Hi,I am Dr. Santosh Kondekar (Pediatrician). I will be looking into your question and guiding you through the process. Please write your question below.
Hi my 15 yr old daughter has vactrel syndrome and also is having seizure, fatty inflitration of liver, low chelestrol and I just don't know where to turn I feel like they are all connected but it took 13 yrs to find out she had vacterl or vater syndrome. Do you have any suggestions?
VACTERL association (also VATER syndrome) refers to the non-random co-occurrence of birth defects Vertebral anomalies, Anal atresia, Cardiac defects, Tracheoesophageal fistula and/or Esophageal atresia, Renal & Radial anomalies and Limb defects and is a known genetic entity. Since it is genetic, it cannot be cured. Treatment is symptomatic and depends on the manifestations. Just remain in follow up of a doctor and he will guide you how to take care of the problems as and when they occur. Nothing more is there to be said and done.
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Suggest Treatment For Vater Syndrome
VACTERL association (also VATER syndrome) refers to the non-random co-occurrence of birth defects Vertebral anomalies, Anal atresia, Cardiac defects, Tracheoesophageal fistula and/or Esophageal atresia, Renal & Radial anomalies and Limb defects and is a known genetic entity. Since it is genetic, it cannot be cured. Treatment is symptomatic and depends on the manifestations. Just remain in follow up of a doctor and he will guide you how to take care of the problems as and when they occur. Nothing more is there to be said and done.