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Chronic swelling in feet, idiopathic capillary leak syndrome. Prescribed compression stockings. Medications for treatment?

Couple of months ago i got swelling on my both feet, which lasted a few days. however only one continued to swell, it is now going on four months. I went to the doctor, who tested for liver, nothing showed wrong, he said it was varicose veins , but this was denied by two others, I have no veins showing at all. I then went on a detox programme (almost 4 months), it helped with exercise but the swelling is still there everday though not as bad. i realise if i do not exercise it swells. i did a deep vein trombosis test but proper flow of blood etc shows very normal. I went to a vascular surgeon last week who did no test but just looked at the DVT report and my foot. he said i have IDIOPATHIC CAPILLARY LEAK SYNDROME. He recommended compression stocking at that s it. I did research and realise this is a very rare lethal condition. I have some questions I hope you can help me with: 1. How can I be sure that the diagnosis is correct, what tests are done to determine that? 2. Do you know if trinidad has such a place or test that deals with this? If not where can I go. 3. What cure is there? 4. What treatment is there? 5. Where can I get same? I have looked up that Bilberry fruit or extract helps to rebuild capillaries, I bought and started it yesterday. I am also taking aeorobic oxygen and probiotic from the detox programme. I then went on a detox programme - colon cleansers, ozone treatment, no fish, chicken, mineral supplements and exercise but after 4 months, the swelling is still there everday though not as bad. I tend to believe that the exercise helps to keep the swelling down. i did a deep vein trombosis test but proper flow of blood etc shows very normal. I went to a vascular surgeon last week who did no test but just looked at the DVT report and my foot. he said i have IDIOPATHIC CAPILLARY LEAK SYNDROME. He said I don t require surgery, recommended compression stocking, nothing more. I did research and realise this is a very rare lethal condition. I have some questions I hope you can help me with: 1. How can I be sure that the diagnosis is correct, what tests are done to determine that condition? 2. Do you know if trinidad has such a place or test that deals with this? If not where can I go? 3. What can I use to repair the leaking capillaries? 4. What treatment is there? 5. Where can I get same? 6. I am sweating a lot throughout the day, it last for about 5 minutes, but I am not sure if this is due to menopause or the CLS. Can you advise I have looked up that Bilberry fruit or extract helps to repair capillaries, I bought and started it yesterday as well as Daflon 500mg. I am also taking aeorobic oxygen and probiotic from the detox programme. The detox doctor wants to put me on IV Hydrogen Peroxide and continue with ozone fromt he detox programme of 3 months. I research and found that bilberry negatively interacts with other herbal medicine, what can you tell about what I am taking . I look forward to hearing from you. I look forward to hearing from you.
Asked On : Mon, 28 May 2012
Answers:  1 Views:  136
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Orthopaedic Surgeon 's  Response
Hello.
Thanks for writing to us.
The compression bandage and stockings that have been given to you will help you better than any medicine. You can also get diuretics prescribed for earlier relief.
I hope this information has been both informative and helpful for you.
Regards,
Dr. Praveen Tayal ,
drtayal72@gmail.com
Answered: Thu, 17 Apr 2014
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