What is best treatment for flailing arm syndrome, torticollis, fibromyalgia, restless legs syndrome, chronic fatigue, bilateral RSI, lumbosacral spinal arthritis? Pain I suffer is excruciating, even blinking and breathing. Dystonia causes me to walk "like a dork". Have had this disgusting condition since 2004 - trauma-based when I moved from the Gold Coast to Sydney. Also contracted fibromyalgia 1997 moving house.

Fast directional change is a bother, such that I hit walls, doors, cupboards, shoulder adduction paying for purchases in a shop has my face centimetres from a surface. Recently had mild muscle paralysis in upper legs from 1 Sifrol tablet. Sydney neurologist had not seen the phenomenon of dystonia only in the forward walk. Invited to appear before a panel of 8 neurologists at St George Private Hospital, Kogarah. They had no suggestions.

Upon moving to Canberra June 2009, I have been seen by Dr. C. Das, Dr. R. Malhotra, Dr. Y. Gawarikar and Associate Professor C. Das - all neurologists. Understandably reticent to administer botox after Dr. Clouston's opinion; so I asked may I try as I have nothing to lose. As a result, I now eat bread as it used to become stuck from dysphagia (videofluoroscopy revealed severely delayed swallow initiation). Saliva overload from dysphagia helped to a minor degree by botox. Wonder if DBS operation an answer, which I realise is radical and expensive surgery. Dr. S. Tisch @ St. Vincent's Private Hospital will perform this if I am able to afford. Awaiting my health fund to contact re. their contribution - Medicare pays 75%; Medibank Private a measly 25%.

I respectfully seek any help you can provide.

Warm wishes and many thanks,

Lorna Dyke