I am a 18 year old survivor of TOF. I had it when I was born and unfoturaly for me had 4 surgreies to repair it. However they did come up with a way to fix it by a catheterzation as along as its not a replace of a vavle. I could not get it cause my vavle was broken from my first surgrey, but if the vavle is not broken then it can be done. Not quite sure if all hospitals do it but there is no harm in asking. If you have anyother questions about it I will be glad to answer as much as I know- Missy. M

Hope this helps a little :) Good luck to you and your family

part of tetralogy of fallot means that major vessels of the heart are transposed or are not in the correct places, if not surgically repaired, your baby's circulation will only worsen, because there is not enough blood directed to the lungs to be oxygenated to supply the growing tissues of the organs and brain.... please follow your doctor's advice soon. The mortality rate is 95% for children over the age of 10 who are not surgically repaired.