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Having pain in leg and joints, numbness, memory and hearing problems. Brain mri done. Any solution?

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General & Family Physician
Practicing since : 2000
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I already wrote a whole description but here goes again.
Leg pains, joint pain, and numbness, memory and cognitive problems.
Have trouble recognizing people, sounds and have poor sense of smell. Have trouble understanding what someone is trying to explain to me
Had a spell of vertigo, oscipillia, silent migraines, eyes crossing and nose going numb, jackhammer noises in ear and echoes when I chew (have hearing loss in right ear) all escalated into a severe 24/7 headache where my head felt like it would explode. This all resulted in something popping and gushing fluid in the back of my head. Had neuropsyche tests which resulted in visual working memory and auditory attention difficulties. Had 2 brain MRI's have 5 meningiomas (2 are possibly hemingiomas) have partial empty sella, 2 left side hyperintensities and small blood vessel disease. Have arthritis in neck, right hip and starting in fingers in right hand. Have been b12 deficient and was told several years back I had polythemia vera. Take b12 injections every 2 weeks. Was bit by a tick with a round red ring 13 or so years ago. Only result close to that was a spell of hands swelling and knees swelling along with every gland around my neck swollen. Have had bouts of leg pains since then. My legs are numb most of the time from above the ankles down and I have worn 2 different shoes out and did not even know it for hours. (A sandle and a moccasin) that's how insensitive my feet are. My father died of ALS, his father had a parkinson-like disease and my father's aunt died in her 20's of some type of arthritic condition. I do get psoriasis like spots on me at times. The neurosurgeon I was sent to thinks I have neurofibromotosis and when sent to the neurologist, he said, "you may have it, you may not, there's nothing you can do about it anyways XXXXXXX I do have nodules on the iris' of my eyes. Did have some bouts of chest cramps, hospitalized for some ryhthm problems but found nothing with heart, have had bouts since, but can curtail the pain by bending at the neck and at the waist. New symoptoms are pulsating sensation just left of my belly button that comes and goes and profuse sweating. I was told to do some REIKI and take some feverfew....My gp did put me on 50 mg of elevil to help me sleep and told me I worry too much about my health.
Posted Wed, 22 Aug 2012 in Brain and Spine
Answered by Dr. Divya Kuttikrishnan 3 hours later
Hello there,

Thanks for writing in.

I'm sorry that you have been through a lot . As I can see from the history, you already have been thoroughly investigated and there really isn't anything much that I can do. However, what I am about to say might help you tremendously.

I do believe, atleast to a certain extent the state of mind reflects the state of health.
I would suggest that you sign up for yoga/relaxation/meditation classes. It will help you calm your mind, and overall it is good for the body.

I hope you have a nice day.

Dr. Divya Kuttikrishnan
Above answer was peer-reviewed by
Follow-up: Having pain in leg and joints, numbness, memory and hearing problems. Brain mri done. Any solution? 14 hours later
Actually very little was done other than what they observed from the MRI's. Did have seizure tests and blood tests for Myasthenia Gravis. I had one blood test in 9 months that showed the Rbc, hemocrits and hemaglobin and wbcs all elevated, no follow-up. They keep getting stuck on the multiple brain tumors and don't look into anything else. When they can't pinpoint anything specific, they just say they don't know. I've also had soft tissue tumors removed and had cysts outside of my lung that eventually disappeared. I can't imagine that an unrelaxed "mind" has caused all of these unusual occurances prior and currently.
Is it contradictory to take b12 injections when you were told previously you had polythemia vera?
Answered by Dr. Divya Kuttikrishnan 6 hours later
I'm sorry if you misunderstood what I said.What I meant to say is that ,it is hard for a person not to be bogged down by a multitude of health problems, and hence I have suggested yoga and relaxation.

Most of your symptoms might be attributed to polycythemia and Vitamin B12 defeciency.

