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Hello Dr. Saghafi. I Hope You Are Having A Great

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Posted on Thu, 2 May 2019
Question: Hello Dr. Saghafi. I hope you are having a great weekend. I arrived home the following day after the appointment. The twitching is still occurring, but I’ve noticed a persistent twitch in the arch of my right foot. It’s similar to the twitches in my right calf. Also, I notice more abundant twitches (almost like a spasm) in muscle areas after I use them (nearly immediately). I am getting the labs done Monday. I’m not stressed as much since your workup, but I haven’t seen any improvement - actually my foot (right) seems to be a new issue. Any advice is appreciated.
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Follow up: Dr. Dariush Saghafi (0 minute later)
Hello Dr. Saghafi. I hope you are having a great weekend. I arrived home the following day after the appointment. The twitching is still occurring, but I’ve noticed a persistent twitch in the arch of my right foot. It’s similar to the twitches in my right calf. Also, I notice more abundant twitches (almost like a spasm) in muscle areas after I use them (nearly immediately). I am getting the labs done Monday. I’m not stressed as much since your workup, but I haven’t seen any improvement - actually my foot (right) seems to be a new issue. Any advice is appreciated.
doctor
Answered by Dr. Dariush Saghafi (22 hours later)
Brief Answer:
Get tests done & see what they show. Clearly no criteria for ALS by exam

Detailed Answer:
Good morning sir and thank you for the question regarding your foot and other areas of twitching. I'm just getting in from an out of town trip for keeping the game of rugby alive and well so pardon the lateness in the response. Hoping as well that your rest on the evening of our visit was satisfactory and just what the doctor ordered after that rough day you had getting to XXXXXXX

Since my working diagnosis is NOT ALS or some other motor neuron disease (due to the lack of salient neurological features and lack of history) to my way of thinking....there's no need to "do much" at this point except get the testing done whenever convenient for you and then, see what the results show. Even though one might be tempted to put a FINAL diagnosis on this such as BFS, or something else...we still have to rule out biochemical things as I described. I don't have your chart in front of me as we speak since I'm answering you from the hospital...but where did we finally land with doing the MRI study of the head? Did we say to get that as well...or were we putting that on hold until the labs got done? We talked about several options and I'm just blanking a bit on what we ultimately settled on....but I know I gave you all the CORRECT paperwork out the door! LOL.

I will reinforce with you the fact that I do not believe an electrical study is necessary since it is not functionally able to either rule in or out any type of MND. The only thing an electrical study can do is give us information regarding LOWER MOTOR NEURON activity which by clinical criteria is perfectly normal. No motor neuron can be diagnosed or excluded solely on the basis of electrical study results. I'm hopeful that the neurologist you are scheduled to see is familiar with how we go about diagnosing these things looking at the El Escorial Guidelines which are quite detailed and speak quite specifically on how electrical studies SHOULD BE utilized as part of a workup if they are chosen to be included.

Once those items of interest have been obtained and looked at for anything that could be addressed as "out of balance" or "deficient" then, we can move on to making some final claims as to the diagnosis of BFS. If that were to be the final conclusion then, muscle twitching/after use near spasms....unfortunately, can continue for weeks to months to years. I have a patient who has had a diagnosis of BFS over 9 years...and there are described cases in the literature of longer than that....so, as I stated before, BFS is not a totally satisfactory diagnosis for me...but if it is truly the best one available then, we're going to choose it and do what we can to slow activity down but recognize that as a clinical entity it is frequently refractory to treatments using medications and that's when we may turn to things such as BIOFEEDBACK, ACUPUNCTURE, CBT, maybe something new fangled like TRANSCRANIAL MAGNETIC STIMULATION.

I hope this gives you some more information on what's going on with your right foot though I'll be the first to admit that I don't have a great explanation to offer as to how the twitching all got started except for that injury you mentioned to your calves with a spreading phenomenon. it's really speculation in the end...but what I am sure about is that your neurological examination did not support evidence for ALS.

