Welcome to HealthcareMagic.
I can understand your worry about it.If you have it for one limb/two limbs
, there are chances that you have lymphoedema .This can be due to infection by worm like filaria
or due to the vessels itself.As you say you have undergone evaluation of the same , its likely to be caused by vessels itself.
With more details we can come to a diagnosis regarding that.
You should visit a General surgeon
for re evaluation and to discuss surgery options if any.