Blood tests showing RBC,hematocrit, hemoglobin, WBC elevated is indicative of polycythemia vera. Correcting Vit B12 levels in a patient with polycythemia could result in the over production of red blood cells (RBC). I would advise you to get a complete blood picture(hemoglobin, RBC,WBC,platelet count and hematocrit )done along with Vit B12 levels.

What was your Vit B12 level before receiving the injections?
When was the last Hemoglobin, RBC, hematocrit etc done?
Have you asked your doctor why nothing has been done about polycythemia vera?

Above answer was peer-reviewed by
Follow-up: Having pain in leg and joints, numbness, memory and hearing problems. Brain mri done. Any solution? 13 hours later
yes I think I did misunderstand. The wait and see stance my doctors are taking is bothering me a bit, I'm such a busy person, I can't be bogged down with problems that could be corrected. The b12 levels were in the mid 300's when I started taking the shots once a month. The same doctor that told me I had polythemia vera a year or so prior is the doctor that gave me the b12 shots. It helped with the leg pains and the fatigue. After 4 months or so, it was recommended that I give myself an injection every 2 weeks because the worst leg pains and fatigue returned before the month was up. (I'm never not fatigued or in pain, but the b12 takes it to a point where it is very tolerable.) During the bad spell with the vertigo, oscipillia etc, I was taking the shot every 2 weeks. the last shot was in early March, the pop in the back of my head was about the 2 weeks later in March and that was then I had the first blood test in a very long time. I don't have the exact numbers anymore but the wbc was in the 13 range, the rbc were close to 6, the hemaglobin was over 16 and the hemocrits were around 47 as I recall. B12 was 11,000 I know that for sure, and my sed rate was 4.
I stopped taking b12, my legs were good but cognitive functioning went down hill.
I had the neuropsyche tests at the end of May - anything that needed to be explained to me or anything I had to remember by sight ended up with poor scoring.
Mid XXXXXXX the legs went, couldn't hardly move them-started back on the b12. After the 3rd shot I had vertigo (again) a bad headache, and a horrible taste in my mouth but I could walk and had very little pain in legs. I asked my neurologist about taking the b12 when I was told I had polythemia vera and he said he wasn't there to answer all of my medical questions and I asked my gp and she said. "b12 is b12 and polythemia vera is too many red blood cells. I always felt the b12 was helping but for some reason, with the little that I know, I think it caused a lot of other things to come up.
Thank you.
Answered by Dr. Divya Kuttikrishnan 13 hours later
Vertigo, headache,visual disturbances, fatigue could be due to polycythemia vera. Have the doctors suggested phlebotomy in the management of polycythemia vera?

The leg pains, numbness, cognitive and memory problems,fatigue might be attributed to your vitamin B12 defeciency.

You need the Vit B12 to make your leg pain and cognitive problems better ,but however B12 could cause an increase in the red blood cell production and worsen the polycythemia.

Your last blood test was in March , that means around 5 months back. I feel it would be better if you could visit a hematologist and get the blood tests repeated once again. Confirm the diagnosis of polycythemia and ask for the appropriate management.

Your neurosurgeon had mentioned the possibility of neurofibromatosis. If so , the orange nodules in the iris could be due to Lisch nodules, which usually doesn't cause any harm. However, for confirmation you might want to visit the ophthalmologist.

Hope this helps.

I would like to know about your progress.

Above answer was peer-reviewed by
Follow-up: Having pain in leg and joints, numbness, memory and hearing problems. Brain mri done. Any solution? 8 hours later
wow thank you so much. I always felt I had more than one thing going on and couldn't put it into words. The way you explained that makes so much sense. I don't know why no one here with our big medical centers could put that out to me before. I am going to an opthalmologist tomorrow and will look for a hematologist that will help me. Thank you and I will let you know, thanks again.
Answered by Dr. Divya Kuttikrishnan 6 hours later
You are welcome.

I hope you get well soon. Take care.
Above answer was peer-reviewed by
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