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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest treatment for Stevens Johnson syndrome

yes. I GOT STEVENS JOHNSON SYNDROME iast Nov. with blisters covering my intire face, groin and feet. Also had upper chest and upper back spotty with them. My left cheek started to seperate and I actually put band-aids to keep it together. All the skin came off my left ear and my head peeled with alot of hair lodt. My eyes are getting very blured now. I went to my doctorright away and stopped taking that medicine called lamotrigine. Was missed diagnose and Ive not been treated by anything that helped.Ive had clyndamycine and bactrome. I still burn all over under my skin after the skin staff infections . Did not get rid of staff until the following june. Now it keeps coming back over and over,that is the mrsa staff. Im having hard time doing this right now.My skin just burns all the time with freezing chills .My life has been taken away from me because I still have not got treated1yr. 3mon. I dont know what to do because the doctor did not get me help right away and every time I got sulfur antibiotics, it burns worse under my skin now than when I had silver dollar size blisters with the s/j/s. The s/j/s only ran a course of 4 or 5 wks.In the 4th month I urinated pure blood 6or7 times. Ever since then Ive burned while urinating. There is a ton of other things to mention. Ive thought about going on T.V. about this because of the fda and what little kids go thru.Just so somebody can make thier blood money. I want to know over a yr. now, I can t find any one to help me and I feel like I have a sever sunburn. Please, with murcy, tell me what I can do.Live in south Jersey and I don t know how long I can do this, until it kills me.I feel it kiling me. thank any of you doctors for just listening to me.Please tell who I can see to get the burn gone and save my eyes. Dying in south jersey
Mon, 20 Apr 2020
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General Surgeon 's  Response
Hello,

The Stevens Johnson syndrome is related to development of hypersensitivity response via presence of super antigen in the blood. My guidelines at present:
- Control of MRSA infection as per the culture report and antibiotics
- Sterile dressing care for the healed or partially healed lesions
- Avoid sun exposure
- Avoid itching and wearing tight garments
- Control of blood sugar
- Avoid triggering drugs as Lenotrigine or others
- Antihistamine as phexophenadine or cetrizine tablet after meals

Hope I have answered your question. Let me know if I can assist you further.

Regards,
Dr. Bhagyesh V. Patel, General Surgeon
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Suggest treatment for Stevens Johnson syndrome

Hello, The Stevens Johnson syndrome is related to development of hypersensitivity response via presence of super antigen in the blood. My guidelines at present: - Control of MRSA infection as per the culture report and antibiotics - Sterile dressing care for the healed or partially healed lesions - Avoid sun exposure - Avoid itching and wearing tight garments - Control of blood sugar - Avoid triggering drugs as Lenotrigine or others - Antihistamine as phexophenadine or cetrizine tablet after meals Hope I have answered your question. Let me know if I can assist you further. Regards, Dr. Bhagyesh V. Patel, General Surgeon