My daughter is 13 years old, has pressure and swelling on the brain, a lumbar puncture revealed pressure of 49 for which she has been on medication for. She also has a hemangioma in the ganglion nerve, resulting in partial facial paralysis and most recently we have noticed a palm sized soft, squishy area at the back of her head. An X Ray didn't reveal anything. The soft spot is tender around the edges. We have seen neurologists, ENT surgeons, eye specialists etc however although they all agree something is wrong, nobody can pinpoint anything in particular and there is not much being done. Surgery was cancelled on the Hemangioma for being too risky. Can you please help?