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Dr. Andrew Rynne
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Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Causes Pain In Head, Back And Legs Before Having Seizures?

My daughter has been having siezures for a couple of months and the doctors are not sure if they are really siezures or not. My question is she can remember everything that happens when she has one and she often complains about her head and her back and legs hurting before and after she has one. All test that they have ran have came back normal. She also has Down s syndrome.
Thu, 4 Jul 2019
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Neurologist 's  Response
Hello,

Non-epileptic seizure disorder is the term given to things that look like seizures but turn out not to be generated from the brain due to any electrical aberrancy.

The fact that she has detailed memories of things occurring during the event makes it more unlikely that these are true electrical disturbances of the brain.

This is because typical seizure patients have little to no recollection of anything that happened during the event and even just before and after can be a blur.

Anybody who can describe what is going on before, during, and after, is registering memories due to intact consciousness and this by definition cannot be part of anything such as an absence or grand mal type of event.

I would recommend a VIDEO EEG MONITORING situation which can be done in a hospital for several days if her attacks are frequent. This is usually the best way to rule out the true epileptiform activity.

There is also a device called an AMBULATORY EEG recorder which can be worn at home for several days then, brought back to the doctor for analysis which will monitor her 24/7.

All she has to do is press a button when she feels something starting to happen and the monitor does the rest.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Regards,
Dr Dariush Saghafi, Neurologist
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What Causes Pain In Head, Back And Legs Before Having Seizures?

Hello, Non-epileptic seizure disorder is the term given to things that look like seizures but turn out not to be generated from the brain due to any electrical aberrancy. The fact that she has detailed memories of things occurring during the event makes it more unlikely that these are true electrical disturbances of the brain. This is because typical seizure patients have little to no recollection of anything that happened during the event and even just before and after can be a blur. Anybody who can describe what is going on before, during, and after, is registering memories due to intact consciousness and this by definition cannot be part of anything such as an absence or grand mal type of event. I would recommend a VIDEO EEG MONITORING situation which can be done in a hospital for several days if her attacks are frequent. This is usually the best way to rule out the true epileptiform activity. There is also a device called an AMBULATORY EEG recorder which can be worn at home for several days then, brought back to the doctor for analysis which will monitor her 24/7. All she has to do is press a button when she feels something starting to happen and the monitor does the rest. Hope I have answered your query. Let me know if I can assist you further. Take care Regards, Dr Dariush Saghafi, Neurologist