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Getting sudden seizures, on medication. Had febral seizure as toddler. Suggestion?

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Pediatrician, Pulmonology
Practicing since : 2003
Answered : 1710 Questions
Hello Dr. Grief - I don't know where to begin and maybe I'm in the wrong area. My daughter 42 years old has had at least 4 seizures since January. Here latest was at Canobie Lake Park in NH and collapsed in my arms but hit her head again. She is seeing a Neuologist in Laconia NH but she called to tell him this happened and they did have her blood tested but did not ask to see her. At the park the staff was slow to send their EMS staff and when we got outside the gates there was an ambulance but they said they did not call them and must have been someone walking by the incident. My daughter was semi out of it and refused to go in the ambulance because of her mounting insurance bills. The neuologist had her get blood tests and adjusted the medication. Due to all the privacy laws I can't do anything but vent. Nobody wanted to see her? Her primary care is in Ossipee NH and I feel they may as well be in a 3rd world nation, but not even the Neuologist wanted to see her just adjust the medication. Obviously there is much to this story and she can't drive for one year after having been in an accident a month or so ago because she had a seizure. I guess my question is should I contact a Boston MA euologist for an appointment ASAP? I'm so concerned, she has gone from a vibrant Mom of 2 boys and very active to a shell of her former self. She had febral seizures as a toddler and I guess they have come back to haunt her. Thank you so much for listening to a very worried Mom. She is on 2 different medications, the first one made her very tired so they added another which they have now upped.
Posted Wed, 18 Sep 2013 in Brain and Spine
Answered by Dr. Arun 3 hours later

Thanks for writing to health care magic.

I understand that your daughter has been getting sudden seizures of late. I strongly feel that your daughter has epilepsy ie seizure disorder. As she had febrile seizures in her childhood, its possible that she has a seizure disorder now. though it's usually rare for kids with febrile seizures to develop seizure disorder later in life.

At this point of time where she is getting breakthrough seizure, I strongly advice her to continue both the medicines as upped by your physician. She needs EEG to identify the type and focus and blood test to know her antiepileptic drug levels. I am sure the last doctor performed test to determine drug level.

If the test are not done yet, you may consult Boston neurologist and confirm that the medicines have been rightly selected and are in the appropriate dose. You can also ask for drug levels if not already tested to make sure the seizure medications are in adequate level in the blood.

Hope I answered your query. Let me know if you need clarifications.

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