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Suggest Treatment For A Child With Schizencephaly
Question: Hi I have a granddaughter that has open lip schizencephaly. She has had seizures. Her left arm is weak, She has trouble holding anything. It just hangs there. Her foot and ankle are twisted and she walks on her tiptoes.She wears a foot brace. Are there treatments or surgery available to help her?
Brief Answer:
Recommended medication for seizures and supportive care
Detailed Answer:
Hi XXXXX,
Thanks for writing in to us.
I have read through your query in detail.
Please find my observations below.
1. Surgical cure of schizencephaly is not possible but the symptoms might be controlled by using various methods when the child is growing up.
2. Seizures can be controlled with anti seizure medicines to be given at regulated doses.
3. If there is excess fluid in the brain then it can be shunted out to other parts of the body and redistributed.
4. Rehabilitation is most important during the growing years of the child. Your grand daughter might require an occupational therapist at a younger age and try to gain strength in her limbs.
5. In conclusion, your grand daughter is growing in to a beautiful young adult and she requires the attention of an occupational therapist to help her grow more gracefully and become an independent individual with support of occupational therapists, family and friends. You might discuss her brain scan findings with a neurosurgeon to know if there is any intervention required to maintain normal amount of fluid in the head.
Hope this answers your question. Please feel free to correct any oversight in my interpretation of your problems and discuss them in detail as per your requirements.
Hope your query is answered.
Do write back if you have any doubts.
Regards,
Dr.Vivek
Recommended medication for seizures and supportive care
Detailed Answer:
Hi XXXXX,
Thanks for writing in to us.
I have read through your query in detail.
Please find my observations below.
1. Surgical cure of schizencephaly is not possible but the symptoms might be controlled by using various methods when the child is growing up.
2. Seizures can be controlled with anti seizure medicines to be given at regulated doses.
3. If there is excess fluid in the brain then it can be shunted out to other parts of the body and redistributed.
4. Rehabilitation is most important during the growing years of the child. Your grand daughter might require an occupational therapist at a younger age and try to gain strength in her limbs.
5. In conclusion, your grand daughter is growing in to a beautiful young adult and she requires the attention of an occupational therapist to help her grow more gracefully and become an independent individual with support of occupational therapists, family and friends. You might discuss her brain scan findings with a neurosurgeon to know if there is any intervention required to maintain normal amount of fluid in the head.
Hope this answers your question. Please feel free to correct any oversight in my interpretation of your problems and discuss them in detail as per your requirements.
Hope your query is answered.
Do write back if you have any doubts.
Regards,
Dr.Vivek
Above answer was peer-reviewed by :
Dr. Chakravarthy Mazumdar
Answered by
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