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Dr. Andrew Rynne

Family Physician

Exp 50 years

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Hi I have lived with hydrocephalus for 52 years(born with

Hi I have lived with hydrocephalus for 52 years(born with it).I live below sea level in Death Valley. Recently I have had a mild to moderate headache. I saw my neurosurgeon and he saw no problems on my car can. Should I be worried or should I see a neurologist?
Tue, 30 Oct 2018
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doctor1 MD

I have had a shunt for 52 years because I was born with hydrocephalus, is it a problem if I get dizzy spells? My neurologist has adjusted the flow in my shunt a few times, should I see him to adjust it again or just live with it, the dizzy spells are not everyday but every few days?

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doctor1 MD

Hi. I am new to this forum and fairly new to hydrocephalus. I was diagnosed almost a year ago. This is not a medical question - more personal - but I am sure there are others that have had the same response that I have had. When I tell some one that I have hydrocephalus they get this blank look on their face because they don t know what it is. I also have to tell people I have parkinson disease. They are more familiar with that one. I don t mind telling them about the hydro tho. My problem is that I have been communicating for a couple of days with a man on line, that now wants to meet me. He will be able to tell right away that something is wrong. I wish I had not responded to his message but it is too late now. Should I have already told him I am sick? I will feel bad for him if I just disappear. Is there anything you can suggest? I ve never been in a situation like this. But I was lonely, and I am 66 yrs old and he is 70 yrs. Please suggest something.

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