So once again, many thanks for reaching back out after our visit...and even MORE thanks for having spent so much time and other resources to come out to XXXXXXX Would you like a condensed version of the El Escorial Guidelines that I think would help support what I've said up top? You can find the entire set of the work group's recommendations but I don't think you really need ALL of the information...some of it is really geared toward physician specialists. But there are certain segments which are very easily readable by the non-medical community and I'm sure you'll understand it by way of what's happening in your body. Lemme know.

Cheers!

This consult required 41 minutes of professional time reading, interpreting, researching, and synthesizing a relevant response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Get tests done & see what they show. Clearly no criteria for ALS by exam

Detailed Answer:
Good morning sir and thank you for the question regarding your foot and other areas of twitching. I'm just getting in from an out of town trip for keeping the game of rugby alive and well so pardon the lateness in the response. Hoping as well that your rest on the evening of our visit was satisfactory and just what the doctor ordered after that rough day you had getting to XXXXXXX

Since my working diagnosis is NOT ALS or some other motor neuron disease (due to the lack of salient neurological features and lack of history) to my way of thinking....there's no need to "do much" at this point except get the testing done whenever convenient for you and then, see what the results show. Even though one might be tempted to put a FINAL diagnosis on this such as BFS, or something else...we still have to rule out biochemical things as I described. I don't have your chart in front of me as we speak since I'm answering you from the hospital...but where did we finally land with doing the MRI study of the head? Did we say to get that as well...or were we putting that on hold until the labs got done? We talked about several options and I'm just blanking a bit on what we ultimately settled on....but I know I gave you all the CORRECT paperwork out the door! LOL.

I will reinforce with you the fact that I do not believe an electrical study is necessary since it is not functionally able to either rule in or out any type of MND. The only thing an electrical study can do is give us information regarding LOWER MOTOR NEURON activity which by clinical criteria is perfectly normal. No motor neuron can be diagnosed or excluded solely on the basis of electrical study results. I'm hopeful that the neurologist you are scheduled to see is familiar with how we go about diagnosing these things looking at the El Escorial Guidelines which are quite detailed and speak quite specifically on how electrical studies SHOULD BE utilized as part of a workup if they are chosen to be included.

Once those items of interest have been obtained and looked at for anything that could be addressed as "out of balance" or "deficient" then, we can move on to making some final claims as to the diagnosis of BFS. If that were to be the final conclusion then, muscle twitching/after use near spasms....unfortunately, can continue for weeks to months to years. I have a patient who has had a diagnosis of BFS over 9 years...and there are described cases in the literature of longer than that....so, as I stated before, BFS is not a totally satisfactory diagnosis for me...but if it is truly the best one available then, we're going to choose it and do what we can to slow activity down but recognize that as a clinical entity it is frequently refractory to treatments using medications and that's when we may turn to things such as BIOFEEDBACK, ACUPUNCTURE, CBT, maybe something new fangled like TRANSCRANIAL MAGNETIC STIMULATION.

I hope this gives you some more information on what's going on with your right foot though I'll be the first to admit that I don't have a great explanation to offer as to how the twitching all got started except for that injury you mentioned to your calves with a spreading phenomenon. it's really speculation in the end...but what I am sure about is that your neurological examination did not support evidence for ALS.

So once again, many thanks for reaching back out after our visit...and even MORE thanks for having spent so much time and other resources to come out to XXXXXXX Would you like a condensed version of the El Escorial Guidelines that I think would help support what I've said up top? You can find the entire set of the work group's recommendations but I don't think you really need ALL of the information...some of it is really geared toward physician specialists. But there are certain segments which are very easily readable by the non-medical community and I'm sure you'll understand it by way of what's happening in your body. Lemme know.

Cheers!

This consult required 41 minutes of professional time reading, interpreting, researching, and synthesizing a relevant response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
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Follow up: Dr. Dariush Saghafi (59 minutes later)
Thanks Dr. Saghafi. I believe we also mentioned stress as being a culprit - would that be correct? I have been doing quite a bit of walking and with that, my calves and hamstrings have been very tight, causing some additional twitching. So, is stress a possible cause of the generalized twitching? I have been under extreme pressure for about six months now. I’m having the labs done today and we did conclude on getting the MRI.

