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Suggest Treatment For A Child In Myxe Dema Coma
My son was intubated because he went in to a myxe dema coma. I was a stickler about keepin him on propofol because he had been HARD to extubate before, several times before. After nine days his abdomen bloated so severely that they wanted to cut him open and leave him open because he was born with Prune Belly syndrome and had MANY surgeries during his lifetime. We decided to let the pulmonologist extubate and let him pass. He had recieved a new kidney just shy of a year before this and the bloating had cut off his blood supply and ruined the kidney. I am tormented. I feel it was my fault.
Fri, 1 Dec 2017
Hello,
I am so sorry for your loss. You must be agonized .
No it is not your fault. We doctor's do take the parents requests into consideration but not to the extent where it interferes with treatment.
So it was the doctor's call. I am sure you did your best to keep your son alive as did the doctors.
I have no doubt in my mind that all you wanted was for your son to be healthy and fine.
Multiple surgeries along with an underlying congenital malformation has a very poor prognosis.
Please don't blame yourself. He is in a better place.
Try to get closure by talking to his doctors and other parents in a similar situation.
The pain will always remain but will take a backseat and heal with time.
hope you feel better and move on
wish you good health
I am so sorry for your loss. You must be agonized .
No it is not your fault. We doctor's do take the parents requests into consideration but not to the extent where it interferes with treatment.
So it was the doctor's call. I am sure you did your best to keep your son alive as did the doctors.
I have no doubt in my mind that all you wanted was for your son to be healthy and fine.
Multiple surgeries along with an underlying congenital malformation has a very poor prognosis.
Please don't blame yourself. He is in a better place.
Try to get closure by talking to his doctors and other parents in a similar situation.
The pain will always remain but will take a backseat and heal with time.
hope you feel better and move on
wish you good health
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