Thank you. I am a grandmother of a 9 month baby boy who was born 2 months prematurely. He was hospitalized his first month and has been a slow grower (just under 14lbs at 9 months) which is caused in part by GERD. His parents have taken him to multiple practitioners who have tested him for cystic fibrosis, and have him scheduled for a genetic test. He is delightful in that he is very personable, engaged with others, smiling, laughing and meeting some of his milestones such as sitting by himself. Peditritions tell us that he is developing in ways typical for a preemy and not to worry. But just in case we should have him go through genetic screening. Ever sense the mention of doing genetic testing, I have been noting a series of traits that now concern me:
wide spacing between the eyes, high narrow palate, early teething (he has 8) tenses up and shakes when excited, holds mouth open while shaking something, seems highly active, small chin, high forehead. He has had eating problems which seem to be related in his interest in everything else. All these concerns are driving his parents crazy and their stress can't help either. He is a beautiful child and I am so concerned that his life may not be normal. I hope to prepare his parents if thats the case.