Thank you for your reassurance against mnd - I’ve been excessively worried about it and must admit that I have worked myself up with fear for four weeks - it’s hard for me mentally to fully put the fear behind me. I’ll start therapy soon also. I’m glad you had a great and safe weekend. I’ll keep you informed of my results. Thank you
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Follow up: Dr. Dariush Saghafi (0 minute later)
Thanks Dr. Saghafi. I believe we also mentioned stress as being a culprit - would that be correct? I have been doing quite a bit of walking and with that, my calves and hamstrings have been very tight, causing some additional twitching. So, is stress a possible cause of the generalized twitching? I have been under extreme pressure for about six months now. I’m having the labs done today and we did conclude on getting the MRI.

Thank you for your reassurance against mnd - I’ve been excessively worried about it and must admit that I have worked myself up with fear for four weeks - it’s hard for me mentally to fully put the fear behind me. I’ll start therapy soon also. I’m glad you had a great and safe weekend. I’ll keep you informed of my results. Thank you
doctor
Answered by Dr. Dariush Saghafi (11 hours later)
Brief Answer:
Stress can clearly be an underlying cause for fasciculations

Detailed Answer:
But whether or not it fully explains the picture is what I'd like to determine. Being a LITTLE suspicious is always a good thing...if you're interested in not being taken by XXXXXXX by something "unexpected" due to error just because it's easier to ascribe things to nervousness/anxiety, right?

Certainly, I believe that your calves may be somewhat hypersensitized to a lot of physical exertion and as a result may demonstrate not just fasciculation activity but also either cramping or spasms if severe enough. I'm glad we're doing the MRI because I just want to look a little bit at the brain and see if there's anything that explains that orbiting we talked about or is it just a postural thing?

I'm also glad that you are going to get to the work of coming up with a relaxation routine to follow. Honestly, I'll bet that 90% of the population of the WORLD could HUGELY benefit from doing a 20 minute daily routine of stress relief and tension drain. I'll bet that can put your body in such a state of chemical and hormonal equilibrium that half of a person's problems during waking hours wouldn't even be considered problems, they'd be that relaxed.....but as Western beings....we look at that type of thing as "nonsense" and not "real medicine...." The Chinese have the ticket man.....Tai Chi every morning....and as a GROUP! I mean, think about it....virtually the entire country gets involved.....How does an entire country (the size of China yet) accomplish something like this.....but we as a country cannot come to a definitive community and social consensus that KIDS SHOULD NOT BE KILLING KIDS with weapons in school. Oh, sure...in principle everyone agrees that is a bad thing....but accomplishing it no matter the sacrifice or cost...well, that's where people have to "think about it some more...." But China can do NATIONAL AEROBICS daily....and their people are typically, calm, collected, cool in the heat of an argument, but do they SOUND MAD when they speak to each other just because of the way their language is set up....isn't that true???? LOL!

Now, I'd also like for you to check out this link. I couldn't have asked for a better little summary that I believe incorporates virtually everything we've talked about or I've told you typically occurs when looking at BFS, long term expectations, treatment options, and relationship to other things that are more sinister such as MND, etc. This really almost mimics word for word what you and I have been discussing over the last week since I've seen you. Cheers!

https://facty.com/conditions/musclar/life-with-benign-fasciculation-syndrome/?style=quick&utm_source=adwords&utm_medium=c-search&utm_term=benign%20fasciculation%20syndrome&utm_campaign=f-h-usa-what-is-benign-fasciculation-syndrome-desktop&gclid=Cj0KCQjw19DlBRCSARIsAOnfRehazyPb3Yg0NYnk6cQcit3tGjNdMyDk3NEX9YljhlnK6PTFcrploGoaAlPAEALw_wcB

Please don't forget to turn out the lights when you leave and put a small bit of feedback in the critique box with an appropriate STAR RATING.....Every one of those comments that are POSITIVE means I get a bigger bag of PEANUTS when it comes time to be rewarded for hopefully making you feel better! LOLOLOL!!

