Question: Hi. In the past I have been diagnosed with
diverticulitis on CT several times, and at a different time also with having pudental neuralgia that lasted about 3 years off and on, mostly on, and then went away (diagnosed by exam and symptoms)> No one did any imaging at the time to see if there was any pathology causing the neuralgia. After about 2 years I have some of the same symptoms back for the past several months but lately there is also burning in my left buttock where the same pain is from the neuralgia off and on, numbness and tingling on the left side of anus and vagina Today I also started having diarrhea and lower left sharp stabbing pains like when I had the diverticulitis. I have chills off and on, also today. On MRI and CTscans for the diverticulitis radiologists have seen "cysts" on the left side in sacral and pelvic views that they called "innocent". I had a rectal ultrasound 2 yrs ago and MD found nothing except I had major repeated pain in one area when he went farther into the sigmoid area. 3 years ago a
colonoscopy was done due to occult blood with negative results (hemorrhoids no polyps). I also feel "air" off and on that I think is coming from urethra, I can be sitting, esp. happens after sitting then standing up, sometimes after urinating, has happened only twice while urinating. An MRI was done to look for fistulas, none found. Could the
pudendal neuralgia cause be causing all these symptoms? I know that they can be from separate problems. My gastroenterologist thinks that I need to see my gyn and I've seen a urologist that did
cystoscopy and found nothing. Gyn has found nothing, normal gyn exam. What type of
neurologist deals with pudendal neuralgia? I won't go back to the gyn MD specializing in PN that dxed my neuralgia. He moved away from my area and was very condescending. There is so much to this history. I am a
dentist that has to sit way too much due to work and also knows too much but not enough to figure out who to see to get better. My primary MD doesnt know and I probably know as much as he does about this. Is there a team of specialists including a neurologist somewhere that could help me? Thank you so much.
PS I took my temperature earlier, it's 98.8. Still having lower left pain, sharp stabs sometimes intense, every 5 - 10 min's or so, it changes. drinking water, not eating any more solid food tonight..if it gets worse or bad enough, I'll go to ER
PSS Gyn specialist several years back put me on
gabapentin. Did not help and made me extremely constipated. also made me feel weird and was hard to work (dentistry)
I took the gabapentin for about a month. The neuralgia symptoms went away on their own, but when I had them, I had the pillow to sit on, still do use, and tried to not bend, sit, etc... but the pain happens in my butt and inside body in the center on the left, hard to explain location, all the time off and on, not related to sitting as much as before. sometimes it burns now, other times just hurts., like pain with cold sores on your lip, aches up to your eye sometimes, no sign of having herpes there, I've had gyn look during symptoms... my chief complaint now is the pain in lower left, may not be related to PN.
I don't have any of the radiologist reports in the computer, will take me a day or so to upload. If you need them, I will do it. Please let me know. Thanks, again. XXXX