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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Treatment For Oromandibular Dystonia

iam suffuring from oromandibular dystonia. symptom: constant urge to open mouth and to keep the mouth open. previously i had tendency to head jerking, hand jerking , leg jerking but those are now gone taking homeo treatment.but now i cannot resist the present symptom. what kind of treatment i can take?is it curable?
Tue, 8 Oct 2019
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Neurologist 's  Response
Hello,

From your description of the other body parts jerking in the past and now the mouth becoming involved you may wish to get some genetic testing done to discover whether or not you have a mutation in the DYT1 gene complex.

No particular medication does better than any other except for BOTOX which improves symptoms of dystonia in about 70% of patients properly injected. Homeopathic treatment is unlikely to help with this problem.

Unfortunately CURABLE is not the right term to use for this condition since we don't fully understand what causes it in the first place but it is something that can be managed.

However, each patient's plan is customizable to the exact type of dystonia they have and whether or parts of the body are involved or not.

Hope I have answered your query. Let me know if I can assist you further.

Take care

Regards,
Dr Dariush Saghafi, Neurologist
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Suggest Treatment For Oromandibular Dystonia

Hello, From your description of the other body parts jerking in the past and now the mouth becoming involved you may wish to get some genetic testing done to discover whether or not you have a mutation in the DYT1 gene complex. No particular medication does better than any other except for BOTOX which improves symptoms of dystonia in about 70% of patients properly injected. Homeopathic treatment is unlikely to help with this problem. Unfortunately CURABLE is not the right term to use for this condition since we don t fully understand what causes it in the first place but it is something that can be managed. However, each patient s plan is customizable to the exact type of dystonia they have and whether or parts of the body are involved or not. Hope I have answered your query. Let me know if I can assist you further. Take care Regards, Dr Dariush Saghafi, Neurologist