Suggest treatment for neurofibromatosis

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Posted on Thu, 11 Dec 2014 in Brain and Spine
Question: hello sir.
I am from west bengal, and facing with a disease called by local docter neurofibromatosis. as I am 25 years old and still unmarried the tumor are increasing day by with there size and i have around 50+ tumor in my body... plz..plz help me out.. any possibility
doctor
Answered by Dr. Shailja Puri 13 minutes later
Brief Answer:
Surgery not feasible,chromosomal study required

Detailed Answer:
Hello,
Thanks for posting your query on HealthcareMagic.

Neurofibroma is a benign tumor of nerve.
When multiple tumors are present, the condition is called neurofibromatosis.
A single or solitary tumor can be removed surgically, however, multiple tumors are difficult to treat.
This is because the distribution of tumor is such that it is difficult to remove all the tumor as they are confluent and arise from single large nerve trunk.
You will require some more investigations to rule out a neuroendocrine syndrome called neurofibromatosis type 1 and neurofibromatosis type 2.
These investigations involve chromosomal analysis.
I suggest you to consult a physician at tertiary care centre where these molecular studies are available.
I am sorry to say but you will have to live up with the condition.
Good luck and good health.

Dr Shailja P Wahal



Above answer was peer-reviewed by : Dr. Raju A.T
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Answered by
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Dr. Shailja Puri

Pathologist and Microbiologist

Practicing since :2006

Answered : 7886 Questions

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