This consult required 73 minutes of professional time reading, interpreting, researching, and synthesizing a relevant response.
Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
doctor
doctor
Answered by Dr. Dariush Saghafi (0 minute later)
Brief Answer:
Stress can clearly be an underlying cause for fasciculations

Detailed Answer:
But whether or not it fully explains the picture is what I'd like to determine. Being a LITTLE suspicious is always a good thing...if you're interested in not being taken by XXXXXXX by something "unexpected" due to error just because it's easier to ascribe things to nervousness/anxiety, right?

Certainly, I believe that your calves may be somewhat hypersensitized to a lot of physical exertion and as a result may demonstrate not just fasciculation activity but also either cramping or spasms if severe enough. I'm glad we're doing the MRI because I just want to look a little bit at the brain and see if there's anything that explains that orbiting we talked about or is it just a postural thing?

I'm also glad that you are going to get to the work of coming up with a relaxation routine to follow. Honestly, I'll bet that 90% of the population of the WORLD could HUGELY benefit from doing a 20 minute daily routine of stress relief and tension drain. I'll bet that can put your body in such a state of chemical and hormonal equilibrium that half of a person's problems during waking hours wouldn't even be considered problems, they'd be that relaxed.....but as Western beings....we look at that type of thing as "nonsense" and not "real medicine...." The Chinese have the ticket man.....Tai Chi every morning....and as a GROUP! I mean, think about it....virtually the entire country gets involved.....How does an entire country (the size of China yet) accomplish something like this.....but we as a country cannot come to a definitive community and social consensus that KIDS SHOULD NOT BE KILLING KIDS with weapons in school. Oh, sure...in principle everyone agrees that is a bad thing....but accomplishing it no matter the sacrifice or cost...well, that's where people have to "think about it some more...." But China can do NATIONAL AEROBICS daily....and their people are typically, calm, collected, cool in the heat of an argument, but do they SOUND MAD when they speak to each other just because of the way their language is set up....isn't that true???? LOL!

Now, I'd also like for you to check out this link. I couldn't have asked for a better little summary that I believe incorporates virtually everything we've talked about or I've told you typically occurs when looking at BFS, long term expectations, treatment options, and relationship to other things that are more sinister such as MND, etc. This really almost mimics word for word what you and I have been discussing over the last week since I've seen you. Cheers!

https://facty.com/conditions/musclar/life-with-benign-fasciculation-syndrome/?style=quick&utm_source=adwords&utm_medium=c-search&utm_term=benign%20fasciculation%20syndrome&utm_campaign=f-h-usa-what-is-benign-fasciculation-syndrome-desktop&gclid=Cj0KCQjw19DlBRCSARIsAOnfRehazyPb3Yg0NYnk6cQcit3tGjNdMyDk3NEX9YljhlnK6PTFcrploGoaAlPAEALw_wcB

Please don't forget to turn out the lights when you leave and put a small bit of feedback in the critique box with an appropriate STAR RATING.....Every one of those comments that are POSITIVE means I get a bigger bag of PEANUTS when it comes time to be rewarded for hopefully making you feel better! LOLOLOL!!

This consult required 73 minutes of professional time reading, interpreting, researching, and synthesizing a relevant response.
Note: For further follow up on related General & Family Physician Click here.

Above answer was peer-reviewed by : Dr. Chakravarthy Mazumdar
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Dr. Dariush Saghafi

Neurologist

Practicing since :1988

Answered : 2473 Questions

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Hello Dr. Saghafi. I Hope You Are Having A Great

Hello Dr. Saghafi. I hope you are having a great weekend. I arrived home the following day after the appointment. The twitching is still occurring, but I’ve noticed a persistent twitch in the arch of my right foot. It’s similar to the twitches in my right calf. Also, I notice more abundant twitches (almost like a spasm) in muscle areas after I use them (nearly immediately). I am getting the labs done Monday. I’m not stressed as much since your workup, but I haven’t seen any improvement - actually my foot (right) seems to be a new issue. Any advice is appreciated.