Hi, I have a 6 month old son who has the following problems: scoliosis, preferred head-turning to the right, truncal hypotonia, almost complete head lag, facial asymmerty with different size and shape ears, delayed development- particlarly motor delay, history of blood glucose 0.9mmol/L on day 2 of life, his liver is said to be pushed down and his tummy (especially where is liver is) appears swollen. His weight is on the 91st centile, length and head circumference on the 75th centile. The doctors and other professionals have not seen this before- he also is able to twist himself into some alarming positions- and appears to be comfortable and happy in these. Please help. Nicola Martin