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Muscle pain, fatigue, weakness, spasms. Done blood test. Have Raynaud's disease. Have high Hb, low iron

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I woke up one morning in XXXXXXX 2008 and thought I was getting the flu and things were never the same since. I had what they believe was an auto immune response and I suffered from muscle aches and pain, fatigue, muscle weakness & spasms. My blood vessels would spontaneously burst for no reason and had jaundice and a slight molar rash that only lasted a day, joint tenderness and stiffness and lots of other crazy symptoms. At one stage I was having a different symptom every week. I had blood tests done and I had a positive XXXXXXX with a nuclear lamin pattern and a titre of 1:320 and every test in the last 5 years have been same until last week...It was 1:640...I was seeing a Rheumatologist and he tested me for all types autoimmune diseases but they were all within normal range or negative. I do understand that it can take years for an actual diagnoses and he did explain that it could take years for the disease to fully come out and to have a definite diagnosis and unless I have any different symptoms or get worse. I had every test you could imagine from blood to xrays, a mammogram and many different types of scans. I have had a number of different med but not much works...I also have Raynaud's and gastrointestinal problems and mild irritable bowl syndrome and hypertension since 2008 and on medication. The XXXXXXX is a nuclear lamin pattern which is occasionally found in SLE, Autoimmune liver and other inflammatory disorders and Anti-phospholipid disease but I know have high hemoglobin and low iron and am anemic and was advised to take iron tablets for 3 months. Should I go back to a rheumatologist?
Posted Mon, 8 Apr 2013 in Blood Disorders
Answered by Dr. Divya Agarwal 1 hour later

Thanks for your query.

Your XXXXXXX titre is definitely high and some of the symptoms do correlate with Lupus.
So your disease definitely comes under the domain of a Rheumatologist.

He will be able to advise medication according to your symptoms and they should be under control.

Certain medication like Hydroxychloroquine, folic acid, calcium and vitamin D should be able to help you.

He was right in saying that sometimes the disease evolves. But 5 years is generally the period by which most of the symptoms pretty much appear. So you need to be treated according to your symptoms at present.

Hope, I answered your query.

Please let me know if there are any other concerns.

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