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Where should I go for research on neurofibromatosis?

DOCTOR OF THE MONTH - Feb 2013
Feb 2013
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Answered by

Pediatrician
Practicing since : 2002
Answered : 3176 Questions
Question
I have a grand daughter with Neurofibromatosis. I Iive in North East XXXXXXX and was wondering if there is any group of support or organisation in this area that I could become involved with, perhaps in a fundraising way to help with research into this condition.
Posted Tue, 16 Apr 2013 in Genetics
 
 
Answered by Dr. E Venkata Ramana 40 minutes later
Hi,

Thank you for your query on Healthcare Magic.

There are two support groups :

1.Genetic Support Network of XXXXXXX (GSNV):

Royal Children's Hospital
Flemington Road
Parkville, VIC 3052
P (03) 8341 6315
E YYYY@YYYY

2. NF Australia:

Suite 2, Level 1
84 XXXXXXX Road
DRUMMOYNE
NSW 2047
Ms XXXXXXX Zammit
T 02 9719 3356
YYYY@YYYY

Hope this information will help you to involve with the support groups in a fundraising way to help with research into Neurofibromatosis.

Hope I have answered your query.

Regards.
Above answer was peer-reviewed by
 
Follow-up: Where should I go for research on neurofibromatosis? 15 hours later
Thank you for your prompt reply to my request. I will follow up with these contacts. Regards XXXXXX
 
 
Answered by Dr. E Venkata Ramana 20 minutes later
Hi XXXXXX

You are welcome,

And thank you very much for getting back.

I appreciate your interest to involve with the support groups in a fundraising way to help with research on Neurofibromatosis, which ultimately will help the humanity.

And I wish you and your grand daughter a great health.

And once again I thank you for contacting Healthcare Magic.

Regards.
Above answer was peer-reviewed by
 
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