I am 51yr. old female...MY blood brother, is Barry E.Breen/liver&heart transplant recipient/due to amyliod/attr fap variable,,I have been diognoised with the same,by Dr.Merlin Benson.I now am experiancing neuro interuptions in my hands,is there any treament ,or trials going on in CA. i AM DESPERATE.i WATCHED MY SISTER DIE,,WITH NO DIAGNOSIS OR TREATMENTI know my brother was quite blessed,to get the two trans.I am also experiancing heart irethmia , not all the time but frequent enough for concern...where can I seek help that wont lock me away and,or pat me on the back and send me home without any discussion of treatment????