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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Are The Symptoms Of Neuroglycopenia?

I have experienced staring spells, seizures, and now fainting since I was 7 1/2 years of age, I am now 74. A neurologist misdiagnosed me as having petite mal epilepsy. He prescribed Dilantin. The spells continued. For 55 plus years doctors the doctors tried many other AEDs and the spells/seizures continued. My EEGs are always normal. I notice when I was in my early teens that overwhelming emotions (usually anger, stress, frustration) usually precluded a seizure. A new acquaintance who was a Shaklee distributor and vitamin fanatic suggested it sounded like hypoglycemia to her. To prove her wrong and shut her up I went on the low blood sugar diet. After 3 weeks on the diet the seizures stopped. Eight weeks into the diet a friend talked me into having a piece of chocolate cake. 10 minutes after eating the cake I had a seizure. I had gone to doctors, read books, etc. and decided it was only the power of suggestion that caused the seizure and went off the diet. By this time ( I was 30) I had been told it was hysteria, neurosis, dissociation, and PTSD. I withdrew from all AEDs and the seizures continued on every 2 weeks as usual. While researching recently I ran across the word neuroglycopenia that perfectly describes my symptoms. I m back on the LBS diet since January this year and have been seizure free. My blood sugar is normal and I m on a blood thinner, so I m cautious about having a spinal tap; however I would be willing with the doctor who is familiar with neuroglycopenia. A few nights agao I fainted after eating several pieces of sgar-free candy with aspartame in it. I heard the next night on the news that aspartame and other sweetenrs are not as safe as once thought. Do you know of any medical doctor or research facility in Southern Califonia who is into the study of neuroglycopenia? Thank you, Julia Atencio
Thu, 28 May 2020
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Addiction Medicine Specialist 's  Response
Hello,

Low blood sugar is testable. If the sugar is low then it is there, and if it is not low then it is not. A glucometer or glucose tolerance test would demonstrate it.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Regards,
Dr. Matt Wachsman
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What Are The Symptoms Of Neuroglycopenia?

Hello, Low blood sugar is testable. If the sugar is low then it is there, and if it is not low then it is not. A glucometer or glucose tolerance test would demonstrate it. Hope I have answered your query. Let me know if I can assist you further. Take care Regards, Dr. Matt Wachsman