Question: Colonoscopy found severe inflammation in patches from a little way up from rectum right through to as far as they got which was at the top of colon, before it turns and goes down towards the small intestine (hope i've explained that well enough) They had to stop the procedure at that point as the bowel started to bleed and it became impossible to see anymore. Endoscopy at same time showed mucous, and red markings to the top of the stomach.
Was told they suspected either an IBD (UC) or Allergic Colitis (EGID) Was kept in hospital as it was so severe.
Results were rushed through and next day was told all biopsies were clear , No ulcerative colitis at all, and nothing to suggest allergic colitis. (one more test result was a fecal calprotectin level of 600+)
So discharged after 1 week, with all food removed and on an Elemental Diet (amino acid formula only)
Returned for repeat scopes.. upper & lower GI tract again, 9 weeks later. This time, there was NO inflammation , all that was reported to me was loss of vascular markings in rectum, and also red markings in stomach ??
So introduced food back into diet, 1 thing at a time, and not long after.. she was showing same symptoms, although a lot less severe than before...
9 months on and she is back to the ill child she was... she has stopped eating, extreme constipation, lethargic, pain in tummy, screaming through the night etc etc etc
Huge story I know... I am sorry !!!... So basically my question to you is, does it sound like IBD to you?
Everything i read points towards Crohns (not UC like suggested) and I have now read so many medical reports suggesting that Elemental diet in a child with IBD can induce a clinical remission in as little as 8 weeks and in fact just 2 weeks in some ...
So can Crohns be missed in Biopsies ?
As you can probably tell, I am at a loss here with no support (or next to none anyway) from the local medics who seemed baffled, and then just seemed to give up..

Thanks for reply.

For the inflammation to have been caused by chronic constipation, then wouldn't the constipation have to had improved somewhat in the 9 weeks between the 1st and 2nd scopes?
As it never..

She drinks more than the recommended daily amount, which the hospital told me as they monitored fluid charts for 4 consecutive days.

As she was placed on an Elemental Diet (amino acid formula)after they found the inflammation I also can't give the foods you've suggested...
She had worked her way back to having 10 safe foods, but totally stopped eating due to how she is feeling just now.

She has had quite a few enemas now, and they have proven inafective each time, as she always has the build up at the top end... as seen on x-rays..

Hellom,

I don't have copies of test results but I have called them today and asked for copies...
I can forward these to you as soon as I receive them.

The only test you have mentioned there that hasn't been before is an ultrasound... do you think this could be useful to her?

I am just very concerned at the high levels of medication she needs each day to try and have a bowel movement :(

Thanks
XXXXXX