Question: Dr XXXXXXX answered my previous question, but i pressed the wrong button and didnt reply . You'll understand why I get things like that wrong as you read on. I was wanting to know which area of expertise I need to correspond with. Dont know whether you are able to see my previous posting so will put it in again. For at least the past year I have a ridiculous amount of symptons which stay with me. Swollen parotid glands (checked by Maxillofacial - no tumours showing on scan, not Sjogren and do not have dry mouth etc, they believe manifestation of something going on elsewhere in my body, although didnt do biopsy). Loss of hearing with buzzing in my head (can hear myself talking and swallowing more than I can hear others). Sinusitus. Asthma and productive cough (using inhalers). Scarring at bottom of lungs (CT scan). Do not have COPD per respiritary dept at hospital. Uncontrollable weight gain (not on steroid medication other than inhalers).
Muscle pain, cramps and twitching. Severe acute joint pain anywhere in my body and at any time but no swelling or discoloration. So severe that I find it difficult to walk when my leg joints are affected. Swollen abdomen and bloating, (look 6 months pregnant). Taking
omeprazole for
acid reflux.
Sleeplessness, brain fog and short term memory problems with lack of concentration making it impossible to work, which I really want to get back to at a chartered accountancy practice. Good days and bad days. Tender spots checked for
fibromyalgia by rheuomatologist, I have all but one of those. Severe acute chest pains, for which I was hospitalized overnight and checked ECG and blood tests. Heart ok and suggested it must be muscle related. Checked for
sarcoidosis - negative. Had antibody checks of which the first came back weakly positive (not put on my records for some reason) and the follow up to check this came back negative. Have just been made aware of
Lyme disease and wondered if this could be the cause of all these symptons. Visited Canada a few years ago and went to areas which are prevalent with Lyme infestation. Certainly had moments when we could barely breathe for the swarms of mosquitos. We also stayed in national parks and were even confronted with deer roaming free by our hotel door. Lovely holiday though !! I do not believe that fibro is causing all of these symptons although I know that most of them could be associated with it. I cannot find anyone on forums or find any research to back up the swollen parotid glands association with fibro. I am sure now that some people think that what I have is now "in my head", but I know that not to be the case. I am a reasonably intelligent person and my gut feeling is either a bacteria (such as Lyme) or an autoimmune, even though I have had the negative result. I dont know where to go from here. No one seems to be listening and I really do need to step up the action now and get to the bottom of this debilitating situation. If you can offer me any advice at all I would be extremely grateful.