I understand the frustration that you are going through now. Let me answer your specific questions.
1. You need to repeat the urine analysis and renal function tests every 6 months and monitored. If there is increasing changes, then you will need to go in for a transplant.
2. You can live a healthy life even without a transplant for more than 20 years, provided your renal functions do not decline.
3. Currently, there is no cure for IgA Nephropathy
. However, therapies can be initiated to delay the onset of need for dialysis
. You are on the right medications for this.
4. IgA nephropathy is not a strict condition where in you cannot conceive. However, you need frequent follow up with the Obstetrician.
5. IgA nephropathy is the most common cause of glomerulonephritis
in the world. It is a common condition and is not an acute life threatening condition. Damage to the kidneys occurs over several years.
I hope this helps.