complete work up by my GP and Movement D/O Neuro MD. Thy. profile WNL as rest of my bld work. I have clean CAT scans and MRI. Both my MDs believe I am depressed, I agree as indicated by my behaviors. I have tried 4 SSRI which incease the spasms in my eyelids. Many of the other antidepressants side effects can cause seizures. Do you have any sugestions ??? I love my work but won t take the chance in driving, esp at night with bright car lights. Thank you in advance for any help. Virginia Hill
Thu, 31 Aug 2017
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Ophthalmologist 's  Response
Hello,I can relate what you must be going through.
Since you are in the medical field ,you must have known about the condition of your disorder in depth.And I am sure all medications you have mentioned above have been given very aptly as per your health requirement.
Blepharospasm is a condition which cannot be cured permanently,but can be temporarily relieved with medications.Since you are already on treatment with Regular Botox injections,which is the most commonly used and preferred treatment among many practitioners,you are on the right track. There are surgical treatments available for the same called Myectomy which is approached only when you are not responding to Botox.

Few things which comes to my mind ,considering your situation is supportive therapy like
1.Wearing tinted sunglasses/dark glasses with ultraviolet blocking which will help you with light sensitivity
2.Involving yourself with support groups(like in BEBRF) will help you find a way to cope up with future activities when you hear others sharing their situation.
3.Finally,try activities that will help to reduce your stress.

I wish I had other solutions/suggestions to help you out,but as a Nurse you must have seen other patients going through situations worser than yours and as you can understand the disease, be strong and try to over come the situation.Become a member of support group,and think of the positive things you can do with what you have.

Hope this is informative and supportive.Take care.
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Suggest Treatment For Blepharospasm

Hello,I can relate what you must be going through. Since you are in the medical field ,you must have known about the condition of your disorder in depth.And I am sure all medications you have mentioned above have been given very aptly as per your health requirement. Blepharospasm is a condition which cannot be cured permanently,but can be temporarily relieved with medications.Since you are already on treatment with Regular Botox injections,which is the most commonly used and preferred treatment among many practitioners,you are on the right track. There are surgical treatments available for the same called Myectomy which is approached only when you are not responding to Botox. Few things which comes to my mind ,considering your situation is supportive therapy like 1.Wearing tinted sunglasses/dark glasses with ultraviolet blocking which will help you with light sensitivity 2.Involving yourself with support groups(like in BEBRF) will help you find a way to cope up with future activities when you hear others sharing their situation. 3.Finally,try activities that will help to reduce your stress. I wish I had other solutions/suggestions to help you out,but as a Nurse you must have seen other patients going through situations worser than yours and as you can understand the disease, be strong and try to over come the situation.Become a member of support group,and think of the positive things you can do with what you have. Hope this is informative and supportive.Take care.